Adan's Dream Team

Adan's Dream Team Adan has been battling multiple obstacle's in his life. At birth he was hospitalized with respiratory distress. The next 24 hours provided no comfort.

He was placed on life supported and remained in the hospital until he was 2 months. After a short 1 week stay at home for Christmas his condition deteriorated and he was once again hospital and placed on life support. At 4 months the intensive care team determined that nothing else could be done to help improve his condition. As parents we were informed to make a decision as to how long we wanted

to continue with life support. The only hope was going to the childrens hospital in St Louis for an evaulation for transplant. With the Lords blessing he received a bilateral lung transplant on June 6 2009 at 8 months. After a 6 month stay in St Louis he was well enough to return home. Even with a lung transplant he was still battling numerous rounds of pneumonia, RSV, viral infections, and complications due to transplant. On August of 2011 Adan was transported by jet to St Louis to undergo a open lung biopsy in search for answer to his diclining health. On 8-31-11 he emerged out of surgery without complications, that is until midnight. He went from being a smiling happy kid to going into complete cardiac and respirtory faiulre in a matter of 2 hours. He was rushed to the ICU where he was placed on life support and was medically paralized. His health was declining at a record pace. As the head attending Dr told us, he was by far their sickest patient on the floor. Being that we already were in the ICU he was the sickest kid in the enitre hospital. The constant rush of Dr's in and out of his room was overwhelming. Sleep was the last thing on our mind. Lung transplant surgery was a big ordeal yet this seemed to be his biggest fight for his life. Every hour either his heart or his lungs would give in. Finally we had an answer: PULMONARY VEIN STENOSIS. A very rare and regretably fatal condition that causes his pulmonary vein to thicken until theres complete blockage. Its a process that his body will continue to do time after time. Even if he would receive another lung transplant his body will continue to thicken the walls of his veins. Friday Sepetember 4 the goal was to pray that Adan's body could hold on long enough until 12 noon so he could go into the cath lab so the cardiologist could go in and ballon dialate his veins. That morning the team informed us that it seemed that Adan would not make it 'till noon. We were told to say our goodbyes to him when he was 4 months and I never imaged that I would have to do it again. We were told to say our goodbyes and prepare for the worst. 12 noon came around and Adan was still with us. The walk to the cath lab was torture. I didn't know if that was going to be the last time I was my son again. After 2 hours the Dr asked to speak to us in private. My heart was pounding and I was fearful of what he would have to say. Adans right side of his heart had started to stop working. His left side could not hold the work of both sides, the only hope was to put him on eckmo; the heart and lung bypass machine that allows for the machine to do all the work of his heart and lungs. Being on eckmo is going to the extreme. He was already on life support and eckmo only complicated things. He could have irreversable brain damage. It was a difficult decision but we weren't ready to give up. 6 long hours later Adan came out of the cath lab on life support and eckmo. He had complete blockage in his right pulmonary artery that required a stent. All 4 pulmonary veins were stenosed and almost completly blocked. His lower right lung and right side of his heart had stopped working. It was a MIRACLE that Adan was still with us. After 48 hours of being on the monster machine (eckmo) Adan was stable enough to have the 2 tubes placed in his neck removed. Even though he was stable he was still critical. He was still on life support and required numerous medications to keep him well. After several failed attempts for taking him off life support, finally 8 days later he was taken off of life support. His body had taken a great beating and he started to show signs of withdrawl. Also he had a mini stroke from being on eckmo that caused him to have numerous neurological symptoms. 20 long days in the ICU but finally 9-20 he was transfered out of the unit. Adan always beat the odds and emerged smiling and victourious.

After almost 10 years of reading countless  poems, posts, quotes, books, and listening to heaps of advice; I have to say...
03/19/2021

After almost 10 years of reading countless poems, posts, quotes, books, and listening to heaps of advice; I have to say, this is #1 on my list. Although this poem is tedious and lengthy , every word bleeds emotion. It may seem somber and melancholy but for a mother who has experienced loss, it provides comfort and serenity. Freeing the soul and peace for the heart. Yolanda Vazquez

I am a mother. I am a bereaved mother. My child died, and this is my reluctant path. It is not a path of my choice, but it is a path I must walk mindfully and with intention. It is a journey through the darkest night of my soul and it will take time to wind through the places that scare me.
Every cell in my body aches and longs to be with my beloved child. On days when grief is loud, I may be impatient, distracted, frustrated, and unfocused. I may get angry more easily, or I may seem hopeless. I will shed many, many, many tears. I won’t smile as often as my old self. Smiling hurts now. Most everything hurts some days, even breathing.
But please, just sit beside me.
Say nothing.
Do not offer a cure.
Or a pill, or a word, or a potion.
Witness my suffering and don't turn away from me.
Please be gentle with me.
And I will try to be gentle with me too.
I will not ever "get over" my child's death so please don’t urge me down that path.
Even on days when grief is quiescent, when it isn't standing loudly in the foreground, even on days when I am even able to smile again, the pain is just beneath the surface.
There are days when I still feel paralyzed. My chest feels the sinking weight of my child's absence and, sometimes, I feel as if I will explode from the grief.
Losing my child affects me in so many ways: as a woman, a mother, a human being. It affects every aspect of me: spiritually, physically, mentally, and emotionally. There are days when I barely recognize myself in the mirror anymore.
Grief is as personal to me as my fingerprint. Don't tell me how I should or shouldn’t be grieving or that I should or shouldn’t “feel better by now.” Don't tell me what's right or wrong. I'm doing it my way, in my time. If I am to survive this, I must do what is best for me.
My understanding of life will change and a different meaning of life will slowly evolve. What I knew to be true or absolute or real or fair about the world has been challenged so I'm finding my way, moment-to-moment in this new place. Things that once seemed important to me are barely thoughts any longer. I notice life's suffering more- hungry children, the homeless and the destitute, a mother’s harsh voice toward her young child- or an elderly person struggling with the door. There are so many things about the world which I now struggle to understand: Why do children die? There are some questions, I've learned, which are simply unanswerable.
So please don’t tell me that “ God has a plan ” for me. This, my friend, is between me and my God. Those platitudes slip far too easily from the mouths of those who tuck their own child into a safe, warm bed at night: Can you begin to imagine your own child, flesh of your flesh, lying lifeless in a casket, when “goodbye” means you’ll never see them on this Earth again? Grieving mothers- and fathers- and grandparents- and siblings won’t wake up one day with everything ’okay’ and life back to normal. I have a new normal now.
As time passes, I may gain gifts, and treasures, and insights but anything gained was too high a cost when compared to what was lost. Perhaps, one day, when I am very, very old, I will say that time has truly helped to heal my broken heart. But always remember that not a second of any minute of any hour of any day passes when I am not aware of the presence of my child's absence, no matter how many years lurk over my shoulder, don’t forget that I have another one, another child, whose absence, like the sky, is spread over everything as C.S. Lewis said.
My child may have died; but my love - and my motherhood - never will. Dr. Joanne Cacciatore

04/05/2020
Another bucket list trip in the books for teddy. Watched the sunset at the Grand Canyon
02/01/2020

Another bucket list trip in the books for teddy. Watched the sunset at the Grand Canyon

02/16/2019

One of the best videos I’ve seen

12/18/2017
12/16/2017
11/17/2017
04/13/2016

Just look at them now. Through the selfless act of strangers, these children -- now healthy and happy -- were given the gift of life. They're the subject of a new photo series by Children's Healthcare of Atlanta (CHOA). Each child was photographed pre- and post-organ transplant. The kids were...

What a great invention for all my gtube soldiers 😊
02/07/2016

What a great invention for all my gtube soldiers 😊

for some families, we never stop being "mom" or "dad". It's not that grieving parents are holding on to the past or not ...
12/16/2015

for some families, we never stop being "mom" or "dad". It's not that grieving parents are holding on to the past or not moving forward, it's difficult to continue life as if our child never existed. Although we are completely aware that our child is no longer with us physically in this world we still have that bond between parent and child that will never die.

Praying that this will work.  Anything that gives you more time is a blessing
11/09/2015

Praying that this will work. Anything that gives you more time is a blessing

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