Spina Bifida of Jacksonville

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10/19/2026

Did you know that some babies diagnosed with spina bifida undergo fetal surgery while they are still in their mother’s womb, usually between 22 and 26 weeks of pregnancy??

During this incredible procedure, surgeons carefully repair the opening in the baby’s spine before birth, helping protect the spinal cord and potentially improving the baby’s long-term outcomes.

These tiny warriors undergo a journey unlike any other. They have surgery before they ever take their first breath, before their parents get to hold them in their arms, and before they open their eyes to the world. 💛

That’s why these precious babies are often described as being “born twice.” First, they undergo a life-changing surgery while still in the safety of their mother’s womb. Then, they are born into the world, ready to begin the next chapter of their incredible journey. 💛

Behind every one of these babies is a family filled with courage, hope, and a love so powerful it begins fighting for their child before they even meet face to face.

Their stories remind us that miracles don’t always begin with a first cry. Sometimes, they begin with a tiny heartbeat, skilled hands, and a brave decision. 💛

To every spina bifida baby, every brave mama, every family navigating this journey, and every medical team making these miracles possible: your strength, your courage, and your story matter.

10/14/2026

❄️💛 Spina Bifida is often called the “snowflake birth defect” because no two journeys are exactly alike. 💛❄️

We may have different challenges, different abilities, and different stories, but we are connected by something beautiful: a community filled with strength, resilience, love, and understanding. 💛

No two snowflakes are alike, and neither are two people with Spina Bifida. Yet, in our differences, we find connection, support, and a sense of belonging. We celebrate each other’s victories, lift each other up through challenges, and remind the world that our differences are not limitations on our worth. 💛

Let’s continue raising awareness, breaking misconceptions, and making every voice in the Spina Bifida community heard. Every story matters. Every person matters.

Every snowflake belongs. ❄️💛

💛

10/13/2026

Did you know that there are three main types of Spina Bifida?

Each type is different, and raising awareness helps us build understanding, compassion, and support for everyone affected. 💛

The 3 Main Types of Spina Bifida:

💛 1. Myelomeningocele – The most severe and most common form, where part of the spinal cord and nerves protrude through an opening in the spine.

💛 2. Meningocele - A form in which the protective membranes surrounding the spinal cord push through an opening in the spine, usually without the spinal cord itself being inside the sac.

💛 3. Spina Bifida Occulta - Often considered the mildest form, where there is a small opening in the vertebrae, usually without an exposed sac. Many people may not even know they have it.

Why does awareness matter?

Because behind every diagnosis is a person, a family, a story, and a journey that deserves understanding and love. Spina Bifida affects everyone differently, and no two journeys are exactly alike.

Let’s spread knowledge, break down misconceptions, and remind those living with Spina Bifida that they are seen, valued, and supported.

10/07/2026

Did you know spina bifida is the most common permanently disabling birth defect of the nervous system?

Behind every diagnosis are incredible people and families filled with strength, resilience, courage, and joy.

This month, let’s raise awareness, celebrate milestones, and amplify voices!!!

Help us spread the word:
💛 Share this post
💛 Drop a 💛 in the comments

Together, we can make a difference.

10/05/2026

Spina Bifida develops very early in pregnancy - often within the first month - when the spine and spinal cord do not form properly.
That tiny window of development can have a lifelong impact. Behind every diagnosis is a person, a family, a story, and a community filled with strength, resilience, and hope. 💛
Every conversation helps replace uncertainty with understanding and reminds our community with one important fact - you are not alone.
Did you know? Now you do.
Share this fact to help spread awareness and keep the conversation going.
Together, we can learn more. Support more. Advocate more. 💛

10/05/2026

Did you know October is Spina Bifida Awareness Month?💛

October is a special opportunity to raise awareness, share knowledge, celebrate resilience and shine a light on the Spina Bifida community.💛

Throughout the month, we’ll be sharing weekly posts dedicated to Spina Bifida.

Whether you or someone you love is living with Spina Bifida, you’re a caregiver, healthcare professional, advocate or simply someone who wants to learn more- we encourage you to follow along!.💛

Together, we can spread awareness and understanding.

Stay tuned each week throughout October as we learn more about Spina Bifida together!💛

Thank you Dave and Busters and all of our SBJ families for helping us kick off the school year in A+ style! ✏️ 🍎 🎉
08/23/2026

Thank you Dave and Busters and all of our SBJ families for helping us kick off the school year in A+ style! ✏️ 🍎 🎉

We are incredibly excited to introduce our newest team member, Amber Suttle, our Development and Fundraising Coordinator...
08/20/2026

We are incredibly excited to introduce our newest team member, Amber Suttle, our Development and Fundraising Coordinator.
A little bit about her…

Hello there!

My name is Amber - I'm a Jacksonville native, wife, and proud mom to an incredible daughter. Family is at the heart of everything I do, and some of my favorite days are the simple ones - getting lost in a plant nursery, spending time at the beach or pool, or visiting the library to pick out my next read. If you ever see me with a camera in my hands, I'm probably capturing the little moments that often become the most meaningful memories.

For many years, I've worked in customer service, as well as nonprofits and have attended nursing school. I discovered that my greatest strength isn't just solving problems ~ it's connecting with people. I've always been someone who leads with empathy and compassion, and I believe everyone deserves to feel heard, supported, and understood. I naturally find myself putting myself in others' shoes, and I try to make every interaction a positive one.

I'm excited for the opportunity to bring my creativity, heart, and passion for helping others to the spina bifida community. I hope to be someone families can count on—not only as a resource, but as a friendly face who genuinely cares about them.

My goal is to help create meaningful connections, offer encouragement during difficult times. Remind people that they are not alone on this journey called life.

I look forward to being apart of the Spina Bifida community!

Happy 36th Anniversary to the Americans with Disabilities Act (ADA)! Did you know that the ADA National Network is a fre...
07/26/2026

Happy 36th Anniversary to the Americans with Disabilities Act (ADA)! Did you know that the ADA National Network is a free resource that provides information and training on the Americans with Disabilities Act? Learn more about the resources you can access here: adata.org/national-network

In a world full of walkers, we like to be rollers! Thank you Skate Station Funworks of Mandarin for a fun night! We had ...
07/18/2026

In a world full of walkers, we like to be rollers! Thank you Skate Station Funworks of Mandarin for a fun night! We had some rockstars on the rock wall too! 🛼💛🧑🏻‍🦽

Address

2970 Mercury Road
Jacksonville, FL
32207

Telephone

+19046999886

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