Epilepsy Foundation New England

Epilepsy Foundation New England Serving Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont to help people with epilepsy and to support research. Help for Today, Hope for Tomorrow

Encouraging research shows the ketogenic diet has been effective in controlling seizures for about 30% of children livin...
08/28/2026

Encouraging research shows the ketogenic diet has been effective in controlling seizures for about 30% of children living with when medication alone is not enough: https://on.bchil.org/4qpHUbv

For more resources and support, visit: https://bit.ly/3VF5Kz2 💜

Some events are about more than a great time. Alex's Car Show is one of them. 🚗💜Presented by Berkshire County and Friday...
08/27/2026

Some events are about more than a great time. Alex's Car Show is one of them. 🚗💜

Presented by Berkshire County and Friday Night Lights, Alex's Car Show is held in loving memory of Alex Colvin. Alex passed away unexpectedly from epilepsy on September 30, 2020, at just 26 years old. He had a deep passion for cars and baseball, and this event celebrates everything he loved while bringing his family, friends, and community together in his honor.

All proceeds and donations benefit Epilepsy Foundation New England.

Whether you're entering a car or just coming to enjoy a beautiful September morning in the Berkshires, we hope you'll join us.

RSVP and find full event details here: https://bit.ly/4d5guSL

This one made our whole day. 💜Meet Luke. He recently underwent surgery and shared the wonderful news that it went perfec...
08/26/2026

This one made our whole day. 💜

Meet Luke. He recently underwent surgery and shared the wonderful news that it went perfectly. He also took the time to reach out and thank EFNE for sending Hope Lion — and honestly, we think Luke deserves all the credit.

Hope Lion exists to remind everyone living with epilepsy that courage, strength, and resilience are already inside them. Luke has shown all three in abundance. We are so proud of you, Luke. Wishing you a smooth recovery and all the hope in the world ahead. 🦁

Hope Lion is available free to people living with epilepsy in Massachusetts, New Hampshire, Maine, Rhode Island, and Vermont. Learn more: https://bit.ly/3SccU29

Happy from the EFNE team — and our very important colleagues. 🐾💜Meet some of the dogs of EFNE:🐾 John's Koko🐾 Kate's Ki...
08/26/2026

Happy from the EFNE team — and our very important colleagues. 🐾💜

Meet some of the dogs of EFNE:

🐾 John's Koko
🐾 Kate's Kiki and Isabella
🐾 David's Ella
🐾 Kate's Isabella
🐾 Kristen's Cookie Dough
🐾 Josh's crew (yes, all six of them 🐾🐾🐾🐾🐾)
🐾 Casey's Griffy
🐾 Kat's Autumn and Droggo
🐾 Amy's Octavius and Juno

From the one wearing a purple EFNE shirt in the yard to the ones napping on the job — we are proud to share our homes and our hearts with this crew. Give your dog an extra treat today. They've earned it. 🐶💜

Happy ! 🐕‍🦺💜Today felt like the perfect opportunity to reshare this infographic. For many people living with , service...
08/26/2026

Happy ! 🐕‍🦺💜

Today felt like the perfect opportunity to reshare this infographic. For many people living with , service dogs are far more than companions — they can detect oncoming seizures, alert caregivers, activate emergency devices, and provide the kind of day-to-day support that builds genuine independence.

We are grateful for every four-legged member of our community.

Support groups. Emergency financial aid. Youth programs. Education. It all starts with you. 💜Explore ways to support EFN...
08/25/2026

Support groups. Emergency financial aid. Youth programs. Education. It all starts with you. 💜
Explore ways to support EFNE this summer: https://bit.ly/3VD1Rf3

Fall is almost here, and so is one of our favorite days of the year. 🎃💜Join Epilepsy Foundation New England on Sunday, O...
08/24/2026

Fall is almost here, and so is one of our favorite days of the year. 🎃💜

Join Epilepsy Foundation New England on Sunday, October 25th at Slater Memorial Park in Pawtucket, RI for the 2026 Rhode Island Walk for Epilepsy!

This year we are bringing all the fall festivities with us — pumpkin decorating, trick-or-treating along the walk route, a costume contest judged by Hope Lion, community partner booths, and a warm post-walk lunch for all registered participants. Whether you come dressed as a superhero, a ghost, or your most creative creation yet, there is a prize on the line and bragging rights at stake.

Every step taken and every dollar raised supports EFNE's work providing support groups, emergency financial aid, youth programs, and community education for the thousands of people across Rhode Island and New England living with epilepsy.

Register today and help us this fall: https://bit.ly/4iny2wO

Are you under 25 and have a sibling living with epilepsy? We want to hear from you. 💜Every family's journey with epileps...
08/20/2026

Are you under 25 and have a sibling living with epilepsy? We want to hear from you. 💜

Every family's journey with epilepsy is unique, and the sibling experience is one that doesn't always get the attention it deserves. EFNE is conducting a brief, anonymous survey to better understand what it's like to grow up alongside someone with epilepsy, and to use that insight to improve support and resources for siblings and families across New England.

Participating is simple. The survey is completely anonymous, totally voluntary, and takes just a few minutes.

To be eligible, you must be:

Under 25 years of age
Have a sibling living with epilepsy
Willing to complete a brief anonymous survey about your experiences

Take the survey here: https://form.jotform.com/261975699069076

Know someone who might qualify? Please share this with your network. Every response helps.

An important advocacy opportunity for our community — and the deadline is coming up fast. 💜The Federal Aviation Administ...
08/20/2026

An important advocacy opportunity for our community — and the deadline is coming up fast. 💜

The Federal Aviation Administration has proposed new rules for emergency medical kits on commercial flights (Docket No. FAA-2026-9178). The proposal would replace the current prescriptive list of required medications with a flexible, performance-based approach — requiring kits to address nine life-threatening conditions, including seizures.

While this is a step in the right direction, experts published in JAMA Neurology are urging the FAA to go further and explicitly require seizure rescue medications in these kits. People living with epilepsy deserve to know that if a seizure occurs on a flight, the right medication is available.

Public comments are open now and close on October 5, 2026. Submitting a comment is simple and takes just a few minutes.

Submit your comment here: https://www.regulations.gov/commenton/FAA-2026-9178-0001

You can also read the full FAA proposal here: https://www.federalregister.gov/documents/2026/08/05/2026-15929/improving-emergency-medical-kit-efficacy-and-flexibility-in-commercial-airline-operations

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175 Cabot Street, Suite 301
Lowell, MA
01854

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(617) 506-6041

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