The Magical Mila Foundation

The Magical Mila Foundation *Dedicated to the beautiful life and memory of Mila Gray Roomberg

*Raising awareness of NF1 and high blood pressure in infants and toddlers

✨ Every bit of Butterfly Ball magic starts with generous supporters like these. 🦋 Thank you so much for helping our drea...
06/03/2026

✨ Every bit of Butterfly Ball magic starts with generous supporters like these. 🦋 Thank you so much for helping our dreams take flight. 💫

There are more sponsorship opportunities available! DM us if you’re interested in supporting this beautiful gala on Saturday, November 7, 2026 💖🌈🦄

06/01/2026

AUCTION ITEMS ARE COMING IN! 🎟️🎶🦋 We are a little over a month out from our biggest fundraising event of the year at Maynard's Cafe'! Check out some of the amazing featured items up for grabs. We’re so excited to party with you all…tickets will be on sale soon! Thanks, Rachael Nadler, for showing us around! 💫💖🌈

Introducing the Magical Mila Sticker Bean ✨🦋🌈 Inspired by Mila’s love of butterflies, rainbows, and everyday magic. Your...
05/30/2026

Introducing the Magical Mila Sticker Bean ✨🦋🌈

Inspired by Mila’s love of butterflies, rainbows, and everyday magic. Your kids are going to be obsessed! A portion of proceeds benefits MMF 💖 Grab them before they’re gone at the link in our bio!

Memorial Day weekend is here, which means we’re just two months away from the most magical night of the summer!One night...
05/23/2026

Memorial Day weekend is here, which means we’re just two months away from the most magical night of the summer!

One night. One cause. Endless summer magic. Join us on FRIDAY, JULY 31, 2026, at Maynard’s in Margate, NJ, for the 8th Annual Magical Mila Foundation Summer Fundraiser. 🦋🦄🩷

Back by popular demand, Bruce Springsteen favorite The Eddie Testa Band 🎸🎤🎶 Plus, enjoy sweet treats from The Gourmet Vendor, a glitter bar, face painting, games, a photo booth, and so much more.

We can’t wait to celebrate with you and make more magic together. ✨

This World Hypertension and NF Awareness Day, we are raising awareness of NF1 and the importance of early detection. Wit...
05/17/2026

This World Hypertension and NF Awareness Day, we are raising awareness of NF1 and the importance of early detection. With early monitoring and the right medical care, many children with NF1 can receive the support they need to thrive.

No parent should feel alone when searching for answers. 💜

🦋🦋🦋🦋
05/17/2026

🦋🦋🦋🦋

The Ben Franklin Bridge is lit pink tonight for Neurofibromatosis Awareness Month.

Neurofibromatosis (NF) is a group of genetic disorders that cause tumors to grow along nerves throughout the body.

The Magical Mila Foundation

05/15/2026

is TOMORROW! 💖

The City of Philadelphia will light up PINK in memory of Mila and to shine a light on The Magical Mila Foundation, , and . 🦋

Witness the magic tomorow Saturday, May 16th as we come together to spread awareness, love, and hope.

We’re honored to support the Renovascular Hypertension and Aortic Disease Program at !Programs like this are incredibly ...
05/14/2026

We’re honored to support the Renovascular Hypertension and Aortic Disease Program at !

Programs like this are incredibly rare and vital for children facing complex vascular conditions. This work is deeply personal to us.

Mila was diagnosed with renovascular hypertension and midaortic syndrome, rare complications of NF1 that caused her high BP. At the time, specialized care like this wasn’t available locally, and our family had to seek treatment out of network at the University of Michigan.

Now, programs like this are growing, giving more families access to life-changing treatment closer to home. We’re grateful to be part of it.

BIG NEWS 🩺✨We’re officially expanding beyond Children's Hospital of Philadelphia!!In partnership with the BP Under 3 tea...
05/11/2026

BIG NEWS 🩺✨

We’re officially expanding beyond Children's Hospital of Philadelphia!!

In partnership with the BP Under 3 team, we delivered 6 toolkits to Princeton Nassau Pediatrics in New Jersey—a huge step forward in making sure high-risk children under 3 are getting the monitoring they deserve.

More awareness. More action. More little lives protected. 💕🦋🦄

Address

101 Greenwood Avenue, Suite 202
Jenkintown, PA
19046

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