Ehlers Danlos Syndrome of South Carolina

10/17/2026

✨AIKEN TODAY✨

We are so excited for our meetup in Aiken this afternoon! In case you missed it, you can find out where to be in our group, Ehlers Danlos Syndrome Friends of South Carolina.

See you there! 🤍🖤

10/14/2026

✨✨BIG NEWS✨✨

The Norris Lab will be hosting an online (and free) webinar on Thursday, November 5th, from 1-3pm, where Dr. Norris will answer the burning questions you have about EDS and the latest news on the research. We *highly* recommend you attend this event! You can send in your questions on their website. Go ahead and mark it on your calendars, and we will repost details about how to register as soon as they let us know.

In addition, Dr. Norris is also planning to attend our Columbia Social two days later, on Saturday, November 7th, to listen to patient perspectives and hear more of our stories. If you’re available, we’d love to have you join us to share your successes and struggles. This helps them to understand our needs and guide their future research. You can find the link to RSVP for the Columbia Social in the featured posts and events tab in Ehlers Danlos Syndrome Friends of South Carolina.

We have a lot of exciting things happening, and we hope you can be involved!

10/12/2026

Our sister group, Bobby Jones CSF Charleston, SC Area Group, is hosting a fundraising event this Saturday in Charleston called unite4answers. If you’re near the area, please consider attending! If you can’t attend, you can still donate and/or spread the word. They help to fund research for Chiari, syringomyelia, and related disorders. You can find all the details on their site for the event.

Join me and support the 2024 Bobby Jones CSF: https://fundraise.givesmart.com/vf/26charlestonsc

10/09/2026

✨See you tomorrow, Rock Hill!✨

(Details on location are posted in Ehlers Danlos Syndrome Friends of South Carolina)

Happy fall, y’all! 🍂 We have scheduled seven upcoming support group meetings around the state for October, November, and December, including three new cities! If you live near any of the cities listed below, we would love to have you join us. We also have a virtual meeting for those who can’t get to an in-person meeting, or for those who just want to meet even more EDS friends!

Make sure you’re a member of Ehlers Danlos Syndrome Friends of South Carolina to get all the details!

See you soon! 🤍🖤

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If you feel so inclined, you can help us to be able to keep doing this by donating to EDS of SC’s CashApp (https://cash.app/$EDSofSC) or PayPal (https://www.paypal.com/donate/?hosted_button_id=ZAQRU6U3BERNA). Any donated funds will *strictly* be used for travel accommodations for these meetings. We hope to apply for grants and do other fundraising to help with this in the future.

10/01/2026

Happy fall, y’all! 🍂 We have scheduled seven upcoming support group meetings around the state for October, November, and December, including three new cities! If you live near any of the cities listed below, we would love to have you join us. We also have a virtual meeting for those who can’t get to an in-person meeting, or for those who just want to meet even more EDS friends!

Make sure you’re a member of Ehlers Danlos Syndrome Friends of South Carolina to get all the details!

See you soon! 🤍🖤

——————————-

If you feel so inclined, you can help us to be able to keep doing this by donating to EDS of SC’s CashApp (https://cash.app/$EDSofSC) or PayPal (https://www.paypal.com/donate/?hosted_button_id=ZAQRU6U3BERNA). Any donated funds will *strictly* be used for travel accommodations for these meetings. We hope to apply for grants and do other fundraising to help with this in the future.

05/02/2026

Happy EDS/HSD Awareness Month zebras! 🦓

I hope you will join me in spreading awareness by participating in the 31-day social media challenge.
Share your voice. Your story matters. 🤍🖤

04/24/2026

See you tomorrow! 🦓

✨TOMORROW!✨
Join us for our first Virtual Social with , taking place at 6pm tomorrow on Zoom. Make sure you’re a member of our Facebook group to get the link!
We are so excited to see everyone! 🤍🖤

04/21/2026

Today’s the day!!! 🦓
You can still purchase discounted tickets with this code. Join us in person or virtually on the Whova app!

Don’t miss out, get tickets for MUSC MIND 2026 now! 🧠🧬🥼🦓🩺 EDS Day is Tuesday, April 21st, and will feature speakers like Dr. Norris, Dr. Maitland, and many others fantastic researchers and clinicians. Go to MIND2026.ORG to register! If you are a patient purchasing a one-day pass, use code MIND2026CARE for 50% off! We can’t wait to see you🙌

04/18/2026

Hey friends! As a reminder, our first Virtual Social is taking place NEXT SATURDAY evening! ✨

You do not have to have an official diagnosis to participate, and friends/family are welcome to join us too. Check the event page in the group for all the details.

See you there! 🤍🖤

04/09/2026