Foundation for Casey's Cure/ Alliance Against HMERF

03/04/2026

💕A SPECIAL SHOUT OUT TO OUR TWO NEW MONTHLY RESEARCH PARTNERS! 💕

Because of your $25/month donation, we are that much closer to buying the wearable trackers that will provide valuable data to our team about Casey's current health and her progressive decline, which will become a valuable informationas we move toward an investigational trial... Thank you so very, very much...💕

Join us here 👉 👉 👉 https://gift.idonate.com/alliance-against-hmerf/ResearchPartner

Wellstar West Georgia Medical Center

03/03/2026

🌍🐾 Happy World Wildlife Day! 🎉 Today, we celebrate the beauty of our planet’s incredible creatures and their habitats. Let’s honor nature's gifts by embracing conservation. 🌿✨ Share your favorite wildlife moments and remember: every small action counts! Together, we can protect our wild friends! 🌺💚

03/03/2026

Muscular Dystrophy... Myopathy ...? What's the difference?

03/01/2026

It’s the last day of . There’s still time to give.

https://gift.idonate.com/alliance-against-hmerf/ResearchPartner

02/28/2026

Thank you so much to our newest monthly Research Partner! We're only 7 Partners away from our goal of 20 Monthly Research Partners by the end of today, the last day of Rare Disease Month.

Think of helping HMERF patients as if they were sisters, brothers, cousins, husbands or wives... These patients have lineages of 7 and 8 people who have died from or face a death very similar to the painful death of ALS patients. Very different diseases but very similar outcomes. Long and painful suffering.

https://gift.idonate.com/alliance-against-hmerf/ResearchPartner

Your donation of $25, $10, or $5/month will sustain our work by creating continuity in funding we can use to sign new contracts to continue the work..,

I challenge you to look at your family member and ask yourself: would I want to have people save them? You can... so please... give today.

02/21/2026

We began this month with 2 Monthly Research Partners supporting our translational development work. Today, we have 12.

We are 8 away from reaching 20 — the stable base that allows us to move forward with our next-stage A*O development milestone.

Rare Disease Month ends in one week. If you’ve been considering stepping forward, now is the time.

Become a Monthly Research Partner at $25 per month and help keep this work moving.
🔗 Link in bio.

02/08/2026

Coming soon !! 👇

01/09/2026

This is an important message family and friends of patients with neuromuscular disorders like(NMDs) with common types including Muscular Dystrophies (like , , ), Motor Neuron Diseases ( , Muscular Atrophy), Neuropathies ( -Marie-Tooth, -Barré), and Neuromuscular Junction Disorders ( Gravis).

01/09/2026

https://gift.idonate.com/alliance-against-hmerf/FillingTheFundingGap

We've lost our NIH grant that would fund the next leg of research and take us to the FDA. Click to read more.

1,021 Followers, 389 Following, 137 Posts - See Instagram photos and videos from Alliance Against HMERF- ! ()

01/01/2026

If you've stopped to read this, this is the woman and family from Point Pleasant NJ whose life and family we're trying to save- We need 100 people to give $25/month to cover our research costs until major funding comes through. Please read our story- see how your small donation can help... https://gift.idonate.com/alliance-against-hmerf/FillingTheFundingGap You're not saving one family, you're saving all HMERF families that fear this terrible inherited disease.

Muscular Dystrophy UK Muscular Dystrophy Association Muscular Dystrophy News Followers City of LaGrange Georgia Government Chromalloy The Atlanta Journal-Constitution Atlanta News First Star News Group - The Coast Star | The Ocean Star | Starnewsgroup.com Point Pleasant Fire Department Station 75

12/31/2025

Losing our grant money is... and could be.. a research altering event. Find out how even a small donation can help....https://gift.idonate.com/alliance-against-hmerf/FillingTheFundingGap