The As One Foundation

05/29/2026

Texas Children’s Hospital & Baylor College of Medicine is inviting members of the sickle cell community to make their voices heard! 🩸✨

The goal of this study is to better understand what a successful transition of care looks like for individuals living with sickle cell disease and to evaluate tools that can improve the transition process for patients and providers. This important work will help fill gaps in knowledge and improve care using tools within the electronic medical record.

They are looking for:
▪️ Community-based organizations advocating for sickle cell disease
▪️ Patients or caregivers living with sickle cell disease
▪️ Advocates for individuals with sickle cell disease

Participants will join one online focus group (about 1 hour 30 minutes) at a convenient time. Each session will include 8–10 participants. Discussions will be confidential, securely stored, and recordings will be destroyed after transcription. All responses will remain anonymous.

This research is sponsored by the American Society of Hematology Research Collaborative.

💳 Compensation: Participants will receive a $30 gift card for their time.

If you’re interested in participating, please register here:
🔗 https://redcap.research.bcm.edu/redcap/surveys/?s=WPKEDYC7NHYFPAD3

Thank you for helping advance research and improve care for the sickle cell community.

If you have any questions about the study, please contact:
• Fred Iyamu, Project Manager at Baylor College of Medicine: 832-824-0185
• Venee Tubman, MD MMSc: Study Co-PI, Baylor College of Medicine: 832-824-4287
• Raymona Lawrence, DrPH, Study Co-PI, Foundation for Sickle Cell Disease Research: 561-605-5458

05/27/2026

Join us for the 2026 Houston World Sickle Cell Day Juneteenth Jubilee Health Fair & Blood Drive on Saturday, June 20, 2026! ❤️💛💚

📍 Acres Homes Multi-Service Center
6719 W Montgomery Rd, Houston, TX 77091

Every blood donation can make a difference for individuals living with sickle cell disease. Your support helps save lives, spread awareness, and strengthen our community. ❤️

Scan the QR code to register and be part of this impactful event! We can’t wait to see you there! 🙌🏾

05/25/2026

Today, we honor and remember the brave men and women who made the ultimate sacrifice for our freedom. 🇺🇸❤️

This Memorial Day, As One Foundation stands in gratitude for the heroes who served our country with courage, strength, and sacrifice. Their legacy will never be forgotten.

As we gather with loved ones today, let us also take a moment to reflect, remember, and give thanks to those who gave everything for our nation. 🕊️

Forever grateful. Forever remembered.

05/22/2026

Did you miss the SCALATE Empowerment Group? Watch here!

https://www.youtube.com/watch?v=SjtM3bZL_yo

Have You Heard About the Texas Sickle Cell Registry? Big changes are happening in Texas and the sickle cell community deserves to be informed, engaged, and p...

05/21/2026

JOIN US TONIGHT! It’s almost time💪🏾💪🏾💪🏾
🚨 Have You Heard About the Texas Sickle Cell Registry? 🚨

Big changes are happening in Texas and the sickle cell community deserves to be informed, engaged, and part of the conversation.

Join us for the May SCalate Empowerment Group as we welcome special guests from the Texas Department of State Health Services for an important discussion:

💡 Texas Sickle Cell Registry: A Brief Introduction

🗓 Thursday, May 21, 2026
🕢 7:30 PM EST
💻 Register at the link in bio!

🎙 Featured Speakers:

🔹 Victoria Salinas, MPH
Medical Research Specialist
Texas Department of State Health Services

🔹 Prashant Sharma, MBA
Business Analyst
Texas Department of State Health Services

During this interactive session, we’ll discuss:
✔ What the Texas Sickle Cell Registry is
✔ Why it matters for individuals and families affected by sickle cell disease and trait
✔ How the registry is being developed
✔ Opportunities for community feedback and input

📣 This is your opportunity to learn, ask questions, and make your voice heard.

Bring your curiosity. Bring your questions. Bring that one thing you’ve been wondering about.

SCalate creates space for learning, storytelling, and connection across the full spectrum of sickle cell experiences.

05/19/2026

🚨 Have You Heard About the Texas Sickle Cell Registry? 🚨

Big changes are happening in Texas and the sickle cell community deserves to be informed, engaged, and part of the conversation.

Join us for the May SCalate Empowerment Group as we welcome special guests from the Texas Department of State Health Services for an important discussion:

💡 Texas Sickle Cell Registry: A Brief Introduction

🗓 Thursday, May 21, 2026
🕢 7:30 PM EST
💻 Register here: https://us02web.zoom.us/meeting/register/tZYpfuyurT0jEtYpL0T_U0S4HgNTWAQdl18i #/registration

🎙 Featured Speakers:

🔹 Victoria Salinas, MPH
Medical Research Specialist
Texas Department of State Health Services

🔹 Prashant Sharma, MBA
Business Analyst
Texas Department of State Health Services

During this interactive session, we’ll discuss:
✔ What the Texas Sickle Cell Registry is
✔ Why it matters for individuals and families affected by sickle cell disease and trait
✔ How the registry is being developed
✔ Opportunities for community feedback and input

📣 This is your opportunity to learn, ask questions, and make your voice heard.

Bring your curiosity. Bring your questions. Bring that one thing you’ve been wondering about.

SCalate creates space for learning, storytelling, and connection across the full spectrum of sickle cell experiences.

05/18/2026

We extend our deepest condolences and prayers on the passing of Rose Bailey-Millard, a beloved staff member of the Sickle Cell Community Consortium and a cherished member of the sickle cell community. 🕊️❤️

She was a phenomenal woman whose grace, wisdom, compassion, strength, honesty, and unwavering love touched countless lives. She brought comfort, warmth, laughter, and light into every room she entered.

Through her advocacy, kindness, and the way she embraced people like family, Rose leaves behind a legacy that will forever live on in this community.

Rest peacefully, Aunt Rose. Your impact will never be forgotten. 🕊️