10/10/2026
It's World Mental Health Day!
Spina Bifida doesn't automatically cause mental health challenges, but there is an increased risk. Protective factors such as supportive family and friends, community connection, opportunities for independence, and access to appropriate health care can make a significant difference.
What are some of the common mental health challenges?
Anxiety – Worries about health, surgeries, mobility, independence, school/work, or social situations can contribute to anxiety.
Depression – People with Spina Bifida may face increased risk of depression, particularly when dealing with chronic health challenges, pain, isolation, or barriers to independence.
Low self-esteem or body-image concerns – Scars, mobility devices, continence issues, or differences in physical appearance can affect how someone feels about their body.
Social isolation and loneliness – Accessibility barriers, difficulty participating in activities, or feeling different from peers can make social connection more difficult.
Stress related to independence – Adolescents and adults may experience frustration around needing assistance with personal care, transportation, employment, housing, or other aspects of daily life.
Executive-function challenges – Some people with Spina Bifida, particularly those with hydrocephalus, can have difficulties with organization, planning, attention, memory, or problem-solving. These aren't necessarily a mental illness, but they can affect school, work, relationships, and emotional well-being.
Adjustment and coping difficulties – Major medical procedures, changes in mobility, transitions to adulthood, or new health complications can bring emotional challenges.
Trauma-related symptoms – Repeated surgeries, hospitalizations, painful procedures, or difficult medical experiences can sometimes contribute to trauma or medical anxiety.
Mental Health Matters!
