Seth's Squad

Dx 2018, age 4. 5 time Bcell ALL survivor! 100s of chemo, 240+ transfusions, TBIradiation, 2 Bone Marrows, 2 CarTs, HuCarT!
501(c)3 Nonprofit!

Helping families battle for hope! Seth was diagnosed the day after Christmas in 2018. He had just turned 4 years old. Within 48 hours he had his first surgery to place his port and chemotherapy was started. He was in the hospital for about 2 weeks. Over the next 10 months he was in and out of the hospital and did tons of chemotherapy. In October 2019 Seth relapsed in his spinal fluid and his bone

marrow. This was such hard news to hear. The team at Norton Children’s started prepping his for a Bone Marrow Transplant. His Brother, Max 7 years old, was selected as his Donor. The treatment to prep Seth for a BMT was debilitating, he could no longer walk. April 15th 2020 2 of my sons were in Surgery to perform the BMT. My 3rd son waited with us. Seth had horrendous side effects and was in the hospital for almost 70 days. Soon after being released from the hospital he relapsed for a 2nd time. (around day 85)

July 2020 we transferred his care to Cincinnati Children’s Hospital. The team there immediately prepped for a CarT infusion. Seth’s T Cells were extracted and they were then processed in the lab and programmed to kill all B Cells. Seth received this treatment August 31st, 2020. This treatment was so much easier than the BMT. He was in remission for about 5 months. He relapsed for a 3rd time in February 2021. At this point the Cincinnati team decided to do a 2nd BMT. They found an anonymous donor from Be The Match and did a BMT in May 2021. This BMT was a very hard treatment and we were inpatient for about 2 months. We then had to live in Cincinnati for another 2 months in order to stay close to his team. A total of over 4 months away from our home. Again the BMT did not last long and he relapsed around day 80 for the 4th time in August 2021. At this time our treatment options were quickly running out. We had a meeting with his primary pediatrician and his care team in Cincinnati. We discussed Seth’s quality of life. We discussed how much more treatment he could handle. We discussed things parents should never have to consider. It was decided that Seth was a fighter. We put him on an intense chemo regimen to keep him in remission until we could find a clinical trial. February 22, 2022 he received Humanized CarT clinical trial at Children's Hospital of Philadelphia. Currently, he is in remission. He is living life! He still has DAILY health battles, but he does not let them get in his way of having FUN! He is starting 1st grade and will be attending school full time for the first time! We live everyday to the fullest knowing that tomorrow could bring another relapse and very hard choices. We battle through the daily side effects of the treatment he has faced but remain grateful that Seth is still here with us. Live For Today and Hope For Tomorrow!

08/13/2026

Squad Fest is Sept 12! Sign up to do the Color Run or the Pickleball tournament!! The festival will be from 10-3

08/12/2026

Seth started 5th grade!

08/11/2026

Seth and Governor Andy Beshear teamed up today to encourage people to donate blood.

American Red Cross has declared a national crisis due to blood supply levels being at the lowest level ever.

Seth's favorite part was meeting First Lady Britainy Beshear and Winnie and eating special Governor Mansion cookies.

Please get out and donate blood!

Kentucky Red Cross

08/06/2026

Squad Fest is coming up! Grab your partner and join us for pickleball or get your friends together and do the color run! It's going to be a fun day!

Sign up today!! Link in comments.

08/03/2026

Every 6 months we journey to Cancer Center at CHOP. 2/22/22 Seth received his life saving humanized carT cells. So we come every 6 months to check up with the team.

We love Philadelphia! There are so many amazing things to do! Today we went to the Spruce Street Harbor Park. We saw the Hope Fence. It was awesome. Oh and we love getting cheese steaks!

Prayers for good labs.

07/30/2026

Thank you to Service 1st Insurance and Erie Insurance for selecting Seth's Squad as their 2026 Giving Network Agency of the Year nonprofit. We are thankful to be selected by this local agency. Service 1st also helped Make-A-Wish grant Seth's wish a few years ago.

07/29/2026

Today was truly incredible. 💛

We have a big goal at Seth’s Squad—to expand and strengthen mental health support for pediatric cancer families—and today, we took a powerful step forward by hosting our mental health conference.

We were honored to offer five powerful presentations that brought education, insight, and meaningful conversation to the forefront:

✨ Pediatric Cancer & Family Mental Health: A Systems-Informed Approach
✨ Neuropsychological Monitoring in Pediatric Medical Populations: Cognitive, Academic, and Adaptive Functioning During and After Diagnosis & Treatment
✨ Beyond Play: Child Life Strategies for Coping, Connection, & Collaboration
✨ Regulating the Aftershock: Somatic & Polyvagal-Informed Care for Children & Their Families
✨ Trauma-Informed Pediatric Pain Care: A Guide for Mental Health Providers

Each session helped deepen understanding of how we care for not just the child—but the entire family navigating pediatric cancer.

Thank you to our incredible brilliant presenters: Hannah Schofield, Lauren Austin, Britt Dame, Brittany Johnson and Tiffany Farmer.

A huge THANK YOU to our amazing partners—New York Life, Critically Loved, Gilda’s Club, and UofL Alumni—for sharing valuable resources and supporting our attendees.

Thank you to the Louisville Chapter of APHON for sponsoring lunch and helping make the day even more special.

And a very special thank you to Sam at the UofL Kent School for helping us bring this vision to life and for supporting our mission every step of the way.

Today mattered. Today made an impact. And we’re just getting started. 💛

Kent School Continuing Education

$A new chapter in Seth’s journey has begun. He has multiple compression fractures in his spine—a common side effect of hi...$

07/28/2026

A new chapter in Seth’s journey has begun.

He has multiple compression fractures in his spine—a common side effect of his cancer treatment. He’ll be starting physical therapy several times a week with the goal of strengthening his core and supporting his spine.

As his mom, this has my emotions all over the map… my 11-year-old has spine fractures. What?!? 🤬😤🙄🤯😭🤦‍♀️🤬

But in true Seth fashion, his response was simple: “Okay, we’ll get through this too.” 💪

And we will.

Thankful for his medical team that listened and acted when he told them his back was sore.

07/25/2026

Seth will be on the CureFest for Childhood Cancer tribute wall in DC in September. One day we will make it to this event!

07/23/2026

One week until our conference!!

HAPPENING NEXT WEEK!!

We are very excited to co-host this all-day interdisciplinary CEU conference designed for professionals working with children and families impacted by chronic illness. This conference will highlight evidence-based, trauma-informed and family-centered approaches to pediatric care that support emotional, cognitive and physical well-being in children and their families!

APPROVED for KY Social Work, MFT, Psych & Nursing CEUs! And CEUs are accepted by the IN Behavioral Health & Human Services Board!

View all information & register here: https://reg.learningstream.com/reg/event_page.aspx?ek=0015-0015-fe3a1a3cf0ec4f3088b4a8846e232404

Kent School of Social Work and Family Science - University of Louisville Seth's Squad

Address

Louisville, KY
40209

Telephone

+15025283466

Website

http://sethssquad.org/

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