All you need to do is show up for a day of golf, contests, raffles, and prizes! Vivian is an adorable almost 6 year old who lights up the room with her sweet and silly personality. She was diagnosed with Rett Syndrome a month after her first birthday in 2019 and we have been involved with IRSF ever since. We truly believe in the work they do to fund research, support and empower families along the
way. Rett syndrome has stolen so much from Vivian like her ability to speak, walk, and use her hands. It affects every part of her day with seizures, a g-tube for nutrition, and it’s difficult for Vivian to communicate her needs or wants. Vivian and all of the other people diagnosed with Rett are fighting every day inside a body that quite literally won’t let them do the things they want. We hope you'll join us in our fundraising efforts through a fun-filled day on the golf course!
-Haley and Conner Douglass (Vivian’s parents)
