02/11/2026
All the details that I know as of now…Please keep praying 💔
The intestinal team consulted with the liver doctors about Ella’s ultrasound results… The results read that Ella’s liver was enlarged which I wasn’t concerned about at all but then it continued to say that the liver had increased hepatic echogenicity with a diffuse parenchymal process which is disease of the functional tissue of the liver …and not just a part of the liver it was the entire liver …my heart sank.. The liver doctor who read the results with Ella’s motility team said this is what they see with patients who were on TPN (IV nutrition) for a long time as you know Ella was TPN dependent for 8 years…I knew it could affect the liver but I was hopeful it wouldn’t happen to Ella …
So what do we do with the liver… Nothing… we know it’s there… we watch it and we always make sure that Ella’s liver numbers are stable… and if they ever become unstable we will cross that path at that time…
The not so good news… The stomach pain, the nausea, the vomiting of bile…We need to meet with the surgery team…The only way to see what’s going on with the bowel is to go in surgically… The only way to see If scar tissue from her last 2 surgeries has wrapped around any surrounding organs is to go in surgically…Her surgeon has done every single surgery that she’s ever had… So all the bowel work is his work…so he knows how it should look in there…I don’t want this for her… hasn’t she gone through enough?… I’m sad, I’m angry, I just want everything to be ok…Another surgery was not what we wanted….We won’t see the surgeon until next week after she has all her cardiology testing…If Ella gets worse before we see her surgeon we were told to go right to the ER…
Thank you for always lifting us and carrying us through the times that we need you the most… Please keep praying for our Ella girl 💜