The LCC Foundation

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The LCC Foundation is a nonprofit organization working to fund medical research and support LCC/Labrune Syndrome patients and their families. 🧬🦓🦄💗💙💜

11/01/2026

This year, we watched something incredible happen. 🌟

In St. Louis, families and researchers who'd each been pushing for progress finally sat in the same room, and the pace of everything changed. Together, we moved farther and faster than any of us could alone.

Now it's your turn to be part of the momentum.

📅 Save the date: Giving Tuesday is December 1, 2026. Our community is showing up BIG and we hope you’ll join us!

10/26/2026

💛💙 Derby day! 💛💙

Good luck to Fenerbahçe in today's big match against Galatasaray! The whole LCC Foundation family is cheering on the Yellow Canaries. Haydi Fener! 🐤⚽

Big thanks to the Fenerbahçe fans who are standing with us in the fight against rare brain disease.

Show your support here: givebutter.com/FenerbahceForLCC

10/25/2026

Fenerbahçe ailesine ve tüm oyunculara bu anlamlı destek için çok teşekkür ederiz! Tedavisi olmayan nadir bir beyin hastalığı olan LCC/Labrune Sendromu ile mücadele eden aileler için her bağış, umut veren araştırmalara destek oluyor.

Thank you to and every player for this incredible signed jersey. For families facing LCC/Labrune Syndrome, a rare brain disease with no cure, every gift funds the research that gives them hope.

https://givebutter.com/FenerbahceForLCC

10/23/2026

🎄✨ Merry & Connected: Holiday Zoom Party ✨🎄

Calling all women in the LCC community—moms, grandmothers, aunts, sisters, friends, and women living with LCC! Join us for a cozy evening of connection, laughter, and holiday cheer. ❤️

📅 Friday, December 11, 2026
⏰ 6:00 p.m. CT
📍 Zoom

Sign up here: https://forms.gle/zYrhkmqAjESkcV4NA

Grab your favorite drink, wear your comfiest festive pajamas, and take a little time for yourself alongside women who share a connection to LCC.

🎁 We’ll also be doing an ornament exchange! Please RSVP by November 18 so we can draw names for everyone planning to attend and leave plenty of time to send a little holiday cheer.

We are so excited to celebrate the season with you all! ❤️

10/20/2026

85% named funding as the #1 barrier to treatment. Behind that number, families are waiting for more options—and more time.

Your support helps the LCC Foundation advance research and bring treatment closer.

Together. Farther. Faster. 💙

10/19/2026

This product has been a game-changer for our family. I'm sharing in case it helps any other LCC families.

https://amzn.to/4ems1xH

*LCC Foundation is an Amazon Associate and earns 1% commission on purchases made through our links. Thanks in advance, and I truly hope the products we share help your family, too!

10/01/2026

Save the Date! Meet us in Rhode Island on April 4, 2027 for the event Funny for Funds to support our organization!

09/30/2026

💙 If you could send one word of encouragement to a family facing LCC, what would it be?

Drop your word in the comments.

06/11/2026

It’s been a fun-filled and productive 4 days in Boston with some of the most amazing and inspirational women. I’m glad I only have to wait a couple of weeks to see them all again. 💗

05/15/2026

🎙️ NEW EPISODE OUT NOW: The Brown Family’s LCC Journey 💙

In this heartfelt episode of The LCC Foundation’s podcast, The LCC Circle: Stories, Support, and Science, the Brown family shares their journey with Leukoencephalopathy with Brain Calcifications and Cysts — from diagnosis and daily life to resilience, hope, and the power of community.

Their story is a powerful reminder that no family should face rare disease alone. 💫

We are so grateful to the Brown family for opening their hearts and helping bring awareness to the realities of living with LCC.

🎧 Listen now and share to help us continue turning rare into remarkable. 👉 https://www.buzzsprout.com/2545566/episodes/19177471

Address

Lake Saint Louis, MO

Telephone

+16362489930

Website

http://www.thelccfoundation.org/, https://givebutter.com/FundLCCResearch, https://www.myriadcanada.org/en/project/suppor

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