Alyse Naquin Foundation

08/24/2026

Just wanted to update! God is so so Good!
Today was Alyse’s first day of school as she continues her studies in college as a Junior pursuing a degree in kinesiology to one day become a PA- Physician’s Assistant.
She has had a very eventful summer…..working at an out patient surgery center (getting her medical hours to apply to PA school in the spring), babysitting, traveling with friends, shopping, moving into a PRECIOUS condo with one of her sorority sisters!

She is BUSY! And enjoying every minute of this second chance at life she has been given.

We are still traveling back and forth to Cincinnati- May, Aug and next up December. Finally getting to spread out those visits with the hopes of being able to transfer to Adult care LOCALLY soon! She is still doing monthly labs in which her Kidney levels remain FANTASTIC!
She is battling a virus (that of course is just a cold for you and I, but it could hurt her kidney) so they are watching those levels very closely. Praying they dissipate soon and NEVER return!

Thank you all for praying for Alyse and her kidney “Leo” as she continues to LIVE HER LIFE- so thank you Jesus!!

05/28/2026

ONE WHOLE YEAR!
365 days since Alyse got a second (ok third) chance on LIFE!
Today is Alyse’s kidney-versary.
May 27/28, 2025 will forever be the day(s) that showed Alyse there is so much life left to live!

May 27th was THE CALL, angel flight to Cincy, and the start of surgery for her to receive her new kidney.
May 28th is the day she awoke with a brand new/ healthy working kidney named “Leo”.

We celebrated Tuesday night at another (new to us) restaurant in Cincinnati- OTR (Over the Rhine) called Alcove to finish with her fav- chocolate cake lol

Wednesday, she had an ultrasound of her heart followed by an IVIG infusion.
They said because the medications they use after transplant knocks the immune system so much, sometimes a little boost is needed.

Thursday, she had an ultrasound of her kidney (actually got to see Leo and Linda!) followed by a doctors appt.

EVERYTHING is looking great! All kidney levels, blood levels, cholesterol levels, and both ultrasounds are NORMAL!
(Creatinine 0.57)
It’s been a long time of hearing “normal”- and Alyse has ROCKED her NEW NORMAL!

Changes this appt?
She gets to stop some meds she’s been on since transplant, decrease steroids and we are having to increase one and repeat labs in a week.
Otherwise, repeat labs every month and next appts are AUGUST AND DECEMBER! Hallelujah! Alyse asked for this so she doesn’t have to miss class, as with college classes getting more intense as she is now a junior! (Her first semester back in-person and finished with 5-As and 1-B)

Hopefully we can slowly cut ties with the pediatric kidney world as we begin transitioning into the adult kidney world- LOCALLY.
But, for now, Alyse and Cincinnati children’s/ Dr. Varnell still have “joint custody” of Leo.
Always a scary time, because they have taken such good care of him so far and we need to continue to take good care of him.

Alyse has been LIVIN LIFE! TRULY enjoying all the things this life has to offer….
We CAN NOT thank EVERYONE enough for the prayers- they have truly carried ALL of us and for the donations that helped us get back and forth to Cincinnati for the last year- hopefully only a handful of trips left!

As we head back home today, I can not stop thinking of how GOOD OUR GOD IS!

God is so so GOOD! Thank you Jesus! I pray Alyse has many many more medically uneventful years of life left with Leo!

04/26/2026

Happiest of Birthdays to our very own ALYSE NAQUIN! May your twenties be the very best years yet! I know you surely will try!
Cheers to 20 years!
Keep spreading those wings and living life to THE FULLEST!

04/17/2026

For the last 9years, Alyse and I have been traveling a lot together. Always around appointments, admissions, procedures, and with and without equipment and a dialysis machine!
We have gone from home to New Orleans LA, Houston TX, Wilmington DE, Cincinnati OH…..wherever 🤪 FSGS brought us.
We still go every other month to check on “Leo” who is STILL happy as a lark!

This weekend with got the privilege, AND the HONOR, to travel to Chicago IL to speak to the amazing employees of Travere Therapeutics. Just one day after getting the VERY FIRST FSGS drug FDA approved! They got to hear from a patient and caregiver just what living with FSGS is really like- to help give them a PURPOSE of ALL their hard work!
I’d say we NAILED IT- ending with a standing ovation!
(Who would have thought we could talk- for 54 minutes straight? Not me lol)

Thank you Kelly Helm and Travere for thinking of us! We hope we lit a big fire in your hearts! We surely enjoyed our time in the Windy City!

04/13/2026

Big strides in medicine today for people with Alyse’s original disease, FSGS. Praying she never has to use it (because Leo is happy and Healthy) but knowing the FIRST EVER drug was approved today is a BIG DEAL!

04/08/2026

God is GOOD!!!

https://www.facebook.com/share/p/17hmP3B8HS/?mibextid=wwXIfr

After years of battling a rare kidney disorder, 19‑year‑old Alyse Naquin is finally healthy enough to stand by her sister’s side at her wedding.

Read more from Meg Farris: https://www.wwltv.com/article/news/health/lafayette-family-finds-healing-and-hope-thanks-to-hogs-for-the-cause/289-fa1bf7c2-8855-4237-8ad6-9235accdd427?utm_medium=social&utm_source=facebook_WWLTV

03/23/2026

We are here in Cincinnati Ohio today for our monthly check but this time labs before the follow up appointment. 🙏

It has been 10 whole months of Alyse rockin “Leo”. She has been doing soooo good! Enjoying life- finally having the energy and stamina to do all the college girl things- and that’s EVERYTHING PHI MU has to offer lol.

She is back IN person this semester of college, babysitting/ tutoring, and enjoying time with friends and family!
Praise God! Good is good! And Alyse is truly LIVING PROOF of the power of Prayer! Thank you for continuing to pray for Alyse and a long healthy life with “Leo”. Thank you Jesus!