Epilepsy Foundation New England

Epilepsy Foundation New England Serving Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont to help people with epilepsy and to support research. Help for Today, Hope for Tomorrow

Come visit our incredible partner and resource tables at the Boston Walk for Epilepsy 5K Run/Walk on May 31 at Artesani ...
05/29/2026

Come visit our incredible partner and resource tables at the Boston Walk for Epilepsy 5K Run/Walk on May 31 at Artesani Park! 💜

In addition to a day filled with community, remembrance, celebration, and support, attendees will have the opportunity to connect with organizations, hospitals, advocacy groups, researchers, and community partners working to support individuals and families affected by epilepsy.

A special thank you to our Sponsors:
• Xenon Pharmaceuticals
• Praxis Precision Medicines
• SK Life Science

Be sure to stop by and visit:
• Boston Children’s Hospital
• MGH Thrive
• Savers
• EFNE Donation Center
• EpiCenter
• KESETT
• Brigham & Women’s Hospital
• Brave Bears Club
• StretchLab
• Waves
• Hope Lion
• EFNE Resources, Camp & Advocacy

Whether you're looking for resources, support, information, research opportunities, advocacy involvement, or just want to learn more about the epilepsy community, there will be something for everyone.

There’s still time to register and join us:
https://www.bostonwalk.org/

For the past 30 years, Team Cake on the Door has walked with Epilepsy Foundation New England in support of everyone impa...
05/28/2026

For the past 30 years, Team Cake on the Door has walked with Epilepsy Foundation New England in support of everyone impacted by epilepsy. Through seizures, medications, side effects, EEGs, and all the uncertainty that comes with this journey, they’ve continued to face it with humor, resilience, and love.

Their team name comes from a beloved family tradition started years ago after a particularly difficult season of life. Every New Year’s Day, the family throws a honey cake at their front door for good luck. The tradition has since become a symbol of laughter, persistence, and sticking together through life’s challenges.

Team Cake on the Door reminds us that even in the hardest moments, joy and community matter. We’re grateful for their continued support of the epilepsy community and proud to walk alongside them once again this year.

There’s still time to join us on walk day: https://www.bostonwalk.org/

With new and pending changes to Medicaid following the passage of H.R. 1, the One Big Beautiful Bill Act, please join ou...
05/28/2026

With new and pending changes to Medicaid following the passage of H.R. 1, the One Big Beautiful Bill Act, please join our very important upcoming Wednesday Webinar. EFNE's Director of Advocacy & Public Policy, Bill Murphy, will give a high-level overview on what these changes may mean for those living with , 40% of whom rely on Medicaid for healthcare coverage.

In addition to understanding these changes, attendees will also be presented with resources to help prepare and navigate this shifting landscape. We invite you to share this event with anyone who might benefit from this support.

Register today: https://bit.ly/4dBbR2d

If you have a child or adult in your care who is diagnosed with or has a disability, don't miss "A Different Hand to P...
05/27/2026

If you have a child or adult in your care who is diagnosed with or has a disability, don't miss "A Different Hand to Play," an informational session hosted by the ARIES Foundation for Financial Education. This presentation will cover critical caregiving considerations, such as special needs trusts, asset protection, government benefits, and guardianship.

Register today: https://bit.ly/43aVUeh

Introducing Team "All Aboard the LB Train!"What began with his first seizure at daycare at just 13 months old quickly be...
05/27/2026

Introducing Team "All Aboard the LB Train!"

What began with his first seizure at daycare at just 13 months old quickly became a journey filled with ER visits, countless appointments, medication trials, genetic testing, and unimaginable uncertainty.

LB was eventually diagnosed with SCN1A-related epilepsy, a genetic form of epilepsy that has continued to progress over time. Today, he experiences daily seizures of multiple types and bravely faces each day.

Through every challenge, LB’s family has found strength in community and support through Epilepsy Foundation New England.

Now, Team All Aboard the LB Train is walking to raise awareness, support other families impacted by epilepsy, and help fund programs, education, and research that make a difference for families like theirs every day.

There’s still time to join us on walk day or support the cause:
https://www.bostonwalk.org/

Seizure First Aid training can make a real difference when every second counts.This message from a school nurse came aft...
05/26/2026

Seizure First Aid training can make a real difference when every second counts.

This message from a school nurse came after staff members responded to a student experiencing what appeared to be a seizure during an after-school program. They credited EFNE’s Seizure First Aid training with helping them stay calm, respond confidently, and know what to do until help arrived.

EFNE offers free virtual Seizure First Aid trainings, along with free in-person trainings for schools, workplaces, community groups, and organizations across New England.

If you’re interested in learning more, we can come directly to your workplace, school, or community group to help educate and build confidence in responding to seizures.

Reach out to Kristine Binette at [email protected] to learn more.

View upcoming trainings and events:
https://bit.ly/3s8w3VP

Whether you're still considering Purple Camp or your child is already signed up and ready to attend, we invite you to dr...
05/26/2026

Whether you're still considering Purple Camp or your child is already signed up and ready to attend, we invite you to drop in to our upcoming Q&A session this Saturday at 9 AM.

Get your questions answered by registering today: https://bit.ly/4uFe0RC 💜

Introducing Team Sam’s Silly Rangers! 💜Just after his 4th birthday last year, Sam was diagnosed with epilepsy. After sev...
05/25/2026

Introducing Team Sam’s Silly Rangers! 💜

Just after his 4th birthday last year, Sam was diagnosed with epilepsy. After several scary months filled with ER visits, lab work, and countless doctor appointments, Sam is now officially 1 full year seizure-free!

Through it all, Sam has remained the same crazy, fun-loving, caring, and imaginative little guy everyone knows and loves.

Now, Team Sam’s Silly Rangers, made up of his loving family and friends, is walking to support their favorite goofball and help raise awareness for the epilepsy community.

There’s still time to join us on walk day! https://www.bostonwalk.org/

🤔 DYK? Current research shows there are approximately 40 different types of seizure disorders, including various diagn...
05/22/2026

🤔 DYK? Current research shows there are approximately 40 different types of seizure disorders, including various diagnoses: https://bit.ly/4nx48Hl

For resources and support, visit: https://bit.ly/3VF5Kz2 💜

Cameron’s Crew is walking again this year at the Boston Walk for Epilepsy! 💜After being diagnosed with late-onset infant...
05/21/2026

Cameron’s Crew is walking again this year at the Boston Walk for Epilepsy! 💜

After being diagnosed with late-onset infantile spasms at just 18 months old, Cameron underwent frontotemporal disconnection surgery just before his 3rd birthday.

Today, he is 9 months post-op, nearly 1 year seizure free, and continuing to wean off medications — an incredible milestone for such a young warrior.

We’re so excited to celebrate how far Cameron has come and so grateful for everyone supporting Cameron’s Crew along the way.

Join us at the Boston Walk for Epilepsy: https://bit.ly/3L5AlX8

Address

175 Cabot Street, Suite 301
Lowell, MA
01854

Telephone

(617) 506-6041

Website

https://linktr.ee/epilepsynewengland

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