Epilepsy Foundation New England

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Epilepsy Foundation New England Serving Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont to help people with epilepsy and to support research. Help for Today, Hope for Tomorrow

Something new is coming to NEEC.For the first time, the Blue Skies Research Challenge is part of the New England Epileps...
10/13/2026

Something new is coming to NEEC.

For the first time, the Blue Skies Research Challenge is part of the New England Epilepsy Convention, and itโ€™s open to the public.

On Friday, February 5, 2027, epilepsy researchers and innovators will take the stage at the Charles View Ballroom in Cambridge to pitch their most ambitious ideas live. The audience will help decide which two finalists take home a $75,000 research grant: one for innovations in diagnosis or treatment, and one for innovations that improve quality of life.

Tickets are on sale now. Convention registration is not required: https://www.epilepsyconvention.org/blueskies

Meet Jeannie Dorr, one of our featured honorees at EFNE's 43rd Annual Candlelight Gala. ๐Ÿ’œJeannieโ€™s passion for helping p...
10/13/2026

Meet Jeannie Dorr, one of our featured honorees at EFNE's 43rd Annual Candlelight Gala. ๐Ÿ’œ

Jeannieโ€™s passion for helping people living with epilepsy began while she was still a nutrition student. After watching the movie First Do No Harm, she became fascinated by the ketogenic diet and the powerful role nutrition can play in treating something as complex as a seizure disorder.

When Jeannie began working at Rhode Island Hospital and was given the opportunity to become a ketogenic dietitian, she was delighted to turn that early interest into meaningful work.
Today, as a CNDC at Hasbro Children's, Jeannie works closely with children and adults using ketogenic diet therapy, helping each individual and family find the diet ratio that works best for them. Seeing seizures successfully reduced, or even eliminated, through diet therapy continues to make her work incredibly rewarding.

Just as important are the relationships she has built along the way. Jeannie treasures getting to know her ketogenic families and is grateful to work alongside supportive colleagues across neurology, nutrition, and inpatient and outpatient medical teams.

For Jeannie, what began as a fascination with the science behind ketogenic diet therapy has become an opportunity to make a meaningful difference in the lives of people with epilepsy and their families. We are honored to celebrate her at this yearโ€™s Gala.

Has Jeannie made a difference in your life or the life of someone you love? Send her a special message she will receive on the night of the Gala, whether you're attending or not.

Honor a Star: https://bit.ly/4h7mOub

Please note: Honor a Star is not a ticket for Gala attendance.

Does your school staff know what to do if a student has a seizure?On October 29 at 3:30 PM, EFNE is hosting a free 80-mi...
10/12/2026

Does your school staff know what to do if a student has a seizure?

On October 29 at 3:30 PM, EFNE is hosting a free 80-minute virtual training for school personnel, including teachers, school nurses, aides, therapists, bus drivers, and anyone who works with students who have epilepsy.

Participants will learn how to recognize seizure types common in school settings, respond safely and effectively, identify when a seizure may be a medical emergency, and understand how epilepsy affects students academically and emotionally.

Being prepared can make a real difference for a student living with epilepsy. We hope you'll join us.

Register here: https://bit.ly/4du08Ud

November is almost here, and so is Epilepsy Awareness Month. One of the simplest ways to show your support is by display...
10/12/2026

November is almost here, and so is Epilepsy Awareness Month. One of the simplest ways to show your support is by displaying an epilepsy awareness flag, and today is the last day to place your order in time for a November 1 delivery.

Order here: https://bit.ly/4hnq44R

DYK? An estimated 5 million people are diagnosed with   annually: https://bit.ly/3IuravDThis is why the EFNE team is com...
10/09/2026

DYK? An estimated 5 million people are diagnosed with annually: https://bit.ly/3IuravD

This is why the EFNE team is committed to providing our community with help for today, hope for tomorrow. Learn more: https://bit.ly/3VF5Kz2 ๐Ÿ’œ

October is a big month at EFNE! From seizure training to a webinar on SUDEP awareness, a lot is happening. All the links...
10/08/2026

October is a big month at EFNE! From seizure training to a webinar on SUDEP awareness, a lot is happening.

All the links to register and learn more are in the comments below!

Meet Lori Fontneau, one of our featured honorees at EFNE's 43rd Annual Candlelight Gala. ๐Ÿ’œLori's dedication to the epile...
10/08/2026

Meet Lori Fontneau, one of our featured honorees at EFNE's 43rd Annual Candlelight Gala. ๐Ÿ’œ

Lori's dedication to the epilepsy community spans more than four decades. A cm laude graduate of the University of Vermont, she began her nursing career on the inpatient neurology unit at UVM Health - UVM Medical Center in August 1981 and has been there ever since, progressing from staff nurse to assistant nurse manager to nurse manager before transitioning to outpatient neurology in 1998.

In 2004, Lori began working exclusively with epilepsy patients and the epileptologists who provide their care โ€” a focus she has maintained with remarkable consistency and dedication. Her commitment to the broader epilepsy community has been equally steadfast. She was named Person of the Year by the Epilepsy Foundation of Vermont in November 2013, and when that organization ceased to exist following COVID, she carried that dedication forward, building a close working relationship with EFNE and serving on the Vermont Council alongside EFNE representative Kathy Hatch.

In her own words: "I hope I have been able to make a difference in their lives." We think the answer is clear.

We are honored to celebrate Lori at this year's Gala. Has she made a difference in your life or the life of someone you love? Send her a special message she will receive on the night of the Gala, whether you're attending or not.

Honor a Star: https://bit.ly/4h7mOub

Please note: Honor a Star is not a ticket for Gala attendance.

We honor the memory of Dr. Catherine Phillips, one of the featured honorees at EFNE's 43rd Annual Candlelight Gala.Dr. P...
10/07/2026

We honor the memory of Dr. Catherine Phillips, one of the featured honorees at EFNE's 43rd Annual Candlelight Gala.

Dr. Phillips joined the UMass Department of Neurology in 1989, where she was charged with building a comprehensive epilepsy program from the ground up. Over more than 30 years, she helped develop a surgical epilepsy center, educated a generation of neurology residents and fellows, and changed the lives of countless patients by helping them achieve better seizure control. She retired in 2020 after a career defined by deep commitment to her patients and her field.

Dr. Phillips was also a cherished friend to EFNE. She served as the featured clinician at our 2019 Candlelight Dinner and was a longtime volunteer at Camp Wee Kan Tu, our summer camp for children with epilepsy.

She passed away on September 30, 2026. We are honored to remember her at this year's Gala and grateful for everything she gave to this community. Has Dr. Phillips made a difference in your life or the life of someone you love? Send a special message in her memory that her family will receive on the night of the Gala, whether you're attending or not.

Honor her memory: https://bit.ly/4h7mOub

Have you registered for our upcoming annual Rhode Island Walk for Epilepsy? Lace up your sneakers and join us at Pawtuck...
10/07/2026

Have you registered for our upcoming annual Rhode Island Walk for Epilepsy? Lace up your sneakers and join us at Pawtucket's Slater Memorial Park to help raise awareness while having fun in the process! ๐Ÿ‘Ÿ

All registrations include lunch, and we'll have plenty of family fun activities, including trick-or-treating, pumpkin decorating, and a costume contest. EFNE's own Hope Lion will be the judge, ready to hand out a special prize to the coolest getup!

Register today: https://bit.ly/4rJWLhB ๐Ÿ’œ

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175 Cabot Street, Suite 301
Lowell, MA
01854

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