05/28/2026
This story is rooted in love, loss, and an unwavering commitment to seeing people for who they truly are.
Her journey began with her sister, Katlyn, her “end all, be all.” Katlyn lived with Prader-Willi Syndrome, autism, and complex medical needs that required constant care. Growing up alongside Katlyn didn’t just shape Heather’s childhood, it shaped her entire life. Every decision she made, including becoming a nurse, was driven by her love for Katlyn and the desire to give others the same care and dignity her sister had.
Working as a pediatric home health nurse, she entered the homes of children with similar needs. Each child left a lasting imprint on her heart, just like her sister had. Then, in a moment that would change everything, she was asked to take in a little girl in foster care who had nowhere to go and was facing placement in a nursing home.
At the time, Heather was recovering from a traumatic childbirth and caring for her nine month old baby. Still, she didn’t hesitate. Heather knew a nursing home was no place for a child. What was meant to be a temporary two week placement turned into something permanent. That little girl became family, her “oldest baby.”
What drives Heather every day is simple but powerful: helping people live fully. She finds joy in the small but profound moments: seeing someone smile, make a choice, or be truly seen by others. She believes deeply that even those who cannot speak still have voices, feelings, and stories worth hearing.
But the work is not easy. The hardest part is not the girl she supports, rather, the system. Constant barriers, red tape, and having to fight for basic rights like education and inclusion can be exhausting. Heather has had to advocate fiercely, challenging assumptions and pushing others to see ability where they only saw limitation.
Through it all, Heather has learned how to build trust without words by watching, listening, and honoring the girl’s unique way of communicating. Heather meets the girl where she is: finding creative ways to connect and making sure the girl feels seen, valued, and understood.
Heather’s belief is clear: people with disabilities deserve the same life as anyone else, full of choice, joy, and opportunity. Not a life limited by systems that see them as costs instead of human beings.
Losing her sister in 2020 could have broken her. Instead, it deepened her purpose. In every person she supports, she sees pieces of Katlyn. Continuing this work is not just a career, it’s a way of honoring her sister’s life.
And in return, the girl she supports has changed her. The girl has shown Heather a kind of joy that is pure and unfiltered, a resilience that defies odds, and a capacity for connection that many in the world overlook.
Heather’s life is richer, fuller, and more meaningful because of the girl. Heather wouldn’t trade that for the world.
A HUGE shout out to Heather Kozak at Sevita! Thank you for your consistent hard work and advocacy. Congratulations on winning the 2026 ANCOR Nebraska DSP award!