Ehlers Danlos Syndrome of South Carolina

Ehlers Danlos Syndrome of South Carolina Join our support group here: https://www.facebook.com/groups/edsofsc/ So I've created this page for support and friendship for others in SC. Have a great day!

EDS of SC is a nonprofit organization aimed at driving systemic change for South Carolinians affected by Ehlers Danlos Syndrome and Hypermobility Spectrum Disorder. When my daughter was diagnosed with EDS, I looked for a support group in SC, but there was not one. Please join us on our group page which is a closed group to non members and comments would not be visible unless you are a member. htt

ps://www.facebook.com/groups/edsofsc/

I welcome your feedback. Feel free to post but keep in mind this is a public page.

Happy EDS/HSD Awareness Month zebras! 🦓I hope you will join me in spreading awareness by participating in the 31-day soc...
05/02/2026

Happy EDS/HSD Awareness Month zebras! 🦓

I hope you will join me in spreading awareness by participating in the 31-day social media challenge.
Share your voice. Your story matters. 🤍🖤

See you tomorrow! 🦓
04/24/2026

See you tomorrow! 🦓

✨TOMORROW!✨
Join us for our first Virtual Social with , taking place at 6pm tomorrow on Zoom. Make sure you’re a member of our Facebook group to get the link!
We are so excited to see everyone! 🤍🖤

Today’s the day!!! 🦓 You can still purchase discounted tickets with this code. Join us in person or virtually on the Who...
04/21/2026

Today’s the day!!! 🦓
You can still purchase discounted tickets with this code. Join us in person or virtually on the Whova app!

Don’t miss out, get tickets for MUSC MIND 2026 now! 🧠🧬🥼🦓🩺 EDS Day is Tuesday, April 21st, and will feature speakers like Dr. Norris, Dr. Maitland, and many others fantastic researchers and clinicians. Go to MIND2026.ORG to register! If you are a patient purchasing a one-day pass, use code MIND2026CARE for 50% off! We can’t wait to see you🙌

Hey friends! As a reminder, our first Virtual Social is taking place NEXT SATURDAY evening! ✨You do not have to have an ...
04/18/2026

Hey friends! As a reminder, our first Virtual Social is taking place NEXT SATURDAY evening! ✨

You do not have to have an official diagnosis to participate, and friends/family are welcome to join us too. Check the event page in the group for all the details.

See you there! 🤍🖤

04/09/2026
These are very helpful to have in case of emergencies!
04/04/2026

These are very helpful to have in case of emergencies!

Now available to download and print are wallet cards for each type of Ehlers-Danlos syndrome (EDS) and hypermobility spectrum disorder (HSD).

The wallet cards are available in US and UK printing sizes. One side features the EDS or HSD type, and on the reverse is a scannable QR code that links to the type-specific webpage featuring signs and symptoms of that type and further information.

Click here to download your wallet card today: https://www.ehlers-danlos.com/download-your-wallet-card/

Hey friends! As a reminder, our first Midlands Social is taking place tomorrow afternoon! ✨You do not have to have an of...
03/27/2026

Hey friends! As a reminder, our first Midlands Social is taking place tomorrow afternoon! ✨
You do not have to have an official diagnosis to participate, and friends/family are welcome to join us too. Check the event page in the group for all the details.

We look forward to seeing you tomorrow! 🤍🖤

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Lexington, SC

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