KT Foundation

08/29/2018

Here's a way to look at living with a rare disorder.

"This past year I’ve embraced my battered body and decided to listen instead. Turns out, she has a lot of wisdom to share!"

08/03/2018

Thought for the day....

07/29/2018

What an inspiring, life-changing event for the KT (and all with complex vascular malformations) community.

Pictured left to right:
Doug Albert - KT buddy
Mellenee Finger- K-T.org Public
Berlange Presilus - B-Revealed
Arianna Faro - One Limp At A Time Klippel-Trenaunay Syndrome
Adam Cole - KT Foundation

5 Advocates
1 Goal
1 Community
1 Family

07/29/2018

An evening view of the beautiful Mayo Clinic facility in Rochester, Minnesota.

07/28/2018

We've had a great day visiting with our friends at K-T.org Public for the first day of the 2018 KT Conference. Great job, everyone!

02/27/2015

Thank you to North Carolina Governor Pat McCrory for issuing a proclamation officially declaring February 28, 2015 as Rare Disease Day in North Carolina.

http://www.governor.state.nc.us/newsroom/proclamation/20150228/rare-disease-day

WHEREAS, there are nearly 7,000 diseases and conditions considered rare, each affecting fewer than 200,000 in the United States, according to the National Institutes of Health (NIH); and

04/04/2014

Many in the KT Community deal with these same issues. Sign the petition and share this status with all of your friends!

Deep vein thrombosis (DVT) and pulmonary embolism (PE) are preventable blood clots which affect over 600,000 Americans each year and cause more deaths than breast cancer and AIDS combined. Half of survivors have long-term complications.

03/04/2014

Being different is more than okay. We like to think of it in better terms...

Being different is okay. If we were all the same, life would be boring.

02/28/2014

Today is Rare Disease Day. Do you know someone living with a rare disorder such as Klippel-Trenaunay Syndrome? "Like" to show your support.

It’s a few minutes past midnight here on the East Coast of U.S. (where NORD is located) and do you know what day it is? Its Rare Disease Day! Are you ready to band together and observe Rare Disease Day? We’d love your support! Let us know what you will be doing to observe this special day.