DIPG DMG Research Funding Alliance

08/30/2022

𝐓𝐡𝐞 𝐃𝐈𝐏𝐆 𝐃𝐌𝐆 𝐑𝐞𝐬𝐞𝐚𝐫𝐜𝐡 𝐅𝐮𝐧𝐝𝐢𝐧𝐠 𝐀𝐥𝐥𝐢𝐚𝐧𝐜𝐞'𝐬 (DDRFA) first grant cycle is open for applicants!

Don't miss this opportunity for DIPG/DMG RESEARCH GRANTS from $25K to $100K!

These grants are for all researchers, clinicians, and data scientists ready to advance DIPG DMG-directed initiatives!

Find the short RFP & application here https://ddrfa.org/grants/

𝘼𝙥𝙥𝙡𝙞𝙘𝙖𝙩𝙞𝙤𝙣𝙨 𝙖𝙧𝙚 𝙙𝙪𝙚 𝙎𝙚𝙥𝙩𝙚𝙢𝙗𝙚𝙧 1, 2022 𝙖𝙩 5:00𝙥𝙢 𝙋𝙎𝙏.

𝐓𝐡𝐞 𝐃𝐈𝐏𝐆 𝐃𝐌𝐆 𝐑𝐞𝐬𝐞𝐚𝐫𝐜𝐡 𝐅𝐮𝐧𝐝𝐢𝐧𝐠 𝐀𝐥𝐥𝐢𝐚𝐧𝐜𝐞'𝐬 (DDRFA) Medical Advisory Council (MAC) will score the applicants research proposals and our members will determine which high-scoring applications to fund.

The first round of grantees will be announced at the Tough2Gether Against DIPG Breakfast at CureFest for Childhood Cancer on September 24th!

08/24/2022

There is still time but hurry!
DIPG/DMG RESEARCH GRANTS ARE AVAILABLE!
From $25K to $100K

Calling all researchers, clinicians, and data scientists ready to advance DIPG DMG-directed initiatives! 𝐓𝐡𝐞 𝐃𝐈𝐏𝐆 𝐃𝐌𝐆 𝐑𝐞𝐬𝐞𝐚𝐫𝐜𝐡 𝐅𝐮𝐧𝐝𝐢𝐧𝐠 𝐀𝐥𝐥𝐢𝐚𝐧𝐜𝐞'𝐬 (DDRFA) first grant cycle is open for applicants!

Find the short RFP & application here https://ddrfa.org/grants/

Applications are due September 1, 2022 at 5:00pm PST.

𝐓𝐡𝐞 𝐃𝐈𝐏𝐆 𝐃𝐌𝐆 𝐑𝐞𝐬𝐞𝐚𝐫𝐜𝐡 𝐅𝐮𝐧𝐝𝐢𝐧𝐠 𝐀𝐥𝐥𝐢𝐚𝐧𝐜𝐞'𝐬 (DDRFA) Medical Advisory Council (MAC) will score the applicants' research proposals and our members will determine which high-scoring applications to fund.

The first round of grantees will be announced at the Tough2Gether Against DIPG Breakfast at CureFest for Childhood Cancer on September 24th!

08/15/2022

SIXTY + FOUNDING FAMILIES STRONG!

“Powered by families, because lives depend on it,” is more than a tagline for the family-created foundations and funds that make up the new DIPG/DMG Research Funding Alliance.

These members are families who have experienced the devastating loss of a child due to DIPG. They know all too well that DIPG quickly claims the walk, talk, swallow, sight, hearing, and last breath in children diagnosed with this deadliest of childhood illness. 𝐓𝐡𝐞𝐲 𝐤𝐧𝐨𝐰 𝐃𝐈𝐏𝐆 𝐃𝐌𝐆 𝐰𝐨𝐧’𝐭 𝐰𝐚𝐢𝐭.

These families come together to URGENTLY fund basic and translational research, access to clinical trials, and the integration and utilization of patient data. DDRFA focuses its funding on this brainstem glioma most commonly attacking children ages 4 to 12.

Through grants of $25,000 to $250,000 , this funding alliance plans to help further the road to a cure for DIPG and who knows where we could go from there?!

DDRFA is powered by groups of passionate people who know that lives depend on us. Donate or join us today!

Donate here:
https://www.flipcause.com/secure/cause_pdetails/MTU2MjUw

08/14/2022

Have you heard about The DIPG DMG Research Funding Alliance (DDRFA)?

DDRFA is a group of 60+ families, foundations, and funds proudly investing singularly in advances for the deadliest childhood cancer: DIPG DMG.
The DIPG DMG Research Funding Alliance (DDRFA) is holding its first in-person meeting at CureFest for Childhood Cancer in Washington, D.C at 12:00 pm on Saturday, Sept 24, 2022.

For those joining as DDRFA members before September 20, we would be honored to have you as part of this historic meeting!

Contact [email protected] for more information. We look forward to hearing from you!

08/12/2022

DIPG/DMG RESEARCH GRANTS ARE AVAILABLE!
From $25K to $100K

Calling all researchers, clinicians, and data scientists ready to advance DIPG DMG-directed initiatives! 𝐓𝐡𝐞 𝐃𝐈𝐏𝐆 𝐃𝐌𝐆 𝐑𝐞𝐬𝐞𝐚𝐫𝐜𝐡 𝐅𝐮𝐧𝐝𝐢𝐧𝐠 𝐀𝐥𝐥𝐢𝐚𝐧𝐜𝐞'𝐬 (DDRFA) first grant cycle is open for applicants!

Find the short RFP & application here https://ddrfa.org/grants/

Applications are due September 1, 2022 at 5:00pm PST.

𝐓𝐡𝐞 𝐃𝐈𝐏𝐆 𝐃𝐌𝐆 𝐑𝐞𝐬𝐞𝐚𝐫𝐜𝐡 𝐅𝐮𝐧𝐝𝐢𝐧𝐠 𝐀𝐥𝐥𝐢𝐚𝐧𝐜𝐞'𝐬 (DDRFA) Medical Advisory Council (MAC) will score the applicants' research proposals and our members will determine which high-scoring applications to fund.

The first round of grantees will be announced at the Tough2Gether Against DIPG Breakfast at CureFest for Childhood Cancer on September 24th!

08/12/2022

𝐀𝐥𝐥 𝐰𝐞 𝐧𝐞𝐞𝐝 𝐢𝐬 𝐘𝐎𝐔!
Join the 60+ families, foundations, and funds who proudly invested in the 𝐃𝐈𝐏𝐆 𝐃𝐌𝐆 𝐑𝐞𝐬𝐞𝐚𝐫𝐜𝐡 𝐅𝐮𝐧𝐝𝐢𝐧𝐠 𝐀𝐥𝐥𝐢𝐚𝐧𝐜𝐞 (DDRFA) as founding members. DDRFA was formed to focus singularly on advances for the deadliest childhood cancer: DIPG DMG.

The organizations that make up DDRFA work together to make our donors' funds stretch further. We understand well the urgent need to tackle this fatal brain tumor. We will move at the speed of DIPG to fund innovative research, access to trials and data use to bring advances in treatment, eradication, diagnosis, and prevention of DIPG DMG.

Members may also continue to fund research outside this targeted alliance. The DDRFA Medical Advisory Council (MAC) guides our investments and challenges grantees by incentivizing patient-centered collaboration and sharing of information.

𝐓𝐡𝐞 𝐃𝐈𝐏𝐆 𝐃𝐌𝐆 𝐑𝐞𝐬𝐞𝐚𝐫𝐜𝐡 𝐅𝐮𝐧𝐝𝐢𝐧𝐠 𝐀𝐥𝐥𝐢𝐚𝐧𝐜𝐞 (DDRFA) is powered by groups of passionate people who know all too well that lives depend on us.

Donate to DDRFA https://www.flipcause.com/secure/cause_pdetails/MTU2MjUw or join DDRFA at www.ddrfa.org to help those children and adults affected by DIPG/DMG.

𝐖𝐞 𝐤𝐧𝐨𝐰 𝐃𝐈𝐏𝐆 𝐃𝐌𝐆 𝐰𝐨𝐧’𝐭 𝐰𝐚𝐢𝐭.

08/09/2022

When Jace Ward had the opportunity to have 7 clinicians weigh in on his case through a zoom call during the height of the pandemic to decide the best options for his treatment, he turned to his mom and said "Remember this, every 25-year-old mom with a 4-year-old needs this same opportunity to pick the best chance for their kid to live." His mom Lisa had stayed up all night many nights searching ClinicalTrials.gov for options. Jace knew there was a better way. "Let's just ask the best doctors we know." Of course, Lisa knew time was not on their side to travel to six or seven centers across the country for evaluation. "Ask them to jump on a zoom call", Jace said. "They like me! They'll tell us what to do." It sounded so simple, but there was no centralized tumor board available. Yet, a zoom call was called by Jace and the seven clinicians, eliminated trials Jace would not be eligible to receive, trials that were not open or had long waiting lists, trials that had not proven to show promising results, the list was whittled down to between two and four trials. The Wards received a written report to review with their oncologist and the opportunity to make an appointment with one of the doctors on the zoom call to better understand the trials considered.

Beginning September 1, 2022, the DIPG DMG National Brain Tumor Board will begin hearing cases just like Jace's. Those children or adults with DIPG DMG who are within 16 weeks from diagnosis or are at first progression may submit a request to be heard by the tumor board. The family's oncologist, pediatrician, neuro-surgeon or other provider guiding the patient's care may sit in on the tumor board discussion and receive the tumor board report. Likewise, any provider around the world interested in learning more about DIPG DMG treatment options may sit in on the tumor board discussions of all patients.

If you would like to join DDRFA, or make a donation to support the work of DDRFA or the tumor board, please contact us at www.DDRFA.org.

08/08/2022

CALLING OUR DIPG DMG FAMILIES AND FRIENDS!!!

Are you registered for the NEW BrainStorm Summit?

A NEW FOCUS ON PEDIATRIC BRAIN TUMORS AT CureFest for Childhood Cancer THIS YEAR!!!
-Celebrate our collective progress
-Hear about upcoming trials and new family support
-Plug into opportunities within the community
-Learn about this year’s big data advances

When: Friday and Saturday, September 23 and 24 (part of CureFest Sept 21-25 events)


Where: Washington DC

📢 What do you need to do?

STEP ONE…📲
Register for CureFest HERE: CureFest Registration

STEP TWO…📲
Register for BrainStorm Summit HERE: BrainStorm Summit

STEP THREE…🏢
Find your accommodations before they book up!
https://www.curefestusa.org/hotels

Come Be Together!
Join forces to fight pediatric brain tumors!
Register TODAY!!!

08/06/2022

A NEW FOCUS ON PEDIATRIC BRAIN TUMORS AT CUREFEST THIS YEAR!!!

Be sure to click the link to register! See you there!

REGISTER NOW!

The Tough2Gether Against DIPG Breakfast is back this year at CureFest for Childhood Cancer along with the NEW Brain Storm Summit!

When: Friday and Saturday, September 23 and 24 (part of CureFest Sept 21-25 events)

Where: Washington DC

What do you need to do?
STEP ONE…Register for CureFest HERE:
https://www.curefestusa.org/register

STEP TWO…Register for BrainStorm Summit HERE:
https://runsignup.com/Race/DC/Washington/BrainStormSummit

STEP THREE…Find your accommodations before they book up!
https://www.curefestusa.org/hotels

A NEW FOCUS ON PEDIATRIC BRAIN TUMORS AT CUREFEST THIS YEAR!!!

-Celebrate our collective progress

-Hear about upcoming trials and new family support

-Plug into opportunities within the community

-Learn about this year’s big data advances

Come Be Together!

Join forces to fight pediatric brain tumors!

Register TODAY!!!

08/05/2022

DIPG/DMG RESEARCH GRANTS ARE AVAILABLE!
From $25K to $100K

TODAY IS THE DAY! Calling all researchers, clinicians, and data scientists ready to advance DIPG DMG-directed initiatives. Go to www.ddrfa.org and find the tab that says “Grants” to apply now!!

Do you have a favorite researcher or center working on DIPG DMG? Help us spread the word! Our RFP and short application is posted at https://ddrfa.org/grants/ Applications are due September 1, 2022 at 5:00pm PST.

DDRFA’s Medical Advisory Council (MAC) will score the applicants' research proposals and our members will determine which high-scoring applications to fund.

The first round of grantees will be announced at the Tough2Gether Against DIPG Breakfast at CureFest for Childhood Cancer on September 24th!

Don’t wait - Join DDRFA now and be part of the first competitive grants. Learn more here: DDRFA.org

08/04/2022

Great things take time….RFPs coming soon!

Check back soon for more details on:
DIPG/DMG RESEARCH GRANTS from $25K to $100K!

07/29/2022

ANNOUNCEMENT!

DDRFA is READY to award competitive grant funds ranging from $25K to $100K to researchers, clinicians, and data scientists across the nation who are advancing DIPG DMG-directed initiatives. Watch for the RFP on our website August 3.

Help spread the word! DDRFA’s Medical Advisory Council (MAC) will score the applicants' research proposals and our members will determine which high-scoring application(s) to fund.

The first round of grantees will be announced at the Tough2Gether Against DIPG Breakfast at CureFest for Childhood Cancer on September 24th!

Don’t wait - Join DDRFA now and be part of the first competitive grants.

Learn more here: www.ddrfa.org