Dreamsickle Kids Foundation

06/09/2026

🚨 SAVE THE DATE! 🚨

💙❤️ 9th Annual Las Vegas Sickle Cell Walk ❤️💙

📅 Saturday, September 26, 2026
📍 Lorenzi Park – Las Vegas, Nevada
⏰ Registration begins at 7:30 AM

Join us as we come together to raise awareness, honor warriors, remember loved ones, and support individuals and families affected by Sickle Cell Disease.

Hosted by the DreamSickle Kids Foundation, Nevada’s first nonprofit organization dedicated exclusively to serving the sickle cell community, this family-friendly event will feature a community walk, vendors, resources, entertainment, and opportunities to learn how you can make a difference.

✨ Theme: Walking for a Cure ✨

Interested in becoming a sponsor, vendor, volunteer, or community partner?

📧 [email protected]
🌐 DreamsickleKids.org

Let’s make Sickle Cell Awareness Month impossible to ignore!

06/08/2026

📣 SAVE THE DATE!

💙 9th Annual Las Vegas Sickle Cell Walk 💙

📅 September 26, 2026
📍 Lorenzi Park • Las Vegas, NV

Join us as we walk for awareness, advocacy, support, and a cure. Bring your family, friends, coworkers, and community groups!

📧 [email protected]
🌐 DreamsickleKids.org

06/08/2026

This Friday come out to donate blood for Sickle Cell Warriors🌙

One donation can help save multiple lives.

For many individuals living with sickle cell disease, blood transfusions are not optional — they are part of survival.

Join us June 12th for the Dreamsickle Kids Foundation Blood Drive with the American Red Cross — and don’t wait to book your appointment. Spots and ideal donation times will fill quickly, so hurry and schedule as soon as possible.

🩸 Black blood donors are especially needed.
🩸 Every donor matters.
🩸 Every share helps.

All donors will receive:
🎁 A gift card from the American Red Cross
🎁 Special goodies from Dreamsickle Kids Foundation
🎁 PLUS — everyone who donates during the month of June will be entered into a raffle for a BIG prize!

06/04/2026

💙 Exciting News from DreamSickle Kids Foundation! 💙

It has been a long time coming, and we are proud to officially introduce our President, Tamara D’john Williams, who joined DreamSickle Kids Foundation in January 2026.

Tamara is a lifelong Sickle Cell warrior, diagnosed at just eight months old. She has turned her personal journey into a mission of advocacy, awareness, and support for individuals and families impacted by sickle cell disease.

Originally from Chicago and now based in Las Vegas, Tamara brings both lived experience and leadership to this role. She is committed to expanding DreamSickle Kids' impact through stronger community outreach, increased awareness, and meaningful support for warriors and their families.

In addition to her advocacy work, Tamara is a licensed Nevada real estate professional with more than seven years of experience. Through both her career and her platform, she demonstrates that your circumstances do not define your future. She is living proof that success, resilience, and purpose are possible—no matter the obstacles.

Please join us in congratulating and welcoming President Tamara D’john Williams as we continue building a stronger future for the sickle cell community.

💙

06/03/2026

🏌🏾‍♂️⛳ REGISTRATION IS NOW OPEN! ⛳🏌🏾‍♀️

Join us for the 2nd Annual Swing for Sickle Cell Classic hosted by Immaculate Pieces Golf Club and benefiting Dreamsickle Kids Foundation!

If you love golf and believe in supporting a great cause, we encourage you to register your team, become a sponsor, or help spread the word. Every swing helps raise awareness and support for individuals and families impacted by sickle cell disease.

📅 September 5, 2026
📍 Las Vegas National Golf Club
⏰ Shotgun Start: 8:00 AM

🏌🏾 $125 Individual Golfer
🏌🏾‍♂️ $450 Foursome

Sponsorship opportunities are also available!

Grab your clubs, invite your friends, and come out for a great day on the course while supporting the sickle cell community.

Register using the QR code on the flyer or visit immaculatepieces.com.


🌙

https://immaculatepieces.com/pages/2nd-annual-swing-for-sickle-cell-classic

Immaculate Pieces Clothing Co.

05/20/2026

One donation can help save multiple lives.

For many individuals living with sickle cell disease, blood transfusions are not optional — they are part of survival.

Join us June 12th for the Dreamsickle Kids Foundation Blood Drive with the American Red Cross — and don’t wait to book your appointment. Spots and ideal donation times will fill quickly, so hurry and schedule as soon as possible.

🩸 Black blood donors are especially needed.
🩸 Every donor matters.
🩸 Every share helps.

All donors will receive:
🎁 A gift card from the American Red Cross
🎁 Special goodies from Dreamsickle Kids Foundation
🎁 PLUS — everyone who donates during the month of June will be entered into a raffle for a BIG prize!

05/11/2026

The science of sickle cell treatment is moving fast. Here's what's in the pipeline:

Sanofi's rilzabrutinib, an oral BTK inhibitor recently granted FDA orphan drug designation for SCD, is in a phase 3 trial targeting a reduction in vaso-occlusive crises. Fulcrum Therapeutics is also testing pociredir, a small molecule designed to trigger fetal hemoglobin expression to compensate for mutated hemoglobin in SCD.

Meanwhile, researchers are working on in vivo gene therapy — meaning edits made inside the body without the need for chemotherapy-based conditioning beforehand — which could make treatment accessible to far more patients.
The sickle cell treatment market is projected to grow from $3.2 billion in 2025 to approximately $8.81 billion by 2032. The investment is growing. Now let's make sure the patients who need it most benefit first.

05/09/2026

Before gene therapy made headlines, there was hydroxyurea — an oral medication that has been a cornerstone of sickle cell treatment for decades, and it's still not being used as widely as it should be.
Multiple studies have suggested that hydroxyurea reduces overall mortality and lengthens lifespan in people with SCD. It works by stimulating the production of fetal hemoglobin, which can prevent red blood cells from sickling. PubMed Central
It's not a cure, but for the vast majority of patients who can't access or afford gene therapy, it's a lifeline. More focus on expanding its use — especially in lower-resource settings — could save lives right now.

Not every breakthrough has to cost $2 million. Sometimes it's already on the shelf💡

05/09/2026

We talk a lot about the physical symptoms of sickle cell disease — but the mental and emotional toll is just as real, and far less discussed.
Research shows significant associations between educational attainment, employment status, mental health, and pain episode frequency and severity in people with SCD — highlighting the need for comprehensive care that considers psychological well-being. HCP Live
Chronic pain is exhausting. Being dismissed by doctors is exhausting. Living with uncertainty is exhausting. SCD patients are carrying all of this simultaneously, often without adequate mental health support built into their care plans.
Comprehensive care means treating the whole person!