Cystic Fibrosis Foundation - Heart of America Chapter

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Cystic Fibrosis Foundation - Heart of America Chapter

We're helping to advance the Cystic Fibrosis Foundation’s mission to cure cystic fibrosis. Welcome to the official page of the Heart of America Chapter!

08/20/2026

Join us for a rooftop view of the sun setting over the Kansas City skyline and enjoy refreshing cocktails, delicious small plates and live music.

New this year! We have individual ticket options! Grab your friends, family and co-workers and join us for an evening of great conversation, exceptional tastings, and impactful connections.

Get your tickets here: https://events.cff.org/KCLIBATIONS

08/19/2026

Help us meet our biggest match goal yet! Between now and Dec. 31, your new or increased annual fund gift is doubled, up to $270,500—and you can help us get there. Your gift helps support:
• Critical research to find modulators for people who can’t benefit from them now—and a cure that works for everyone
• Accredited care centers that people with cystic fibrosis and their families count on
• Educational resources and practical support through Compass

Give directly: https://rva-photo-booth.my.canva.site/2026annualmatch

08/13/2026

In 2001, a baby born with cystic fibrosis had a median predicted survival of 35 years. Today, that number is 66. But we’re not done until we have treatments for everyone with CF—or a cure that eradicates it. Your gift can help us get there. New and increased gifts are doubled through Dec. 31, up to $270,500. Link in bio or visit https://rva-photo-booth.my.canva.site/2026annualmatch

08/11/2026

Join ROSE UP — a flexible fundraiser built around you. Pick any activity and do it on your schedule to help cure cystic fibrosis.

For a limited time, you can double your impact! When you raise $250 for ROSE UP, the Delaney Binker Family Cure Cystic Fibrosis Miami Foundation will match it with an additional $250 donation. This match is available to the first 80 participants who raise $250 and will run through Dec. 20, 2026 or until all matches are claimed.

Every dollar raised helps fuel innovative research, high-quality care, and essential programs that improve the lives of people with CF today. Register now for ROSE UP: https://on.cff.org/4w5BTTz

08/05/2026

Help us meet our biggest match goal yet! Between now and December 31, your new or increased annual fund gift is doubled, up to $270,500—and you can help us get there. Your gift helps support:

•Critical research to find modulators for people who can’t benefit from them now—and a cure that works for everyone
•Accredited care centers that people with cystic fibrosis and their families count on
•Educational resources and practical support through Compass

Give directly: https://rva-photo-booth.my.canva.site/2026annualmatch

07/29/2026

For most of his life, Schyler Kline's rare cystic fibrosis mutation didn't qualify for any modulator therapy. This year, his care team found one that might help — proof that research keeps reaching mutations once written off as too rare to bother with. Your gift helps find the research that gives hope to Schyler and everyone still waiting for a cure. New and increased gifts to the Annual Fund are doubled through Dec. 31, up to $270,500. Give directly at https://rva-photo-booth.my.canva.site/2026annualmatch

07/24/2026

Join the next CF Circle July 28 at 7 p.m. ET for a virtual, small-group conversation focused on navigating gastrointestinal (GI) challenges.

Adults with cystic fibrosis, parents, and caregivers are invited to connect with others about GI-related issues, including digestion, bloating, constipation, stomach pain, reflux, nausea, and more.

07/24/2026

Get ready to raise your paddle and your bid card! Our Western dinner's Live Auction will feature exclusive experiences, one-of-a-kind packages, and exciting items you won't want to miss. Join us at Shoot for a Cure's Western dinner on August 7 at Fiorella's Event Space in Overland Park to participate.

Escape to The Mayan Palace in Riviera Maya or Nuevo Vallarta or Puerto Penasco, Mexico for a memorable 7-night getaway for up to four guests (2 adults and 2 children under 12 years old) along Mexico's stunning Caribbean coast. Surrounded by lush jungle and pristine white-sand beaches, this expansive resort offers a wonderful mix of relaxation and fun. Experience the comfort and elegance of the Studio Master Suite at the Mayan Palace, designed to be your peaceful retreat amid tropical surroundings. This thoughtfully appointed suite offers a spacious layout with modern touches. The suite features a one-bedroom studio, one bathroom and a private balcony where you can soak in serene views. Staying at The Mayan Palace grants you access to an array of exclusive amenities from sparkling pools and gourmet dining to wellness facilities and family-friendly activities ensuring a memorable and effortless vacation.

Join us for the Shoot for the Cure - Western Dinner on August 7 at Fiorella's Event Space in Overland Park so you can make your bid for any of our Live Auction items! Tickets are available at -- https://events.cff.org/kcshoot

07/24/2026

The Shoot for a Cure Live Auction is packed with incredible experiences, exclusive packages, and one-of-a-kind items—but there's one catch...You have to be there to bid!

Don't miss your chance to take home something amazing while making a difference for those living with cystic fibrosis. Grab your seat at our Western Dinner and get ready to raise your paddle for a great cause.

Treat your friends, family, and fellow wine lovers to a private wine class at Total Wine & More for up to 20 people in the classroom of their store. Total Wine & More will host an event that is certain to impress you and your guests. Enjoy a tour of the land, and learn about the famed appellations and grape varietals that make each region so unforgettable. Taste a variety of our premium, hand-selected wines, and discover hidden treasures from the wine region of your choosing. One of our wine experts will present and discuss each delicious wine during your two-hour class, which can be arranged as a seated class-style or more casual walk-around event. Total Wine & More will provide all necessary stemware and educational handouts for tasting notes. Continue your wine education at home when you host a few friends at your house and treat them to a delicious smoked salmon. Dennis Horner, who is a master at smoking meat and fish and has won awards for his smoked salmon, will prepare this smoked salmon.

Join us for the Shoot for the Cure - Western Dinner on August 7 at Fiorella's Event Space in Overland Park so you can make your bid for any of our Live Auction items! Tickets are available at -- https://events.cff.org/kcshoot

Address

2405 Grand Boulevard
Kansas City, MO
20814

Website

http://www.cff.org/kansascity

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