Chronic Pain Partners

08/25/2026

We all know the same story: you have pain but all of the tests come back normal and you’re left with no answers.

A recent study dove into the definable differences between hEDS and non-hEDS patients in small fiber neuropathy. Spoiler alter: there were many significant findings!

Read the article to find out what they are: https://www.chronicpainpartners.com/when-pain-is-real-but-tests-come-back-normal-new-research-sheds-light-on-the-nervous-system-in-heds/

Alt Text
Slide 1:
Light gray background with dark teal text and orange accent elements. Large headline reads “When Pain Is Real but Tests Come Back Normal: New Research Sheds Light on the Nervous System in hEDS.” Below is explanatory text about hypermobile Ehlers-Danlos syndrome and a skin biopsy study. EDS Awareness logo in bottom right, “Swipe to learn” button at bottom left.
Slide 2:
Orange background with dark teal text. Headline “What is Small Fiber Neuropathy?” followed by two paragraphs explaining SFN causes burning pain, abnormal sensations, and autonomic dysfunction. Includes note that SFN appears in many hEDS patients but hasn’t been systematically compared to standalone SFN. Handle and next page arrow at bottom.
Slide 3:
Dark teal background with white text. Headline “How the Study Was Done.” Shows two orange rounded boxes: “35 hEDS/SFN patients” and “38 iSFN patients” with a play button icon. Describes comprehensive battery of assessments including questionnaires, sensory testing, autonomic testing, and skin biopsy for nerve fiber density comparison.
Slide 4:
Orange background with dark teal text. Headline “What They Found” with three sections: symptom onset earlier in hEDS/SFN group (age 19 vs 35), longer disease duration, and pain more widespread in hEDS/SFN group, noting 34% reported perineal pain versus none in iSFN group, attributed to nerve displacement from tissue laxity.
Slide 5:
Orange background with dark teal text. Continuation of “What They Found” covering autonomic symptoms significantly more severe in hEDS/SFN (POTS in 51.5% vs none), greater loss of autonomic nerve fibers, and unusual alternating pattern of fiber loss and regrowth in hEDS/SFN patients.
Slide 6:
Dark teal background with orange and white text. “Key Takeaways” section with four main bullet points: earlier symptom onset in hEDS/SFN, more severe autonomic symptoms including POTS, greater nerve fiber loss revealed by skin biopsy, and that small fiber involvement appears core to hEDS rather than secondary.
Slide 7:
Dark teal background with white rounded box containing black text. Headline “Read the full article at” with URL https://www.chronicpainpartners.com/articles and search icon. DOI link below (https://doi.org/10.1038/s41598-026-60461-6). EDS Awareness logo at bottom.​​​​​​​​​​​​​​​​

08/21/2026

It is Gastrointestinal Dysmotility Awareness Month, let’s learn about dysphasia and why it happens with EDS.

To learn more, read the article: https://www.chronicpainpartners.com/why-is-swallowing-so-hard-dysphagia-in-eds-and-hsd/



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Image 1:
“Title slide with teal and cream colored design reading ‘Why Is Swallowing So Hard? Dysphagia in EDS and HSD’ in large black text. Subtitle reads ‘For Gastrointestinal Dysmotility Awareness Month.’ Decorative paperclip icon in top right corner. Credit: ”
Image 2:
“Educational slide titled ‘What is Dysphagia?’ with body text explaining that difficulty swallowing (dysphagia) is increasingly recognized as a common symptom in people with hypermobility disorders, potentially affecting around one-third of people with hEDS and HSD. Credit: ”
Image 3:
“Educational slide titled ‘Why does it Happen?’ explaining that researchers don’t have a single explanation for dysphagia in hEDS and HSD, but multiple contributing factors may be involved, including: esophageal motility disorder, functional dysphagia, reflux, and eosinophilic esophagitis (EoE). Text also notes that studies found people with both hEDS and POTS reported more severe swallowing and reflux symptoms. Credit: ”
Image 4:
“Closing slide titled ‘Looking Ahead’ with text explaining that researchers continue studying dysphagia in hEDS and HSD, which impacts the EDS community significantly and can affect daily life, and that evaluation can help identify underlying causes and connect people with appropriate treatment. Text reads ‘Learn more at www.chronicpainpartners.com/articles’ with EDS Awareness logo in bottom right corner.“

08/18/2026

Have you heard the news? PCOS is now PMOS, to read all about it, check out the article: https://www.chronicpainpartners.com/a-name-long-overdue-pcos-becomes-pmos-and-what-that-means-for-the-heds-community/



Alt Text:
“Medical infographic with title ‘PCOS NOW CALLED’ at the top. Center shows an illustration of the reproductive system (uterus and ovaries) in red and beige tones. Overlaid on the illustration is a circular pattern of 9 dots in varying shades of gray, black, and white, representing multiple hormonal systems. Below reads ‘POLYENDOCRINE METABOLIC OVARIAN SYNDROME’ in white text. Credit: ”​​​​​​​​​​​​​​​​

“Infographic slide titled ‘WHY CHANGE THE NAME?’ explaining that The Lancet published an article announcing a name change from polycystic o***y syndrome (PCOS) to polyendocrine metabolic ovarian syndrome (PMOS). Text states the previous name erased diverse hormonal and metabolic features, contributing to diagnostic delay and misguided treatment focus. Credit: ”

“Infographic slide titled ‘WHAT DOES IT MEAN?’ breaking down the new terminology: ‘polyendocrine’ recognizes multiple hormonal disturbances including insulin, androgens, and neuroendocrine hormones; ‘metabolic’ acknowledges metabolic features like insulin resistance, obesity, and increased risks for type 2 diabetes and cardiovascular disease; ‘ovarian’ is retained because ovulation and ovarian function remain defining features despite many patients not having ovarian cysts. Credit: ”

“Infographic slide with text ‘READ MORE AT:’ and URL https://www.chronicpainpartners.com/articles/, featuring an EDS Awareness (Ehlers-Danlos Syndromes) logo. Credit: ”

08/16/2026

We’re very excited about a new preprint released on August 10, 2026:

“Defining Neuro-EDS: A Neuro-Predominant Phenotype in hEDS/HSD and Related Heritable Connective Tissue Disorders”

The paper proposes Neuro-EDS as a phenotype describing a subgroup of patients with multiple complex neurological manifestations that tend to cluster together.

Thank you to the authors behind this important work: Allison R. Bloom, Ilene S. Ruhoy, Randall A. Dass, Amanda Lerner, Paolo B. Bolognese, and Petra M. Klinge!

Swipe through for a quick breakdown of what Neuro-EDS means and why it could matter.

08/12/2026

Exercise and strength training can be very beneficial for hypermobile bodies, but it requires a different approach and more intentional training to prevent injury.

Our recent article outlines important aspects of strength training with useful and applicable tips to be successful.

Read it here: https://www.chronicpainpartners.com/strength-training-with-hypermobility-the-goldilocks-principle/

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Image 1:
Title slide reading “Strength Training with Hypermobility: The Goldilocks Principle with Libby Hinsley, PT, DPT.” Background shows green resistance bands, dumbbells, and a smartphone. Credit:
Image 2:
Text box explaining: “Strength is a measure of how much load you can push, pull, squat, lift, or carry. Strength training refers to using resistance (bands, dumbbells, kettlebells, barbells, etc.) to train your muscles to get stronger over time, so they can move heavier loads. Stability, on the other hand, is the ability to resist movement under a load…Strength training is inherently also stability training.”
Image 3:
List titled “Key Elements of Strength Training for Bendy People” with 12 bullet points: Range of Motion, Adaptability, Preparation, External Feedback, Muscle Recruitment, Positioning (highlighted in red), Volume, Frequency, Intensity, Safety, Tempo, and Recovery.
Image 4:
Text explaining muscle recruitment: “Bendy people often compensate by using the wrong muscles to complete an exercise, even when it looks ‘correct’ from the outside. A helpful question to ask your therapist with each exercise is: ‘Where should I be feeling this?’”
Image 5:
Bulleted list of recovery tips including: more rest between sets (3-5 minutes), more rest and relaxation at session end, more hydration and nutrition, and more self-care such as hot baths and massage.
Image 6:
Closing slide directing to www.chronicpainpartners.com/articles with EDS Awareness (Ehlers-Danlos Syndromes) logo.​​​​​​​​​​​​​​​​

08/10/2026

Save the date 🗓️ August 14th at 12:00pm EDT we welcome Dr. Whiteley to kick off bringing back webinars!

Registration link: https://www.chronicpainpartners.com/webinar/free-webinar-with-professor-mark-s-whiteley-eds-pots-and-pelvic-congestion-what-do-we-know-what-is-likely-to-be-true-and-what-is-hype/

08/05/2026

Webinars are back! At Chronic Pain Partners we value providing FREE resources to help you feel equipped when managing your health.

Stay tuned for information on upcoming webinars and registration information. If you have a topic you’d like us to cover, or are a physician who would like to present, feel free to DM us💌


Alt Text Image 1:
“Promotional graphic for EDS Awareness webinars. Title reads ‘Webinars Are Back! Free Monthly Online Sessions.’ Text describes the webinar series started in 2013 by founder John Ferman, highlighting 95 archived webinars and the value of hosting live expert-led events. Background shows a person in a light green sweater at a laptop with a small potted plant on the desk. EDS Awareness logo appears in bottom right corner.”
Image 2:
“Promotional graphic for EDS Awareness webinars with title ‘Webinars Are Back!’ and subtitle ‘Free Monthly Online Sessions.’ A dark teal rounded text box contains information about the webinar series history and commitment to hosting live events with experts to discuss topics and answer questions. Same workspace scene with person, laptop, and potted plant. EDS Awareness logo in bottom right.”
Image 3:
“Promotional graphic announcing EDS Awareness webinars returning. Title ‘Webinars Are Back! Free Monthly Online Sessions’ with session details: 1.5 - 2 hours total, consisting of a 45-minute presentation and 45-minute Q&A. Dark teal callout box reads ‘stay tuned for registration information coming soon.’ Same home office setting with person and laptop. EDS Awareness logo in bottom right corner.“​​​​​​​​​​

08/03/2026

An EDS diagnosis and journey can be overwhelming, that’s why we are creating guides to help you navigate it.

Check out the link in our bio to see the guides 🔗

https://www.chronicpainpartners.com/patient-guides/

Image 1: Instagram post from with a black header reading “CHECK OUT OUR” in bold white text, followed by white text explaining these are Ehlers Danlos Syndrome guides made to help people with EDS navigate the diagnostic process and manage EDS and its comorbid conditions. Below on a white background is a list of underlined links: EDS Brochures, Patient Guide Cervical Spine Instability, Patient Guide Win Your EDS Disability Claim, Patient Guide Mastering Appointments Successfully, Patient Guide Preventive Care for EDS, Patient Guide Dysautonomia, and Patient Guide Mast Cell Activation Syndrome.

Image 2: Instagram post from with the heading “GUIDES TO HELP YOU NAVIGATE” in bold black text on a light gray background. Below is a rounded rectangular image with a dark, desaturated photo of a spine and pelvic bones, overlaid with white text reading “Unravelling Tethered Cord with EDS: A Patient Guide.”

Image 3: Instagram post from on a black-and-gray zebra-print background. Bold white text reads “NAVIGATING A NEW DIAGNOSIS? LOOKING TO LEARN MORE?” followed by “OUR GUIDES WERE CREATED FOR ANYONE NEEDING THEM.” Below is a white rounded button with black text reading “Link in our bio to access them,” and near the bottom, smaller white text reads “Share this with someone who might need it.“​​​​​​​​​​​​​​​​

07/29/2026

We had the opportunity to talk with Wang-Hiller , founder of to discuss her experience with disability, cultural considerations, how music has played a part in her journey, and founding her own non-profit.

https://www.chronicpainpartners.com/an-interview-with-amy-wang-hiller-music-disability-and-advocacy/

Image 1 (Cover):
Instagram carousel cover slide with a soft, muted color palette. A young Asian woman with long dark hair sits in a wheelchair, smiling gently at the camera while holding a violin and bow near her shoulder. She wears a dark, textured outfit with a flowing checkered skirt draped over the chair. Bold serif text reads “MUSIC, DISABILITY, AND ADVOCACY” with handwritten-style script below reading “with Amy Wang-Hiller.” The handle “” appears in the top right corner, and “INTERVIEWED BY JACQUELINE TETI” with “07/26” appears at the bottom.

Image 2 (Q&A bio):
A Q&A-style slide with a cream background and dark teal header and footer bars. In the top left, a small circular “Q&A” label sits above a square photo of Amy Wang-Hiller holding her violin in her wheelchair. Bold text reads “AMY WANG-HILLER” beside the photo. Below, several paragraphs of body text cover her background: starting violin at three and a half, early undiagnosed symptoms, injuries in 2015 and 2020 that led to a rapid health decline, her eventual diagnoses including hEDS and AIS B quadriplegia, experiences with medical misattribution, her reflections on how her Chinese background may have affected diagnosis, and her founding of the organization InclusiVibe. Two hyperlinked resources are listed at the bottom: her personal website and the InclusiVibe Foundation site.

Image 3 (Closing/call-to-action):
A closing slide with a dimmed background photo of a hand writing in a spiral notebook next to a laptop keyboard. Bold serif text overlaid reads “CHECK OUT THE FULL ARTICLE AT” followed by the handwritten-style URL “https://www.chronicpainpartners.com/articles.” Below that is a circular “EDS Awareness, Ehlers-Danlos Syndromes” logo, followed by three icons labeled “LIKE,” “SHARE,” and “SAVE.” The header reads “INTERVIEWED BY JACQUELINE TETI” with the handle “” in the top right, and “07/26” in the bottom right corner.​​​​​​​​​​​​​​​​

Please “hover” over this Articles tab to get a partial list of Article categories. For more topics, go to the “POPULAR CATEGORIES” section on the right column of the HOME page, to select your category of interest.  

07/24/2026

Let’s review some disability facts during this Disability Pride Month➡️

Did you know these facts?

Read more: https://www.chronicpainpartners.com/disability-pride-month-the-world-works-better-with-us/

♿️

Here’s alt text for the four slides:
Image 1: Dark teal graphic reading “Disability Pride Month, Did You Know?” Below the text, four simple human icon figures stand in a row — the first is orange, the remaining three are white. Caption below reads “1 in 4 adults in the United States have a disability.” Handles and appear in the bottom corner.

Image 2: Dark teal graphic reading “Disability Pride Month, Did You Know?” Below the text, a grid of small human icon figures fills three rows — nearly all are orange, with a single white figure at the end of the bottom row. Caption below reads “Majority of people will experience disability in their lifetime.” Handles and appear in the bottom corner.

Image 3: Dark teal graphic reading “Disability Pride Month, Did You Know?” Below the text, a single orange human icon figure stands on a dashed line that curves up and down like a wave, alternating between white and orange dashes. Caption below reads “Being disabled is the only minority you can become a part of at anytime.” Handles and appear in the bottom corner.

Image 4: Dark teal graphic reading “Disability Pride Month, Read more at https://www.chronicpainpartners.com/articles.” Below the text is a circular logo with “EDS Awareness, Ehlers-Danlos Syndromes” in teal and orange. Handles and appear in the bottom corner.

Please “hover” over this Articles tab to get a partial list of Article categories. For more topics, go to the “POPULAR CATEGORIES” section on the right column of the HOME page, to select your category of interest.