Child Neurology Foundation

Child Neurology Foundation Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Child Neurology Foundation, Nonprofit Organization, PO Box 531001, Lexington, KY.

CNF is a national non-profit working through advocacy, research, and education to ensure optimal care for individuals living with pediatric-onset neurologic diseases and their families. Established in 2001, the Child Neurology Foundation (CNF) 501c(3) is a national nonprofit organization committed to serving as a collaborative center of education, resources, and support for children and their fami

lies living with neurologic conditions, and facilitating connection with medical professionals who care for them. The Child Neurology Foundation connects partners from all areas of the child neurology community so those navigating the journey of disease diagnosis, management, and care have the ongoing support of those dedicated to treatments and cures. Our expanding network of patients and caregivers, volunteers and advocates, researchers and clinicians is committed to helping one another along the path that leads to the best quality of care — and the highest quality of life—for every child.

Child Neurology Foundation is excited to share our growing partnership with TDG Patients, and together we agree: familie...
09/03/2026

Child Neurology Foundation is excited to share our growing partnership with TDG Patients, and together we agree: families living with Tourette Syndrome deserve a voice in the research that helps shape their care.

If you're a parent, guardian, or caregiver of a child under 18 with Tourette Syndrome or a tic disorder, you may be able to take part in this important research. It starts with a short online screener. Families who qualify may be invited to a confidential survey or interview, and will be paid for their time. This is voluntary research, not a clinical trial, and nothing is being sold to you or your family.

If this sounds like it could be your family, take a moment to fill out the screener. And if you know someone who might be a fit, please pass this along — it could mean a lot to other families in this community. 💜
Complete the screener here: https://se1.decipherinc.com/survey/selfserve/5a9/260834?list=2

Dolly Parton shared in recent years that her health declined and she chose to prioritize caregiving for her husband Carl...
09/03/2026

Dolly Parton shared in recent years that her health declined and she chose to prioritize caregiving for her husband Carl over taking care of herself. Even with funds and support systems most of us will never have, Dolly wasn't immune to the stress and struggles of caregiving. This is exactly why CNF fights for caregivers to be seen and supported, in addition to the person or child they're caring for.

CNF's Caregiver's Compass Course is a FREE virtual, therapist-led training available to parents and caregivers of children with neurologic conditions. Learn helpful strategies to cope with stress and grief while building community alongside families who get it. New sessions starting in October, register today: https://www.surveymonkey.com/r/KJ3X2KC

09/02/2026

Honorary CNF team member Cowboy here with an important message... 🐾

Our Family Support Specialist Training is back & starting September 14th, there's a course for you:

New to advocacy work? Start with 101.
Finished 101? Try 201 for more!

You'll learn real tools to help families, like managing stress, building resilience, and using stories to help people heal. Sign up today in the CNF Learning Portal: just scroll and pick your course!

👉 https://www.childneurologyfoundation.org/cnf-learning-portal/

The Child Neurology Foundation is proud to recognize Neurelis for their continued partnership as a member of our Corpora...
09/02/2026

The Child Neurology Foundation is proud to recognize Neurelis for their continued partnership as a member of our Corporate Advisory Board. Their support plays a meaningful role in helping advocate for and expand access to better care for families nationwide.

We're grateful for partners like Neurelis who invest in this mission alongside us.

Just in: CNF's September event calendar 🗓️Explore upcoming Family Support Specialist courses, important conversations, e...
09/01/2026

Just in: CNF's September event calendar 🗓️
Explore upcoming Family Support Specialist courses, important conversations, exciting awarenesses happening this month, and more. Follow on socials to stay up to date!

The world lost a beautiful songwriter, storyteller, and advocate when we lost Dolly Parton. Alongside the music, what's ...
08/31/2026

The world lost a beautiful songwriter, storyteller, and advocate when we lost Dolly Parton. Alongside the music, what's stayed with us is something she shared quietly: that while caring for her husband Carl in his final years, Dolly let her own health slide.

It's a story we hear constantly at CNF. Caregiving asks everything of a person, and it rarely asks how they're doing in return.

Thank you, Dolly, for saying the quiet part out loud. If you are caregiving for a child with a neurologic condition, know that support exists for you too — that's what we're here for. Get started at childneurologyfoundation.org. 🦋

Last call for artists! 🎨 Submissions for the Beauty of Neurology Art Auction close on August 31st, 2026.Your art could b...
08/28/2026

Last call for artists! 🎨 Submissions for the Beauty of Neurology Art Auction close on August 31st, 2026.

Your art could be featured in our virtual auction alongside works created by healthcare workers, advocates, and families in our neurology community.

All money raised helps support CNF's FREE Connected Care Network, helping families navigating neurologic conditions get the help and resources they need at each stage.

Know an artist? Tag them below or share this post — every submission helps a great cause! 💜

Submit your artwork here: https://tinyurl.com/CNF-Artist-Survey

We are proud to announce a new partnership with TDG Patients, built on a simple belief: the families living with Tourett...
08/27/2026

We are proud to announce a new partnership with TDG Patients, built on a simple belief: the families living with Tourette Syndrome should help shape the research that could change their care.

Parents, legal guardians, and caregivers of children under 18 with Tourette syndrome or a tic disorder now have an opportunity to share their experiences. What participants share may help inform future treatment research.

Interested in taking part? It begins with a short online screener. Those who qualify may be invited to complete a confidential survey or interview and will be compensated for their time. This is voluntary market research, not a clinical trial. No treatment or product is being provided or sold.

Think this could be a fit for your family? Complete the screener here: https://se1.decipherinc.com/survey/selfserve/5a9/260834?list=2

Know a family who may be interested? We’d appreciate you passing it along!

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PO Box 531001
Lexington, KY
45253

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