Getting the Better of Endometriosis

Getting the Better of Endometriosis Educating, advocating, and connecting policy, research, and patient voices to transform endometriosis care.

Come see me at FLARE Endo Art Expo | Flourish in Life through Art & Resources for Endometriosis | in New York City on Se...
08/26/2026

Come see me at FLARE Endo Art Expo | Flourish in Life through Art & Resources for Endometriosis | in New York City on Sept 17-19, featuring 35+ international artists!! 3 days and over 1,000 guests expected!!

🔥 3 days of art, live music, food, panels & more. Open to everyone.

✨️THURSDAY EVENING: a VIP, exclusive night with a 4 course meal included. Recieve your own copy of our founders book, and a guided experience of the book live.

✨️ FRIDAY MORNING: free-flow gallery tour with community resources and light refreshments.

✨ ️FRIDAY EVENING: music, hors d'oeuvres & meet the artists | *VIP* option includes self-care lounge + gift bag

✨️ SATURDAY ALL DAY: founders workshop on art as healing with her book, a catered artist lunch, afternoon panels with physicians, researchers & advocates

🎟️ https://flareendo.org/schedule
Code CHEL10 for 10% off

One session or the whole weekend, you choose. I really hope to see you there 💛

08/23/2026

Wait…FLARE has WHAT?! 👀

Global art. Live performances. Patient-led panels. keynote speakers. Advocacy, education, community, and a documentary in the making.

FLARE Endo is not simply an exhibition about endometriosis. It is an immersive weekend created by people living these realities, for everyone navigating them alongside us.

The art is created from lived experience. The conversations center patient voices. The performances bring these stories to life. Together, we are building something that cannot be recreated inside a traditional medical conference.

Come experience it for yourself.

📍 New York City
📅 September 17–19, 2026
🎟️ Tickets available through flareendo.org

✨️Use code CHEL10 for 10% off!✨️

Created by people living it.
For everyone navigating it.

They said my pain wasn't real, so they put me in a mental hospital instead.These artworks are a collection from those ye...
07/30/2026

They said my pain wasn't real, so they put me in a mental hospital instead.

These artworks are a collection from those years. I was institutionalized on 3 separate occasions, one time I put myself away because I was scared of myself. When being told you're crazy felt safer than another doctor saying nothing's wrong. When self harm made more sense than the pain no one would validate. When I drew monsters because at least on paper, someone could see them.

Charcoal was easier than color. Everything was black and white anyway.....sick or crazy, believed or dismissed.

It's been over 15 years. The monsters are still here. But now I'm sculpting something else. What it looks like to break through. Not past the pain. Through it, to the other side.

This September at FLARE, you'll see what hope looks like when it's built from grief. When patient artists stop hiding our darkness and start wielding it.

Your pain was always real. Your art proves it.
Join us!

Sept 17-19 | NYC | flareendo.org
Use code CHEL10 for 10% off your tickets!

Lumbar Spine MRI Day ✅️Today was one of those reminders that living with chronic illness isn't just about the diagnosis,...
07/15/2026

Lumbar Spine MRI Day ✅️

Today was one of those reminders that living with chronic illness isn't just about the diagnosis, it's about navigating the system.

I arrived at 5:30 a.m. for my 6:00 a.m. lumbar MRI, only to realize my Medtronic spinal cord stimulator ID cards were in my other purse. Since I had to have my MRI at the hospital instead of my spine clinic (their MRI is a stronger Tesla unit that isn't appropriate for my stimulators), the team wanted to verify every detail before moving forward. They did admit that this should have been done on the phone intake prior.

Unfortunately, Medtronic's spinal cord division wasn't open yet, so we waited. I pulled up my records through MyChart and shared everything I could, but the MRI technologist still wanted confirmation directly from Medtronic. Honestly, I can't fault him for that. He explained he wanted to make sure everything was documented correctly and, more importantly, that I was safe. As frustrating as the delay was, I'd much rather have a provider who double-checks than one who guesses.

By a little after 7:00 a.m., we finally reached Medtronic, confirmed my device, placed both stimulators into MRI mode, and completed the scan safely.

As for the results, there was some reassuring news. My lumbar MRI did not show significant spinal canal narrowing or nerve compression, and my previous L4-L5 findings appear relatively stable. That doesn't fully explain the symptoms I've been experiencing, but it does help narrow the search.

One finding that stood out was a prominent disc osteophyte complex at T11-T12. Because this was only partially visible on the lumbar MRI, the radiologist specifically recommended a thoracic MRI for better evaluation. Considering my long history of thoracic spine issues, that's likely where this investigation heads next.

One test rarely provides every answer, but every step helps complete the puzzle. Today ruled out some possibilities, highlighted another area that deserves a closer look, and reminded me that good medicine sometimes means taking a little extra time to do things safely.

Now, we wait for the next call. 💜

Help Us Bring FLARE to Life ✨️🎗A few months ago, FLARE was just an idea. This September, it becomes reality!We're launch...
07/15/2026

Help Us Bring FLARE to Life ✨️🎗

A few months ago, FLARE was just an idea. This September, it becomes reality!

We're launching FLARE (Flourish in Life Through Art & Resources for Endometriosis), a three-day exhibition in New York City that brings together art, education, advocacy, healthcare, and lived experience to change how people understand endometriosis.

We're currently looking for Founding Partners, sponsors, businesses, and community supporters who want to help bring this vision to life. Whether it's financial support, in-kind donations, resources, or introductions to potential partners, every contribution helps us move closer to opening day.

We're honored to have received an official proclamation from Senator Charles E. Schumer recognizing FLARE and its contributions to endometriosis awareness, education, and community engagement. FLARE also operates under a fiscal sponsorship with Endo Excision For All, allowing charitable sponsorships and donations through our nonprofit fiscal sponsor.

If this mission resonates with you—or someone you know—we'd love to connect.
🤍 Every partnership matters.
🤍 Every introduction helps.
🤍 Every share expands our reach.

If you'd like to learn more or explore partnership opportunities, send me a message or scan the QR code below to see the website. The last image has our founders information as well, feel free to let her know how you heard anout this event.

My name is Chelsea Hardesty, lead of Advocacy and Development and you can CC or email me directly at [email protected]

Together, let's make the invisible visible. 🎗
🔗 Flareendo.org

FLARE is growing, and there is room for you! We're welcoming sponsors, partners, healthcare professionals, foundations, ...
07/07/2026

FLARE is growing, and there is room for you!

We're welcoming sponsors, partners, healthcare professionals, foundations, and community collaborators who want to be part of something different.

This September in NYC, we're creating a space where patient artists lead the conversation. Where lived experience meets education. Where the endo community shows up, all together.

Three ways to build with us:
💛 Support community access
💛 Invest in education
💛 Champion patient artists

Partnership interest form is live.
Ticket waiting list is live.

Venue: (IG) ✨️

flareendo.org

Let's make this happen.
Comment or reach the DMs with any questions or for direct links. 🔥

After all that.... the billions in economic burden, the thousands per patient every single year.... we get $3.22 per pat...
07/03/2026

After all that.... the billions in economic burden, the thousands per patient every single year.... we get $3.22 per patient in federal U.S research funding.

That's what we're worth to the system. Mind you, this is 2018 cost adjusted, very conservative estimates, based on the historic 1 in 10. Emerging evidence suggests the true prevalence and burden may be substantially higher, with current models estimating closer to 35 million Americans and nearly 1 billion people worldwide.
(1 in7 or even 1 in 5)

This disease costs us everything, and we're still fighting for crumbs.

This is an example of a public health crisis hiding in plain sight. 💛🎗


advocates

06/24/2026

One minute they dismiss your pain and symptoms as you advocate for yourself.

Almost dying twice and 7 surgeries later, you're still here.

Then you create what they couldn't give you.... healing.

A year ago I was admitted to the hospital. Before another surgery that I had to travel across the country for, that would yet again save my life.

Now I'm part of both FLARE and Satirev, both are super unique creative projects built by other patients from the ground up. I have been involved on federal history marking endometriosis as a chronic systemic inflammatory disease as of FY26 with American End of Endo Project. I have had poster presentations at AGCES two years in a row. I have done amazing advocacy and research with Worldwide EndoMarch. I also co-hosted a span of travleing art galleries from NY with The Autoimmune Alliance, to CO at the State Capitol and a medical conference (AGCES) in NV. Headed back to NY this year with an even bigger vision!

This community has healed me in ways I never thought was imaginable. I found myself again.

The same fire. Different stories. One mission. 🔥

NYC. September 2026.
See you there?
flareendo.org
💛 🎨

What is FLARE?It's not just an art show.FLARE is a multidisciplinary storytelling platform dedicated to illuminating the...
06/23/2026

What is FLARE?

It's not just an art show.

FLARE is a multidisciplinary storytelling platform dedicated to illuminating the realities of endometriosis. The exhibition is just ONE piece.

We're actively publishing on the Substack journal, hosting podcast interviews with Inside FLARE | Endometriosis Podcast • Stories + Experts. We are building a range of wellness resources, and community connections all rooted in lived experience as knowledge and power.

Art. Storytelling. Community. Education. Advocacy.

This September, FLARE lands in New York City for it's first inaugural event. This is going to be a truly unique experience.

Satirev and American End of Endo Project are honored to be apart of this amazing initiative alongside many others, and we're just getting started. 💛🔥

Make sure you follow us all so you don't miss ANY updates. Tickets go live soon. Wait list is OPEN.

Flareendo.org

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Lancaster, OH

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