Room to Breathe Foundation

03/01/2026

Rare Disease Day 💙

Living with a rare disease means navigating things most people never see.
The appointments. The exhaustion. The advocacy. The strength it takes just to keep going.

But it also means resilience.
Community.
And a fierce appreciation for every rare, steady, joy-filled moment.

Today, we stand for awareness.
For research.
For families fighting battles that don’t make headlines.

Rare is not invisible.
Rare is powerful. 💙

01/23/2026

Apply here:
https://forms.gle/U1pRgs1KanzFPwMv6

01/10/2026

Hey everyone,
Let’s talk about our “medical binders”. Those big bulky binders with all our kids or even our adult kids have. Well, there is a new, easier way. You just need a little bit of technology know how.

We ( You the parent, or disabled adult ) can create URL codes (QR codes or short links) that contain vital medical information for disabled children. These can be used in medical ID bracelets, school IDs, backpacks, or emergency kits for quick access by caregivers, teachers, or emergency responders.
________________________________________
How to Create a Medical Info QR Code for a Disabled Child
1. Create a Secure Digital Medical Profile
Use an online document, form, or webpage to store critical medical information. Some options:
• Google Docs (shared with specific people)
• Google Forms (for easy updates)
• HIPAA-compliant platforms like CareClinic, AllergyPal, or MyID
• Personal webpage (hosted on a secure site)
What to Include:
✅ Child’s Name & Age
✅ Emergency Contacts (Parents, Guardians)
✅ Medical Conditions & Disabilities
✅ Allergies & Medications (Dosages, Instructions)
✅ Medical Devices (VEPTR, pacemaker, feeding tube, etc.)
✅ Communication Needs (Non-verbal, speech device, etc.)
✅ Doctor & Hospital Info
✅ Emergency Action Plan (Seizures, breathing issues, etc.)
________________________________________
2. Generate a QR Code or Short URL
Once you have a secure online document, you can generate a QR Code that links to it.
• QR Code Generators
o QR Code Monkey
o QR Code Generator
o Canva QR Code Maker
• Short URLs for Easy Access
o Bitly (e.g., http://bit.ly/JohnsMedicalInfo)
o TinyURL
________________________________________
3. Best Placement for the QR Code
• Medical ID Bracelet or Necklace (engrave the QR code)
• Backpack Tag or Keychain (laminated card)
• School ID Badge
• Sticker on cellphone case (For those that drive)
• Wheelchair or Mobility Device Sticker
• Inside a Child’s Notebook or Communication Device
• Emergency Contact Sheet at Home or School
________________________________________
4. Security & Privacy
• Set view permissions on Google Docs (only those with the link can access).
• Use password protection if needed.
• Store sensitive data on a HIPAA-compliant platform if required.
________________________________________

If you need assistance with set up, have comments or questions, do not hesitate to reach out

01/06/2026

Even though the giveaway has closed... We have 1 watch now offically remaining. And we are hoping to do another giveaway come spring. So please spread the word. Especially for those that are in need of the watches.

Please feel free to DM US. If interested as the application is closed.

12/31/2025

We will be closed and unavailable for calls and DMS till January 4th. Starting with some exciting new news and opening some programs for various assistance.

12/25/2025

12/24/2025

Merry Christmas eve everyone. Wishing you and yours a warm and wonderful Christmas. Stay healthy!!!

12/23/2025

Even though the giveaway has closed... We have 1 watch now offically remaining. And we are hoping to do another giveaway come spring. So please spread the word. Especially for those that are in need of the watches.

Hoping everyone has a Happy Holiday Season. It's snowing here.. Stay warm

12/22/2025

🎄✨ Smart Watch Giveaway Update ✨🎄

Our Smart Watch Giveaway has officially come to an end, and we are excited to share that the final watches have been shipped and tracking information has been sent. While the watches will arrive after Christmas, we hope they still bring comfort, support, and a bright start to the new year.

All watches have now been claimed, and the application forms are officially closed.

If you have any questions or need assistance, please contact us directly via Facebook — we are always happy to help.

Thank you to everyone who participated and helped make this giveaway so meaningful. From all of us at the Room to Breathe Foundation, we’re wishing you a peaceful holiday season and a healthy, hopeful New Year.

🎁💙✨

12/21/2025

We have 3 watches remaining. So we have extended it until Sunday Dec 21st at 11:59 pm EST. However these remaining watches (final 5) are not guarnetted for chrimas delievery due to mail scheduling as they will not be shipped out till Monday the 22nd.

🎄🎁 HOLIDAY GIVEAWAY FOR VEPTR WARRIORS (12+) 15 WINNERS! 🎁🎄EXTENDED!!!
Deadline for Entry Dec 15th 11:59 pm
The Room to Breathe Foundation is excited to announce our Holiday Lifebree Smart Health Watch Giveaway. Thanks to generous donors, we now have 15 Lifebree Smart Health Watches available for VEPTR Warriors aged 10 and older, including VEPTR teens and VEPTR adults. 💙✨
These watches were donated to the Foundation, and we are honored to share them with our VEPTR community this holiday season.
If you are a VEPTR teen, a VEPTR adult, or a parent or caregiver applying for a VEPTR teen age 10 or older, you may apply using the link below.
👉 Apply Here:
https://forms.gle/U1pRgs1KanzFPwMv6
🎁 Who Can Apply
✔ VEPTR teens age 10 or older
✔ VEPTR adults
✔ Parents or caregivers applying for their VEPTR teen
✔ United States residents only due to shipping restrictions
✔ One application per VEPTR Warrior
🎄 About the Giveaway
We are gifting 15 Lifebree Smart Health Watches. These watches support wellness with activity tracking, heart rate monitoring, and sleep insights. Winners will be selected at random from eligible applications and contacted by email.
🎅 Important Notes
This giveaway is not sponsored, endorsed, or administered by Lifebree, Facebook, Instagram, or Google.
No purchase necessary.
Void where prohibited.
USA only.
Thank you for being part of our VEPTR family.
Happy Holidays from the Room to Breathe Foundation! 🎄💙

All watches are Lifebree brand black. Due to shipping restrictions this giveaway is limited to VEPTR families currently residing in the USA. This giveaway is not sponsored, endorsed, or administered by Lifebree, Facebook, Instagram, or Google.

02/17/2025

Hey everyone,
Let’s talk about our “medical binders”. Those big bulky binders with all our kids or even our adult kids have. Well, there is a new, easier way. You just need a little bit of technology know how.

We ( You the parent, or disabled adult ) can create URL codes (QR codes or short links) that contain vital medical information for disabled children. These can be used in medical ID bracelets, school IDs, backpacks, or emergency kits for quick access by caregivers, teachers, or emergency responders.
________________________________________
How to Create a Medical Info QR Code for a Disabled Child
1. Create a Secure Digital Medical Profile
Use an online document, form, or webpage to store critical medical information. Some options:
• Google Docs (shared with specific people)
• Google Forms (for easy updates)
• HIPAA-compliant platforms like CareClinic, AllergyPal, or MyID
• Personal webpage (hosted on a secure site)
What to Include:
✅ Child’s Name & Age
✅ Emergency Contacts (Parents, Guardians)
✅ Medical Conditions & Disabilities
✅ Allergies & Medications (Dosages, Instructions)
✅ Medical Devices (VEPTR, pacemaker, feeding tube, etc.)
✅ Communication Needs (Non-verbal, speech device, etc.)
✅ Doctor & Hospital Info
✅ Emergency Action Plan (Seizures, breathing issues, etc.)
________________________________________
2. Generate a QR Code or Short URL
Once you have a secure online document, you can generate a QR Code that links to it.
• QR Code Generators
o QR Code Monkey
o QR Code Generator
o Canva QR Code Maker
• Short URLs for Easy Access
o Bitly (e.g., http://bit.ly/JohnsMedicalInfo)
o TinyURL
________________________________________
3. Best Placement for the QR Code
• Medical ID Bracelet or Necklace (engrave the QR code)
• Backpack Tag or Keychain (laminated card)
• School ID Badge
• Wheelchair or Mobility Device Sticker
• Inside a Child’s Notebook or Communication Device
• Emergency Contact Sheet at Home or School
________________________________________
4. Security & Privacy
• Set view permissions on Google Docs (only those with the link can access).
• Use password protection if needed.
• Store sensitive data on a HIPAA-compliant platform if required.
________________________________________

02/12/2025

🌍 A Global Leap Forward in Pediatric Spinal Care 🌍

Over the past 20 years, VEPTR (Vertical Expandable Prosthetic Titanium Rib) implants have transformed the lives of thousands of children across more than 25 countries worldwide. This groundbreaking procedure offers children with severe spinal conditions a chance to grow, thrive, and lead more independent lives.

Each VEPTR implant represents not just a medical breakthrough, but a beacon of hope, strength, and resilience for children and families navigating complex challenges. The global reach of this life-changing innovation is a testament to the collective effort of doctors, families, and supporters everywhere.

We're honored to be part of this journey, and we remain committed to bringing vital resources and support to families facing these challenges. Together, we’re making a lasting difference. 💙✨