04/30/2021
To date Place of Possibility Inc has impacted 40 families with children on hospice through Project Parent. I wish I could say that there were not way more that we have not connected with. The fact is that terminal and chronically debilitating diagnosis are not exclusively experienced by the elderly population, Many parents are faced with the words similar to those we heard “ your child has _________ it is a terminal condition, there is no chance of surviving” Some families begin the journey with more hope and possibility than that but at some point the stark situation begins to shadow the possibility once hoped for. These families have children on hospice.
One of our most recent families is in the thick of their journey right now. After an all-clear following early treatment, Damon’s cancer once again presented and is proving to be resistant to treatments. This week, this brave young man, is once again starting a new course of therapy.
There is no conveying the emotions and feelings of a parent who is watching their child on this horrendous journey. Most are not in a place to be vulnerable and share their hearts and experience with others. Damon and his family however have chosen to do just that.
I do not have opportunity to meet most of the families we serve, but circumstances have led to us connecting and let me tell you, Damon is a remarkable young man and his parents are doing all they can to help him. I’d like to introduce you to Damon, his parents Brian and Kat and his 5 siblings through some photos and this most recent post from his Dad.
“Since the last chemo wasn’t working Damon started Doxil, a variant of a previous chemotherapy he was on. This chemo comes with several severe side effects. One being you feel like you’re on fire while it’s being administered, therefore Damon was packed with ice during the treatment.
It was a very long day for Damon. It started at 6:30 am with blood draw and then an echocardiogram. Then over to treatment where he is given other drugs to help with side effects and then the chemotherapy. He did not get back home until 5:30 p.m., an exhausting day. He has been sleeping since he got home.
The news was difficult to hear and Damon is still processing it and trying to accept that his treatments are not over. We are waiting on imaging to send records to Children’s Hospital in Philadelphia, insurance finally approved a second opinion visit there.
Damon will get scans again in two months. The time between scans is nerve wracking. It is so difficult to wait and wait to see if another treatment is working just to find out things are getting worse. I find myself staring at my sons face, memorizing his face, his smile, his expressions. I am torn apart inside seeing my baby boy going through this. He keeps a very good attitude; I don’t know how he does it.
Damon will have a story aired on channel 3 news in May. Thank you to Dave Chudowsky for the interview and Sydney from Place of Possibility for helping to arrange it. I will post an update when we find out what day it will air.