Ashley's Purple Star Foundation-Dedicated to Finding a Cure for SNUC

Ashley's Purple Star Foundation-Dedicated to Finding a Cure for SNUC Dedicated to finding a cure for SinoNasal Undifferentiated Carcinoma (SNUC) in honor of Ashley Aberne The research, however, lived on.

On May 1, 2009 an MRI uncovered the source of Ashley's ongoing allergy problems...a tumor. Within a week, that tumor was found to be cancer, later diagnosed as SNUC, or SinoNasal Undifferentiated Carcinioma. To date, little is known about this rare and aggressive cancer. While research on cancer is ongoing, research on SNUC is virtually nonexistent. The treatment protocol for SNUC is drawn from su

ccessful treatments of other malignancies. Because it is so rare, it does not get studied in great depth. Ashley lost her battle with SNUC on Dec. 1, 2009, three days shy of her 23rd birthday after a short, but valiant, 7 month fight. We have chosen to work with Cayman BioMedical Research Institue, aka CaBRI, to perform the research for us. In 2004, an IT employee at Cayman Chemical was diagnosed with SNUC. Volunteers from Cayman rushed to form CaBRI in an effort to help their peer. Andrei, like Ashley, lost his battle to this aggressive cancer. To date, with funding from Ashley's Foundation and other private donations, CaBRI has completed genome sequencing. Tumor whole genome sequencing will allow researchers to read the entire “instruction manual” of SNUC cells. Using Andrei's cranial biopsy specimen as a DNA source, and in collaboration with the University of Michigan groups headed by Dr. Larry Marentette and Dr. Arul Chinnaiyan, sequencing of the SNUC genome began in 2011 and is now completed. Results will be reported in an upcoming research publication. To continue research we need your support!

One of our precious SNUC family is in need of support.  Please keep Sheridan in your thoughts and prayers and donate if ...
10/18/2022

One of our precious SNUC family is in need of support. Please keep Sheridan in your thoughts and prayers and donate if you feel so inclined.

Sheridan didn't want me to do this, but I didn't give her a choice. She… Misty Domingues needs your support for Sheridan's Fight Against Brain & Sinus Cancer

So true.
10/07/2021

So true.

10/01/2021

The past two weks have been hard. We lost two great warriors. I am heartbroken to say we lost Jerri Ann. She was such a strong fighter. And so positive. She went through so much but left too soon.

Today we lost Cody Benoga. He had a short bout with Snuc but was so impactful to our small SNUC community.

Two lives…so different. So many people loved them. We wont forget. And we won’t quit fighting.

One of my favorite people.  What a great story!!!!!   Love when there is a good outcome to Snuc!
05/13/2021

One of my favorite people. What a great story!!!!! Love when there is a good outcome to Snuc!

We lost a good man.  This is why we fight.
04/21/2021

We lost a good man. This is why we fight.

" Heaven gained an angel on Sunday, April 18, 2021, Aaron Matthew Humphreys, 36, ended his 4 year battle with cancer and passed away at home in Stafford, VA with his family by his side. Aaron was born on September 16, 1984 in Alexandria, VA to Ray and Rebecca (Murray) Humphreys. He received a Bachel...

Great read.  Dr Hanna is one of the Doctors we work with at MD Anderson!
01/29/2021

Great read. Dr Hanna is one of the Doctors we work with at MD Anderson!

Patients with a rare type of nasal and/or sinus cancer called sinonasal undifferentiated carcinoma have better survival rates when chemotherapy is given first, before surgery or radiation, an MD Anderson study found. The study also found that many patients can skip surgery altogether.

12/01/2020

Today marks 11 years since we lost Ashley to SNUC. While it brings back so many memories, I also have to think about positive things that have come since. I see so many people who have beat this terrible cancer, and while others have not had the same outcomes, I can say the life expectancies have been far better and the quality of life as well. I am proud of what we have been able to contribute to through Ashley Abernethy's Purple Star Foundation. Being part of cutting edge science and research at MD Anderson, CABRI.org and University of Kansas Cancer Center is an honor, and it belongs to not only to Ashley, but to all of those who have fought this battle. Her words, "Mom, I don't want anyone else to have to go through this" rang true to me and I knew we had to do something that could bring forth positivity after such a negative experience. As Ashley would say, "Live, Laugh, Love"!

Always love to see new advances in head and neck cancer.
10/06/2020

Always love to see new advances in head and neck cancer.

New center offers unique treatment and research opportunities largely unavailable elsewhere Dana-Farber Cancer Institute has launched the Center for...

Dear Charity Administrator,The AmazonSmile Foundation recently surpassed $200 million in donations to charities worldwid...
09/16/2020

Dear Charity Administrator,
The AmazonSmile Foundation recently surpassed $200 million in donations to charities worldwide! Our thanks go out to you, Ashley Abernethys Purple Star Foundation supporters, and every supporter who shops at smile.amazon.com.📷📷📷This is a great moment to remind your supporters to continue generating donations for Ashley Abernethys Purple Star Foundation by shopping at smile.amazon.com/ch/45-5068807.
As a side note, we get quarterly credit to our foundation for your shopping efforts. It's not a ton of money, but there is power in numbers and over the years has added up enough to help a SNUC patient in need of medical help or as always, to help with research efforts to help in all head and neck cancers.
Thanks to all who support our organization by shopping! How fun is that?

When you shop at AmazonSmile, Amazon will donate to Ashley Abernethys Purple Star Foundation. Support us every time you shop.

05/12/2020

One of the organizations that we support through Ashley's Foundation. https://www.cabrimed.org/research/rare-conditions/

https://www.cabrimed.org/history/

Rare Conditions ORPHAN DISEASESCABRI supports research on the rare illnesses and orphan diseases that are often neglected by the corporate pharmaceutical industry and actively pursues new developments that will treat these diseases. An orphan disease is defined as a condition that affects fewer than...

05/06/2020

Another prayer request for another SNUC survivor who is fightiing his 3rd recurrance. Conner is a young man in his early 20's from Naples and I've come to know his family through our SNUC family. He's been doing regular checkups and his latest scan lit up and they found the cancer had mestastisized to his parotid gland.

At the rate the tumor is growing, the doctors have chosen to schedule surgery for THIS Monday. Parotidectomy is a major surgical procedure to remove the parotid gland which is one of the 2 major salivary glands found in the human body. They will also be removing the surrounding lymph nodes. Surgery will take roughly three hours. A drain will be placed, and removed 5-7 days later.
Conner meets with Radiology on Thursday, as they will more than likely follow the surgery with more radiation a month post op.

Please pray for Conner and his family, for the doctors performing the surgery. Thank you in advance and let's show Conner the power of prayer!

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