Child Neurology Foundation

Child Neurology Foundation CNF is a national non-profit working through advocacy, research and education to ensure optimal care for children living with neurologic diseases.

Established in 2001, the Child Neurology Foundation (CNF) 501c(3) is a national nonprofit organization committed to serving as a collaborative center of education, resources, and support for children and their families living with neurologic conditions, and facilitating connection with medical professionals who care for them. The Child Neurology Foundation connects partners from all areas of the c

hild neurology community so those navigating the journey of disease diagnosis, management, and care have the ongoing support of those dedicated to treatments and cures. Our expanding network of patients and caregivers, volunteers and advocates, researchers and clinicians is committed to helping one another along the path that leads to the best quality of care — and the highest quality of life—for every child.

06/02/2026

Looking for a meaningful way to show up for children and families? 👀

CNF is welcoming applications to join our Board of Directors! We’re seeking individuals with experience in technology, legal, development, or fundraising who are ready to bring their perspective and leadership to our mission.

Your insight can help strengthen the systems families rely on every day. 🔗 Learn more and apply at the interest form here: https://forms.gle/sw7rbV7NoS5XwGAU9

This Neuro Advocacy Month, we recognize the families, self-advocates, clinicians, researchers, and community leaders wor...
06/02/2026

This Neuro Advocacy Month, we recognize the families, self-advocates, clinicians, researchers, and community leaders working every day to strengthen systems of care for children with neurologic conditions. 💜
Advocacy takes many forms—sharing experiences, asking questions, building connections, and continuing to show up for one another. At CNF, we’re proud to stand alongside this community and help move the work forward together. Find supports today at childneurologyfoundation.org.

A new month means new opportunities to connect, learn, and show up together. 💜From upcoming courses to community events,...
06/01/2026

A new month means new opportunities to connect, learn, and show up together. 💜

From upcoming courses to community events, here’s where CNF will be this month and the resources ahead for families, caregivers, and healthcare teams. We hope to see you along the way!

From our friends at .kentucky: Every child deserves a summer full of adventure, friendship, and the kind of memories tha...
05/30/2026

From our friends at .kentucky:
Every child deserves a summer full of adventure, friendship, and the kind of memories that stick. The Center for Courageous Kids (CCK) makes that possible for children with disabilities or lifelong illnesses — completely free of charge.

CCK's camp programs are designed to be medically inclusive, joyful, and genuinely transformative. Campers come for the experience and leave with confidence, independence, and friendships that last well beyond the summer.

If you know a family who could use a little magic this season, we'd love for you to pass this along. https://www.courageouskids.org/

Thank you to Pharmaceuticals for serving as a 2026 Corporate Advisory Board Partner of the Child Neurology Foundation. ...
05/29/2026

Thank you to Pharmaceuticals for serving as a 2026 Corporate Advisory Board Partner of the Child Neurology Foundation. Your commitment to advancing care and supporting families navigating neurologic conditions strengthens the work we do together across our community. 💙

05/29/2026

Have you heard about CNF's upcoming Roadmap to Resources book?

It's a free guide (print AND digital) for families, caregivers, and healthcare professionals in the child neurology space, and we want the organizations already doing great work in this community to be a part of it!

If that's you, we'd love to include you.
👉 Learn more and submit here: https://www.surveymonkey.com/r/VDQD69R

LAST CALL to make your purchase from the CNF x Spread Good Shop "I CARE" collection! ⏰💙Stand with us and proudly wear th...
05/28/2026

LAST CALL to make your purchase from the CNF x Spread Good Shop "I CARE" collection! ⏰💙

Stand with us and proudly wear the message that caregiver wellbeing matters. Every purchase raises awareness for the 63 million caregivers showing up every day, and supports future CNF programs for caregivers and children with complex healthcare needs.

Don't wait — Shop now: https://spreadgoodshop.com/products/i-care

05/28/2026

From our friends at :
Mental health support shouldn't stop at a rare disease diagnosis — it should start there.

This Mental Health Awareness Month, Raregivers is proud to announce our partnership with to bring free, confidential, 24/7 crisis support to the rare, chronic, and complex disease community.

Because distress, depression, and anxiety don't follow a schedule. And neither should support. Text RARE to 741741 (English) | Text RARAS to 741741 (Español)

Together, we're reducing isolation and normalizing mental health conversations across our global community. Learn more online at raregivers.global | Follow & tag us on social ☀️

Schools are often one of the first places families turn when a child is navigating a neurologic condition.Through CNF’s ...
05/27/2026

Schools are often one of the first places families turn when a child is navigating a neurologic condition.

Through CNF’s Partner Schools Initiative, educators, counselors, nurses, and support staff can access free, trusted resources to share with families—from educational tools to referrals for CNF’s social work support.

Together, we can help families find guidance and connection beyond the classroom. Explore how your school can join the network today:
https://tinyurl.com/CNF-Partner-School-Signup

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601 W Short Street
Lexington, KY
40508

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