Know The Glow

Know The Glow We help parents see their child’s vision in a new light. Because no child should go blind from a preventable eye disease.

Ben's Story, as told by Know the Glow Founder Megan Webber--

“When I was looking back at family photos, I noticed my son Benjamin had a recurring golden flash in his left eye- but I didn’t think too much about it. My sister called to tell me about a TV show she’d seen that warned about the dangers of ‘cat’s eye reflection.’ She had noticed a similar glow in Benjamin’s left eye from photos she’d t

aken during a family trip. Her concern motivated me to call my pediatrician straight away. Ultimately, Benjamin was diagnosed with Coat’s Disease. We were stunned…

Benjamin was legally blind in his left eye, but hadn’t exhibited any of the typical signs of blindness, like bumping into walls or rubbing his eyes. What I didn’t know then was that this gold flash, invisible to the naked eye, could indicate at least 20 different eye diseases or conditions- some of them are even life threatening. Once our family overcame the immediate crisis and we settled back into daily life, I couldn’t stop thinking about The Glow. As I learned more, I felt an obligation to help parents see their child’s vision in a new light. Because, like Benjamin, no child should go blind from a preventable eye disease.”

A single conversation can change what happens next for children in Eswatini.What started as a virtual call brought toget...
06/12/2026

A single conversation can change what happens next for children in Eswatini.

What started as a virtual call brought together people who had each seen the same problem, just from different sides of the same crisis.

One had just traveled 55,000 miles across Southern Africa, witnessing firsthand how children with eye conditions are still being diagnosed too late.

Another had lived it.

Mandla was born with just 2% vision. By 2008, he had lost his sight completely. But he didn't stop there.

He learned how to navigate the world differently, mastering technology, teaching others, and building opportunities for people with visual impairments across Eswatini.

Now, he's helping lead change.

And during this conversation, one issue became clear. Too many children are still being diagnosed too late.

Read the full story: https://knowtheglow.org/introducing-mandla-metula-and-molemisi-kono/

06/11/2026

When Danielle snapped a bedtime photo of 14-month-old Amelia, a white glow in her daughter's eye caught her attention. And a Google search in the middle of the night sent her racing to the doctor the next morning.

Within three days, Amelia had been seen by specialists in two hospitals and diagnosed with a Grade D retinoblastoma — a rare childhood eye cancer.

Amelia is now two years old, cancer free, and absolutely loves horses, dogs, and getting “caked in mud.”

https://www.yorkshirepost.co.uk/news/people/yorkshire-mum-saves-daughters-life-after-camera-flash-in-photo-reveals-eye-cancer-8515530

What a powerful and inspiring “Glow Detectives” event from the KnowTheGlow MCU Chapter! On April 18, these incredible st...
06/10/2026

What a powerful and inspiring “Glow Detectives” event from the KnowTheGlow MCU Chapter!

On April 18, these incredible student leaders hosted a "Glow Detectives" outreach in Mandaluyong City, teaching students how to recognize The Glow—a critical early warning sign of serious childhood eye conditions. By spreading this knowledge, they are ensuring that early identification and timely care can make a life-changing difference in preserving sight.

We are incredibly moved by their dedication; the MCU Chapter isn't just raising awareness—they are vision advocates making a real-world impact. A huge thank you and well done to the entire team for their heart, their hustle, and their unwavering commitment to their community!

Today, nearly 100 advocates are in Washington, D.C. for Eyes on Capitol Hill — and you can add your voice from wherever ...
06/09/2026

Today, nearly 100 advocates are in Washington, D.C. for Eyes on Capitol Hill — and you can add your voice from wherever you are.

KnowTheGlow has endorsed the Early Detection of Vision Impairments for Children (EDVI) Act, which would bring childhood eye health screening to the community level — exactly the kind of early detection that saves sight and lives.
It takes less than a minute to send a message to your Representative asking them to:

→ Co-sponsor the EDVI Act (H.R. 2527)
→ Co-sponsor the Safe Step Act (H.R. 5509)
→ Fund the CDC's Vision and Eye Health Program
→ Join the Congressional Vision Caucus

The earlier a child is screened, the better the outcome. That's what this legislation advances.

Help make it possible today.

Send a message to your U.S. Representative now: https://advocacy.preventblindness.org/prevent-blindness-legislative-action-center/ #/19

Most parents don't realize they're often the first line of defense against childhood blindness.The Glow — a white or gol...
06/09/2026

Most parents don't realize they're often the first line of defense against childhood blindness.

The Glow — a white or golden yellow reflection in a child's eye — can show up in a photo before any other symptoms appear. Knowing how to spot it could change everything.

Swipe through to learn how to check your photos tonight.

FOLLOW to stay informed and help protect your child's vision.

Here is one of the graphics from our current digital campaign running in Mexico. Here we are spreading the word and help...
06/08/2026

Here is one of the graphics from our current digital campaign running in Mexico. Here we are spreading the word and helping to stop blindness in its tracks!

URL: https://campaign.knowtheglow.org/mexico/

06/08/2026

When Wes's mom saw a glow in a photo of her son's eye, she was told not to worry.

She worried anyway.

That instinct led to a diagnosis of bilateral retinoblastoma — cancer in both eyes. And it set his family on a years-long fight to save his sight, his eyes, and his future.

The Glow — a white or silver reflection in a child's eye — can be an early warning sign of serious eye disease.

If you see it once, be alert. If you see it twice, be active.

Real stories. Real signs. Every week.

FOLLOW to stay in the know.

A white or yellowish glow in your child's eye in a flash photo or dim lighting could be an early sign of more than 20 po...
06/05/2026

A white or yellowish glow in your child's eye in a flash photo or dim lighting could be an early sign of more than 20 potentially blinding eye diseases — including retinoblastoma.

The earlier it's caught, the better the outcome. Check those photos. Trust your instincts. Act fast.

Visit our website to learn how identifying The Glow in dim lighting or in flash photos of a child’s eye can help to fight childhood blindness at KnowTheGlow.org

06/04/2026

Maria noticed a strange shine in 3-year-old Isaac's eye during his birthday while he was watching 'Paw Patrol.'

Concerned, she trusted her gut, took him to the optometrist, and it saved his life.

What followed was over a year of chemotherapy, relapses, cryotherapy, and an incredibly brave little boy who never stopped fighting.

Isaac lost his right eye. But today, at nearly 5 years old, he is happy, confident, and obsessed with dinosaurs and monster trucks.

https://www.nbcrightnow.com/lifestyles/health/mom-discovers-son-s-eye-cancer-while-watching-paw-patrol/article_a53da618-e6a1-549a-847e-c4dc0f0573b2.html

Last month, our KnowTheGlow Volunteer Ambassador Zaakirah Nayyar Muhammad stood before a room of caregivers and healthca...
06/03/2026

Last month, our KnowTheGlow Volunteer Ambassador Zaakirah Nayyar Muhammad stood before a room of caregivers and healthcare professionals in Ghana and reminded them why the patient's voice is irreplaceable.

Speaking at a World Child Cancer caregiver training workshop, Zaakirah shared her journey from early diagnosis to survivorship, and demonstrated how she uses her eye patch—sparking powerful conversations about confidence, compassionate care, and life beyond treatment.

Read more: https://knowtheglow.org/portfolio-item/caregiver-training-workshop-in-ghana/

Follow Know The Glow to stay informed and help protect children's vision.

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