Shadow Jumpers

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Shadow Jumpers We provide meaningful experiences & a sense of community to families living with photosensitive conditions The sun can seem like an impossible enemy.

One who dictates every decision, big or small, because no matter where you go the sun is (quite literally) everywhere. It could be understandable to let that affect what you do for fun, what you do at school, where you go on vacation, what career you choose, where you live and so much more. But the one thing that is more powerful than the rays of a 4.5 billion year old star is the power of Perseverance. It’s the founding principle of our vision to assist every person wanting to combat their sun disorder and take back control of their story. This is our Mission:
We’ll Remove the Sun, You Remove the Doubt. Combating the Sun comes in a wide variety of experiences, renovations, accommodations and communities. They impact everyone involved – kids, parents, siblings, friends, colleagues, sponsors and even medical professionals. For kids, just getting the chance to accomplish or participate in a dream you never thought was possible can give them the courage to further tackle barriers they may have put up for themselves and the sun. Parents might feel optimistic to try and create new moments for their family on their own. And others might realize all they have to offer now that they are connected with thousands of people just like them going through their own hardships.

10/18/2026

For 197 consecutive weeks we’ve been taking back the end of our week and celebrating sun safety. Our “No Sun Sundays” is a weekly online campaign that celebrates creativity, community, and sun-safe living for people who are photosensitive. (Credit the mole patrol)

Every Sunday, Shadow Jumpers features fun and inspiring photos and videos from individuals, families and the internet who find unique ways to cover up, stay shaded, and embrace life safe from the sun, whether they may have intended to or not.

Since 2021, one of Shadow Jumpers’ seven board seats has always been reserved for a youth ambassador, ensuring the voice...
10/13/2026

Since 2021, one of Shadow Jumpers’ seven board seats has always been reserved for a youth ambassador, ensuring the voices and perspectives of photosensitive kids help shape our organization’s future. For the first time, that seat will be shared by two incredible young leaders!

Shadow Jumpers is excited to welcome Clint Stuhlsatz and Theo MacGregor as our newest Co-Youth Board Members!

Both living with EPP, Clint and Theo first met at Sun Escape in 2025, where a shared diagnosis quickly turned into a friendship that has grown well beyond camp. Now, they’re bringing that same energy, enthusiasm and unique perspective to our board of directors, helping shape the future of Shadow Jumpers for the next generation of photosensitive kids.

From Clint being part of the very first family Shadow Jumpers assisted in 2018, to Theo’s inspiring journey playing high school football with EPP, both boys have stories that make this appointment especially meaningful.

Get to know Clint and Theo, their incredible friendship, and the big ideas they have for our community below

Shadow Jumpers is excited to welcome 15-year-old EPP best friends Clint Stuhlsatz and Theo MacGregor as our newest Co-Youth Board Members! Get to know Clint and Theo, their incredible friendship, and the big ideas they have for our community!

10/13/2026

Since 2021, one of Shadow Jumpers’ seven board seats has always been reserved for a youth ambassador, ensuring the voices and perspectives of photosensitive kids help shape our organization’s future. For the first time, that seat will be shared by two incredible young leaders!

Shadow Jumpers is excited to welcome Clint Stuhlsatz and Theo MacGregor as our newest Co-Youth Board Members!

Both living with EPP, Clint and Theo first met at Sun Escape in 2025, where a shared diagnosis quickly turned into a friendship that has grown well beyond camp. Now, they’re bringing that same energy, enthusiasm and unique perspective to our board of directors, helping shape the future of Shadow Jumpers for the next generation of photosensitive kids.

From Clint being part of the very first family Shadow Jumpers assisted in 2018, to Theo’s inspiring journey playing high school football with EPP, both boys have stories that make this appointment especially meaningful.

Get to know Clint and Theo, their incredible friendship, and the big ideas they have for our community below

https://www.shadowjumpers.org/blog/new-youth-board-members

10/12/2026

As they say “the kids are gonna be alright (covering up in the sun)”

Week 196: “Why was the photosensitive fan standing in the shade the entire game? Because the sun was the only opponent t...
10/11/2026

Week 196: “Why was the photosensitive fan standing in the shade the entire game? Because the sun was the only opponent they couldn’t afford to face!”

We’ve officially arrived in Kansas City for PORPHYRIA PALOOZA put on by our friends at United Porphyrias Association Thi...
10/09/2026

We’ve officially arrived in Kansas City for PORPHYRIA PALOOZA put on by our friends at United Porphyrias Association This weekend will see the Porphyria Patient community come from all over for an epic 3 days of fun. We cannot wait to see so many familiar faces from Sun Escape, all of our photosensitive peeps and bond with all the porphyria types represented at this amazing event.

10/08/2026

While the rest of the world is soaking up the sunshine, we are over here finding creative ways to block it out. ☀️☂️

For many in our photosensitive community, it can take just minutes, or even seconds, of sun exposure to trigger an incredibly painful reaction. What might seem like a harmless moment outside to someone else can mean hours or days of pain for us.

That’s why stepping outside often means covering up from head to toe, reaching for our hats, gloves, face coverings, and trusty umbrellas, and constantly worrying about whether even the smallest bit of sunlight might find its way through.

The sun sucks, but you do not. 💜💛

Week 196: “Normal people use a blanket in the car to take a nap. Photosensitive people use one because the sun found a l...
10/04/2026

Week 196: “Normal people use a blanket in the car to take a nap. Photosensitive people use one because the sun found a loophole.”

Happy 💅 ❌☀️❌
10/03/2026

Happy 💅 ❌☀️❌

Address

233 E Main St
Manasquan, NJ
08736

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