After ALS

After ALS A support group for anyone who has lost someone they love to this disease

Good Late morning Family,I'm looking forward to sharing time with you this afternoon at 3:00p.m. ESTLet's talk about the...
05/27/2026

Good Late morning Family,

I'm looking forward to sharing time with you this afternoon at 3:00p.m. EST

Let's talk about the "what if's" both past and present and future.
Example:
What if I had done..... would my loved one not have suffered as much?
What if I need help today, who do I turn to?
What if I can't maintain my house where will I live?

All very valid questions that can weigh heavy on us in grief.

Here is the link:

Zoom is the leader in modern enterprise cloud communications.

Good morning Family,I'm looking forward to spending time with you all today 5/20 at 3:00p.m. EST.Today, I thought we wou...
05/20/2026

Good morning Family,

I'm looking forward to spending time with you all today 5/20 at 3:00p.m. EST.
Today, I thought we would explore anticipatory grief. I know some of you are saying we've already been through that, but you are also going through it now as you anticipate anniversaries, events you have on the horizon.
Anticipatory grief exists throughout life, but especially if you've been through a terminal illness as a caregiver.

Hope to share more with you this afternoon.

Zoom is the leader in modern enterprise cloud communications.

Good Morning Family,I'm looking forward to our gathering via zoom today, 5/13 at 3:00 p.m. ESTHere is the link:https://u...
05/13/2026

Good Morning Family,

I'm looking forward to our gathering via zoom today, 5/13 at 3:00 p.m. EST
Here is the link:
https://us02web.zoom.us/j/83358045334?pwd=MCV9o8z84KebyDx01bC8aZ5jbOsAuK.1

Let's take some time to talk about Mother's day and how it felt for each of you. Also, I would like to talk a bit about secondary loss. The loss of part of yourself, the loss of your person's contribution to the household, the loss of your sense of safety, etc.

See you at 3:00 p.m.

Zoom is the leader in modern enterprise cloud communications.

Good Morning Family,I'm looking forward to sharing time with you this afternoon 5/6 at 3:00p.m. Here is the link:https:/...
05/06/2026

Good Morning Family,

I'm looking forward to sharing time with you this afternoon 5/6 at 3:00p.m. Here is the link:
https://us02web.zoom.us/j/83358045334?pwd=MCV9o8z84KebyDx01bC8aZ5jbOsAuK.1

I don't have a topic in mind or a question. Yesterday was one of those tough days, but Pat Glogowski sent this link and I found it incredibly helpful. We certainly can talk about it or anything else that is on your minds.
https://www.karensutton.co.uk/blog/fear-in-widowhood-what-is-it-and-how-to-navigate-it

Fear in widowhood is often hidden but deeply felt. Discover why fear shows up after loss, how it impacts daily life, and gentle, compassionate ways to navigate it.

04/29/2026

Good Morning Family,

Sorry for the delay in reaching out to you all, the morning is slipping away from me.I'm looking forward to sharing time with you this afternoon at 3:00p.m. EST. Here is the zoom link:https://us02web.zoom.us/j/83358045334?pwd=MCV9o8z84KebyDx01bC8aZ5jbOsAuK.1

And my question for today comes from our conversation last week. What is the worst thing about grief for you? Is it the loss of physical touch, the loss of who you were, the thought of a future without your loved one? While I know all these things are true, which one stands out the most?
Can't wait to hear your thoughts.

04/21/2026

On the Phone, Far Away - Rosemerry Wahtola Trommer

I wish I could give you the key
that opens this rusty cage of ache,
or maybe wings to carry you
not so much away from hurt
but toward some garden you
long to land in. A call to summon you
toward a night-dark meadow
wide enough to twirl in
until you fall down dizzy to stare
at the star-bright sky and remember
yourself as part of the mystery.
Would even wish you a fever to burn
away all that does not serve
so you might wake trembling and new.
Or a lens that widens and widens
and widens until your story can only
be seen as a small but essential
part of the great, vast abyss
that is everything. As it is,
I have this hour. These ears.
This heart. They feel so insufficient
when what I want is to bring you
a river that forever delivers you
on the shores of belonging.
But here. Here is my time. Here,
my attention. My love. I cannot
fix a damn thing, but I hear you.
You are not alone. I hear you.

Good Morning Family,I'm looking forward to sharing time with you tomorrow, 4/22 at 3:00p.m. EST. Here is the link:https:...
04/21/2026

Good Morning Family,

I'm looking forward to sharing time with you tomorrow, 4/22 at 3:00p.m. EST. Here is the link:

https://us02web.zoom.us/j/83358045334?pwd=MCV9o8z84KebyDx01bC8aZ5jbOsAuK.1

This week's subject is one I've been thinking about alot lately and it is:
How to be present when your heart is in the past.
How do we keep ourselves in today's world and functioning, when all we really want is to go back to the time when our loved ones were here and ALS wasn't even on the radar?
How do we tend to our breaking heart while still paying attention to life that is happening right before our eyes?

Zoom is the leader in modern enterprise cloud communications.

Good Morning Family,I'm looking forward to sharing time with you today.As a change of pace, let's make today about whate...
04/15/2026

Good Morning Family,

I'm looking forward to sharing time with you today.

As a change of pace, let's make today about whatever is on your heart. An open discussion of what lingers and is troubling you, or what has been uplifting and has helped you on your journey.
Hope to see you this afternoon at 3:00p.m. EST

Zoom is the leader in modern enterprise cloud communications.

Good Morning Family,I'm looking forward to our time together today at 3:00p.m. ESTI've been thinking lately about a coup...
04/01/2026

Good Morning Family,

I'm looking forward to our time together today at 3:00p.m. EST

I've been thinking lately about a couple things.
First, is the love we had and felt worth the cost of the grief we have now?
Second, does your grief bring up old wounds from your past? Not necessarily with your loved one, but anything in your past that surfaces during this journey of grief.

As always, I'm looking forward to hearing your perspective.

Here is the link to join:

Zoom is the leader in modern enterprise cloud communications.

Good Morning Family,I'm looking forward to sharing time with you today at 3:00p.m. ESTI would love to tackle this subjec...
03/25/2026

Good Morning Family,

I'm looking forward to sharing time with you today at 3:00p.m. EST
I would love to tackle this subject today: How to love them in their absence

I know this may be a difficult one and certainly emotional, but let's explore it together.

Here is the link for today's gathering:
https://us02web.zoom.us/j/83358045334?pwd=MCV9o8z84KebyDx01bC8aZ5jbOsAuK.1

Hope to see you this afternoon.

Jill

Zoom is the leader in modern enterprise cloud communications.

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