Sickle Cell Association of Kentuckiana

Sickle Cell Association of Kentuckiana https://linktr.ee/thescakky The Sickle Cell Association of Kentuckiana, Inc.

The Sickle Cell Association of Kentuckiana, founded in October 2000, is an advocate and resource for patients and families throughout Kentucky and Southern Indiana. (SCAK) is a tax-exempt non profit organization that provides education, support, and advocacy for individuals with sickle cell disease and their families. SCAK is dedicated to increasing awareness of this disease and supporting endeavo

rs that assure prompt and appropriate medical care. Our target audience, however, is not limited to those personally affected by sickle cell. Our mission encompasses educating the community as well as medical professionals about the disease and resources available.

06/23/2026

We need a face painter for the sickle cell walk on September 12th at 9am please ? Location will be announced soon !

06/23/2026

Daniel Cressy, a 23 year old New Orleans man, became the first person in Louisiana to be functionally cured of sickle cell disease via groundbreaking CRISPR gene therapy. This landmark achievement allows him to pursue his dream of becoming a commercial pilot, a goal previously unattainable due to the disease.

The two year journey involved extracting Cressy’s stem cells, editing them in a lab using Casgevy CRISPR technology to produce healthy red blood cells, and reintroducing them. The procedure was performed at Manning Family Children's Hospital in New Orleans by a team led by Dr. Ben Watkins.

Doctors confirmed the disease is no longer active in his system.

06/23/2026

This right here !

When we understand sickle cell disease, we can better support those who live with it, advocate for improved care, and he...
06/23/2026

When we understand sickle cell disease, we can better support those who live with it, advocate for improved care, and help create a future where every warrior has the opportunity to thrive. ❤️🩸

Https://bit.ly/4b6t8Qp

The Sickle Cell Walk in Kentucky brings together sickle cell warriors, families, healthcare professionals, and community...
06/23/2026

The Sickle Cell Walk in Kentucky brings together sickle cell warriors, families, healthcare professionals, and community supporters to raise awareness, honor those impacted, and promote education and advocacy. The walk helps shine a light on sickle cell disease while supporting vital programs and resources for warriors across Kentucky.

Happy Father’s Day! 💙Today we celebrate the fathers, grandfathers, stepfathers, caregivers, and father figures who lead ...
06/21/2026

Happy Father’s Day! 💙

Today we celebrate the fathers, grandfathers, stepfathers, caregivers, and father figures who lead with strength, love, and dedication. Thank you for the sacrifices you make, the lessons you teach, and the support you provide every day.

A special salute to the fathers of Sickle Cell Warriors who stand beside their children through every challenge, advocate for their care, and offer unwavering love and encouragement. Your presence makes a difference.

Wishing all fathers a day filled with joy, appreciation, and the recognition you deserve. Happy Father’s Day from the Sickle Cell Association of Kentuckiana! 💙❤️

06/20/2026

In honor of World Sickle Cell Day and Juneteenth, CEO Chatter is spotlighting a true warrior in both science and community: Dr. Lakiea Bailey.

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201 E Jefferson Street Suite 230
Louisville, KY
40202

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