Prevent-HD and Cadasil at Paulsen Research Lab, UW-Madison

09/30/2020

Dear HD family,

We are actively doing remote research where we send an iPad and paper tests to your home where you can participate in the happening Huntington's disease research! We schedule a time after contacting you for a video call during which we do research questions and tests. After the research is done, you send back the iPad and materials using a prepaid shipping label that we give you.
HD research at the comfort of your home!! Isn't that amazing? We are shipping throughout the US!! If interested to participate, please email with you name, reachable phone number and address to [email protected].

We look forward to hearing from you!

- PREDICT-HD 3.0 research team

08/13/2020

We successfully tried, tested and trouble- shooted remote research studies using iPads shipped back and forth from our lab to the participants houses. Yes!!! Now you can participate and contribute to HD research at the comfort of your home!!!
We need you now more than ever!! Please email [email protected] with your full name, address and phone number if you want to participate in remote on-line research or in-person HD research!!

- HD research team at University of Iowa

05/12/2020

In this month of May, our HD family is sharing the stories of themselves or their dear ones who are affected by HD.
IF you are willing, we would love to hear from you!

Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain.  It deteriorates a person’s physical and mental abilities usually during their prime working years and has no cure.

05/01/2020

Stay tuned for official announcements about remote HD research studies from the University of Iowa in the first week of May 2020.
We are coming up with safe strategies for HD research while taking precautions about COVID-19 situation.

04/20/2020

Dear HD family,

We need a little more understanding of your home and internet situations before we start remote HD research.
Please pick an appropriate option below and post its number as a comment below
1. I have a functioning internet-capable device (apart from the phone like a tablet, iPad or laptop) and uninterrupted internet service
2. I have uninterrupted internet service but do not have a functioning internet-capable device (apart from the phone like a tablet, iPad or laptop)
3. I have a functioning internet-capable device (apart from the phone like a tablet, iPad or laptop) but do not have uninterrupted internet service
4. I do not have uninterrupted internet service and do not have a functioning internet-capable device (apart from the phone like a tablet, iPad or laptop)
Thanks and we are waiting for your comments

P.S: Please keep sending your full name and address to [email protected] if you or anyone in your family is interested in participating in remote HD research

Stay safe and take care folks!

- University of Iowa, Predict-HD study group

04/13/2020

Dear HD family,

In this stressed situation with the pandemic of COVID-19, it is natural to feel anxiety and other mental health problems. The following is the link to University of Iowa Psychology department : https://uihc.org/psychology

Please call on the applicable phone numbers.

-University of Iowa, Paulsen research lab

Our psychologists are skilled in evaluating and diagnosing a wide range of mental health conditions and offer many different, scientifically supported treatment options. We will work with you to personalize a treatment plan that may include individual or group therapy, skills groups, inpatient treat...

04/09/2020

What do you think?
Should we proceed for remote research using internet based testing which keeps all of us safe in these tested times? This way we can keep the HD research on the roll to make advances in favor of the entire HD community!!
Comment below : How much do you like this idea on the scale of 1 - 5 where 1 is "I don't like it at all" and 5 is "I love it"!
We are waiting for your response!!

04/03/2020

Dear HD family,
We are exploring options of conducting PREDICT-HD online using digital interfaces.
Stay tuned for more information!
- University of Iowa, Paulsen Research Lab

03/31/2020

35 days to go!!!!!

Dear HD community,
We understand that these are tested times and all research activities are currently suspended at the University of Iowa.
BUT, we are hoping to 'tentatively' resume research activities (Both ENROLL-HD and PREDICT-HD) in the first week of May 2020!
We need you!!! We need your participation in research studies!! It is for the betterment of the entire current and future HD community!! Please send us an email at [email protected] with your full name, email address, mail address, and phone number.

We look forward to hearing from you and hoping to have you in our research studies in the first week of May 2020!

ENROLL-HD and PREDICT-HD 3.0 research studies team at the University of Iowa

(P.S: 1st week of MAY 2020 is just a tentative date, it will be readjusted depending upon the CORONA pandemic information as directed by CDC and/or WHO

03/26/2020

https://huntingtonsdiseasenews.com/2020/03/20/coronavirus-covid-19-impact-spread-risks-social-distancing/?utm_source=HUN+E-mail+List&utm_campaign=43b9bb9439-RSS_WEEKLY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_f42d6c3322-43b9bb9439-71882249

For many people I know, including me, COVID-19 started out as a joke. It shares the same name as a beer, for example. But then, the Chinese city of Wuhan was quarantined. That was when I realized the situation is much more serious than I had thought. Still, at that time the outbreak was only...

03/25/2020

40 days to go!!!!!

Dear HD community,
We understand that these are tested times and all research activities are currently suspended at the University of Iowa.
BUT, we are hoping to 'tentatively' resume research activities (Both ENROLL-HD and PREDICT-HD) in the first week of May 2020!
We need you!!! We need your participation in research studies!! It is for the betterment of the entire current and future HD community!! Please send us an email at [email protected] with your full name, email address, mail address, and phone number.

We look forward to hearing from you and hoping to have you in our research studies in the first week of May 2020!

ENROLL-HD and PREDICT-HD 3.0 research studies team at the University of Iowa

(P.S: 1st week of MAY 2020 is just a tentative date, it will be readjusted depending upon the CORONA pandemic information as directed by CDC and/or WHO)

03/24/2020

Please find the therapies that could be possibly done in spite of COVID-19. Please see the link below. Stay safe!

https://huntingtonsdiseasenews.com/2020/03/20/despite-covid-19-global-rare-disease-group-keeps-focus-1000-new-therapies-by-2027/?utm_source=HUN+E-mail+List&utm_campaign=43b9bb9439-RSS_WEEKLY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_f42d6c3322-43b9bb9439-71882249