06/11/2026
On June 2, 2026, the Huntington’s Disease Society of America (HDSA) joined rare disease leaders, policy experts, patient advocates, and congressional offices for a congressional townhall briefing, “The Pathway to Cures and Treatments for Rare Diseases,” at the Rayburn House Office Building.
The event featured remarks and participation from Rep. Morgan Griffith and Rep. Jake Auchincloss, who joined advocates and rare disease leaders in discussing the importance of advancing meaningful pathways to treatments and cures for rare disease communities.
HDSA thanks the Congressional Rare Disease Caucus, Rep. Griffith, Rep. Auchincloss, congressional staff, patient advocates, and rare disease partners for their participation and commitment to advancing progress for rare disease communities.
To watch the full townhall briefing, visit: https://www.youtube.com/watch?v=EgBECsklK08
