Bind Up Batten Fund

Bind Up Batten Fund We are on a mission to raise awareness and funds for a treatment and eventually cure for CLN3 batten

Having a great summer so far! 🐍 Went to the Toledo zoo for a reptile experience. 🦯 working with BSBP with peers to train...
07/12/2026

Having a great summer so far!
🐍 Went to the Toledo zoo for a reptile experience.

🦯 working with BSBP with peers to train for the Labor Day walk across Mackinac bridge

🏙️ Columbus trip for Dr appt, stop at Big Fun and visiting friends.

☀️ visits with family, lake days and so much more

⛺️ he is now at camp with OUB (opportunities unlimited for the blind) for 11 days!

We’ve have some challenges and have resolutions in place but all in all Charleston is doing well and happy.

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Jackson, MI
49201

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