Know The Glow

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Know The Glow We help parents see their child’s vision in a new light. Because no child should go blind from a preventable eye disease.

Ben's Story, as told by Know the Glow Founder Megan Webber--

“When I was looking back at family photos, I noticed my son Benjamin had a recurring golden flash in his left eye- but I didn’t think too much about it. My sister called to tell me about a TV show she’d seen that warned about the dangers of ‘cat’s eye reflection.’ She had noticed a similar glow in Benjamin’s left eye from photos she’d taken during a family trip. Her concern motivated me to call my pediatrician straight away. Ultimately, Benjamin was diagnosed with Coat’s Disease. We were stunned…

Benjamin was legally blind in his left eye, but hadn’t exhibited any of the typical signs of blindness, like bumping into walls or rubbing his eyes. What I didn’t know then was that this gold flash, invisible to the naked eye, could indicate at least 20 different eye diseases or conditions- some of them are even life threatening. Once our family overcame the immediate crisis and we settled back into daily life, I couldn’t stop thinking about The Glow. As I learned more, I felt an obligation to help parents see their child’s vision in a new light. Because, like Benjamin, no child should go blind from a preventable eye disease.”

The final results for our awareness campaign in Greece are in! Thank you to everyone for sharing the message far & wide ...
10/20/2026

The final results for our awareness campaign in Greece are in!
Thank you to everyone for sharing the message far & wide and… HELLO to all the new families & followers.

URL: https://campaign.knowtheglow.org/greece/

Strabismus is a misalignment of the eyes that affects 2-4% of children globally. It can be present from birth or develop...
10/20/2026

Strabismus is a misalignment of the eyes that affects 2-4% of children globally. It can be present from birth or develop later in childhood.

Left untreated, it can cause double vision, headaches, and even vision loss in one eye (lazy eye).

But here's the good news: early detection and treatment can prevent these complications.

If you notice your child squinting, tilting their head, or if their eyes don't align properly — especially when tired or sick — schedule an appointment with a pediatric ophthalmologist.

Share this post to help other parents recognize the signs of strabismus.

More than 80% of all childhood blindness is preventable when caught early.That means a simple photo could change everyth...
10/16/2026

More than 80% of all childhood blindness is preventable when caught early.

That means a simple photo could change everything.

Check for The Glow today in 2 easy steps:

1. Take a flash photo of your child.

2. If you see a white or golden shine in your child's eye, make an appointment with an eye specialist today.

Don't ignore what you see. Early detection saves lives.

Visit our website to learn how identifying The Glow in dim lighting or in flash photos of a child’s eye can help to fight childhood blindness at KnowTheGlow.org.

Robyn never imagined becoming a parent or an advocate.But in January 2025, her two-and-a-half-year-old son Emmett was di...
10/15/2026

Robyn never imagined becoming a parent or an advocate.

But in January 2025, her two-and-a-half-year-old son Emmett was diagnosed with retinoblastoma — eye cancer.

Since then, their family has navigated chemotherapy, a relapse, and countless trips from Canberra to Sydney for specialist treatment.

The journey has been challenging, but it reinforced the importance of early detection and inspired Robyn to speak up.

As KnowTheGlow's Australia Ambassador, Robyn shares her story to help parents recognize the white glow in their child's eye, trust their instincts, and seek treatment early.

She also founded Closer2Care, a grassroots advocacy campaign working to improve access to paediatric cancer care for families living outside major cities.

"If sharing our story helps even one family recognize the signs earlier or feel less alone, then it is worth every conversation."

Read Robyn's story: https://knowtheglow.org/introducing-robyn-wakefield-australian-ambassador/

We’re thrilled to announce our next awareness campaign in….Democratic Republic of the Congo. Help us spread awareness of...
10/15/2026

We’re thrilled to announce our next awareness campaign in….Democratic Republic of the Congo. Help us spread awareness of ‘the Glow’ with friends & family you may know in Democratic Republic of the Congo today!

URL: https://blueprint.knowtheglow.org/drc-campaign-2026

10/15/2026

Kristen noticed something strange while giving her 2-year-old daughter Miley a bath.

An unusual white glow in her eye.

After putting Miley to bed, she started Googling and came across a term she'd never heard: retinoblastoma, a rare childhood eye cancer.

As she read more, she learned some parents first notice signs on a baby monitor — one eye reflects differently in low light.

Kristen immediately checked the monitor, and Miley was still awake.

What she saw deepened her concern: Miley's left eye appeared completely black on the screen, while her right eye reflected normally.

The next morning, Kristen and her husband took Miley to a local pediatric emergency department

By Sunday, a specialist had been called in. The diagnosis: retinoblastoma.

Miley's eye was removed. She went through six rounds of chemotherapy, and in June, she rang the Bravery Bell — cancer-free. Today, she's thriving.

Your baby monitor could reveal a warning sign you didn't know to look for.

At night, both eyes should reflect infrared light the same way. If one appears black or doesn't reflect at all, trust your instincts.

Read Miley's full story: https://my.clevelandclinic.org/patient-stories/1001-black-eye-on-baby-monitor-helps-mother-uncover-daughters-rare-eye-cancer

Know The Glow just launched a new Student Chapter at Gregory University in Nigeria.Led by Dr. Obialo Osigwe, Head of the...
10/14/2026

Know The Glow just launched a new Student Chapter at Gregory University in Nigeria.

Led by Dr. Obialo Osigwe, Head of the Department of Optometry, and student leader Divine Gift Orji, this chapter will bring retinoblastoma and childhood eye health awareness directly to communities across Nigeria.

These students will educate their peers, engage families, and promote the early detection of childhood eye diseases, empowering the next generation of healthcare leaders to recognize the signs that matter most.

Welcome to the global movement, Gregory University. We're honored to begin this journey together — one student, one community, one child at a time.

Read more: https://knowtheglow.org/know-the-glow-partners-with-gregory-university-to-launch-a-ktg-student-chapter-in-nigeria/

We had an amazing experience promoting Know the Glow’s mission at our tabling event at the University of Notre Dame last...
10/13/2026

We had an amazing experience promoting Know the Glow’s mission at our tabling event at the University of Notre Dame last Friday in celebration of World Site Day! Thank you to everyone who showed up and was able to learn about the cause.

How Common Is The Glow?Up to one in 80 children may present The Glow before the age of nine.Separately, the American Opt...
10/13/2026

How Common Is The Glow?

Up to one in 80 children may present The Glow before the age of nine.

Separately, the American Optometric Association reports that vision disorders are the most prevalent condition in childhood with at least 10 percent of children at risk for an undetected vision problem.

The encouraging part? More than 80 percent of childhood blindness is preventable, treatable, or curable when caught early. The most reliable way to catch it is through periodic comprehensive eye exams starting at 6 months of age, with red reflex testing included as a standard part of that exam.

Red reflex testing takes only seconds, yet remains inconsistently applied across many healthcare systems. For a test this simple, it's one of the highest-leverage tools available for early detection of retinoblastoma and other serious eye conditions.

Physicians: how consistently is red reflex testing incorporated into routine pediatric exams where you practice?

10/13/2026

Thank you so much to everyone who participated in our Gold September campaign this Childhood Cancer Awareness Month.

Gold is the universal color of childhood cancer awareness. Throughout September, you all showed support by spreading awareness for retinoblastoma and Know the Glow and tagged us in your posts.

Awareness spreads the fastest when it comes from you! Go Gold. Save Sight. Save Lives. 💛💛

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