Cystic Fibrosis Foundation - Nevada Chapter

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Cystic Fibrosis Foundation - Nevada Chapter

We're helping to advance the Cystic Fibrosis Foundation’s mission to cure cystic fibrosis.

About CF:
Cystic fibrosis is a life-threatening genetic disease that affects the lungs and digestive system of approximately 30,000 children and adults in the United States. More than 10 million Americans are unknowing, symptomless carriers of a defective CF gene.

08/26/2026

Have 10 minutes? Take the Annual CF Insights survey to share what’s working, what’s hard, and what would make a real difference for the CF community.

Results will help guide CF Foundation decisions around research, care, and support — and ensure researchers and clinicians have a clearer understanding of the evolving needs of the CF community.

The survey is open to everyone in the community and is available in English and Spanish. Share your anonymous insights by Sept. 7: https://cff.qualtrics.com/jfe/form/SV_cXQWcpMTUVgPDhA?Source=33

08/21/2026

Starting college is an exciting milestone, and having cystic fibrosis shouldn't stand in the way of your goals. From housing accommodations and class flexibility to other support services, there are laws in place to help ensure your medical needs are met while you're on campus.

Learn to speak up for your needs, understand your rights, and prepare for a successful college experience with CF. Explore resources for navigating college with CF: https://www.cff.org/support/accommodations-college

08/18/2026

Not everyone can benefit from CFTR modulators like Alyftrek, Trikafta, Symdeko, Kalydeco, or Orkambi — and that can feel isolating.

If this is part of you or your loved one’s experience, join a virtual small-group discussion Aug. 18 at 7 p.m. ET to connect with others who understand what you’re going through. Together, you’ll have an open, honest space to connect and find support in one another.

08/17/2026

Every breakthrough is built on the generosity of those who came before us.

Legacy gifts have helped advance research, improve care, and create new possibilities for people with cystic fibrosis. When supporters include the CF Foundation in their estate plans, they're building the foundation for tomorrow's discoveries.

This year, you have the opportunity to make a big impact thanks to a generous donor challenge. When you join the Legacy Society between April 15 and December 31, 2026, The Delaney Binker Family Cure Cystic Fibrosis Miami Foundation will donate an additional $1,000 to the CF Foundation in your honor.

One decision today can help create lasting change tomorrow.

Let's build our legacy together. Join today at cff.org/legacy-giving

08/14/2026

Join us for a live virtual event to celebrate our incredible ROSE UP community for coming together to raise money for a cure for cystic fibrosis in their own way. Join us Thursday, Sept. 17! Save your seat today: https://on.cff.org/4w5BTTz

08/04/2026

Let's Build Our Legacy Together.

This Make-A-Will Month, we're inviting our community to take a powerful step toward a future beyond cystic fibrosis.

Creating a will helps protect the people you love while giving you the opportunity to support the causes closest to your heart. By including a gift to the Cystic Fibrosis Foundation in your estate plans, you can help fuel research, care, and advocacy for generations to come.

Together, we're building a legacy of hope, progress, and possibility.

Start building your legacy today at cff.org/legacy-giving

07/23/2026

Join the next CF Circle July 28 at 7 p.m. ET for a virtual, small-group conversation focused on navigating gastrointestinal (GI) challenges.

Adults with cystic fibrosis, parents, and caregivers are invited to connect with others about GI-related issues, including digestion, bloating, constipation, stomach pain, reflux, nausea, and more.

07/16/2026

Because of the support of people like you and our national peer-to-peer sponsor, Vertex, people with CF are achieving dreams for themselves, not limited by their disease. Thank you for all you do!

07/06/2026

Calling all undergraduate, graduate, and medical students!

The CF Foundation College Program presented by Tomorrow's Leaders brings together students from across the country Aug. 3-7 for a free, virtual experience focused on leadership, professional development, and the cystic fibrosis community.

Participants will explore topics like data-driven storytelling, generative AI, and how science, policy, and advocacy work together to help those with CF — all while connecting with researchers, community members, and leaders in the cystic fibrosis space.

Address

8784 S Maryland Pkwy, Ste 130
Las Vegas, NV
89123

Telephone

+17023838500

Website

http://nevada.cff.org/

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