Epilepsy Foundation New England

06/19/2026

At EFNE, we love sharing encouraging news and facts about , like this one: Up to 70% of people living with epilepsy could become seizure-free with proper diagnosis and treatment:
https://bit.ly/3IuravD

Find more resources and support by visiting:
https://bit.ly/3VF5Kz2

06/18/2026

“Your voice has the power to make a difference.”

Abby Werthmann, an epilepsy advocate from Maine, shares why teens living with epilepsy should apply for EFNE’s Teen Advocacy Program this October.

This no-cost weekend brings teens from MA, RI, NH, ME, and VT together to build confidence, learn how advocacy works, connect with others who understand, and discover how their voice can help create change in their school, community, state, and beyond.

No advocacy experience is needed. Meals, lodging, and materials are included at no cost for each teen and one parent or guardian.

October 2–4, 2026
Sturbridge, MA

Self-nominate today. Spots are limited. Link in bio!

06/18/2026

EpiWatch, an FDA-cleared smartwatch app developed at Johns Hopkins University, has shown 98% accuracy in detecting tonic-clonic seizures, an advance that could prove particularly beneficial against SUDEP: https://bit.ly/49VHnHo

For more research, resources, and support, visit: https://bit.ly/3VF5Kz2

The EpiWatch app shows high sensitivity in detecting tonic-clonic seizures in children and adults, potentially reducing SUDEP risk with timely alerts.

06/17/2026

Research shows that people living with epilepsy and their caregivers benefit from connection and support from others who understand their experiences. That's why we offer a variety of SHARE (Support, Hope, Advocacy, Resources, Educate) groups.

Find yours today: https://bit.ly/3C86MMe 💜

06/16/2026

Teens living with epilepsy deserve a space to connect, build confidence, and feel understood.

EFNE’s Teen Advocacy Program brings teens from MA, RI, NH, ME, and VT together for a no-cost weekend of peer connection, hands-on activities, advocacy skill-building, and social time.

Parents and guardians will also have dedicated programming with speakers, including Emma Barrows, Social Worker at MGH, on the transition from teen to adulthood; Allison Nichol, Director of Legal Advocacy at the Epilepsy Foundation of America; and author Marianne Richmond.

Meals, lodging, and materials are included at no cost for each teen and one parent or guardian. Learn more: https://epilepsynewengland.org/events/2026-10-02/teen-advocacy-program

Are you or do you know a teen that loves to advocate for epilepsy? This program is perfect! Join us in Sturbridge, MA from October 2-4 for an intensive weekend dedicated to learning how to be the best epilepsy advocate. All costs are covered including the program, room & board, and materials for eac...

06/15/2026

Some struggles are visible. Others aren't.

Join Epilepsy Foundation New England for a special screening of "Under the Lights," a powerful coming-of-age film about friendship, first love, belonging, and living with epilepsy.

Featuring Nick Offerman, Lake Bell, Mark Duplass, Randall Park, and Marin Hinkle, the film follows a teenager determined to experience prom and all the milestones of growing up while navigating the realities of epilepsy.

The evening includes:
• Screening of Under the Lights - A Film, A Movement
• Live Q&A with writer/director Miles Levin
• Free signed posters and photos
• One drink and one popcorn included with admission

🗓️ June 30, 2026
📍 Capitol Theatre, Arlington, MA

Get tickets today: https://bit.ly/49H7VvP

06/12/2026

📽️ DYK? You can access all of EFNE’s popular and informative webinars on demand. Our YouTube channel is filled with video content created to educate, support, and inspire. 💜

Subscribe to our channel for a variety of digital resources:
https://bit.ly/4tXET2t

06/10/2026

Have questions about Kids Camp? Join us for a special Purple Camp Parent Session on July 8!

This virtual session is designed for parents and guardians of children attending or considering Kids Camp. You’ll have the opportunity to connect with our partners at Zebra Crossings and the Program Director of Camp Merrowvista to learn more about the camp experience and get answers to your questions.

Kids Camp is open to children ages 8–13 and takes place July 10–12, 2026, at Camp Merrowvista in Tuftonboro, New Hampshire. Nestled in the Ossipee Mountains, the camp offers outdoor adventures, waterfront activities, new friendships, and a supportive environment where kids can build confidence and create lasting memories.

📅 Purple Camp Parent Session
July 8, 2026
🕕 6:00–7:00 PM ET
💻 Virtual via Google Meet
https://bit.ly/4uQtpii

Whether you’re wondering about activities, accommodations, medical support, packing lists, or what camp life is like, we’re here to help.

06/09/2026

06/09/2026

Don’t miss tomorrow’s webinar focused on recent and pending changes to Medicaid that could potentially impact those living with , specifically the roughly 40% who rely on Medicaid for health care coverage.

Register today: https://bit.ly/4dBbR2d 💜