Scleroderma Outreach Northwest

Scleroderma Outreach Northwest Committed to those afflicted by Scleroderma, their families, caregivers, and medical providers.

A wonderful time was had by all at our annual community picnic. The weather was perfect, the food was yummy, the smiles ...
08/18/2026

A wonderful time was had by all at our annual community picnic. The weather was perfect, the food was yummy, the smiles were big, and the hugs were warm. Huge thanks to everyone who came out!

HUGE thanks to Stan Matsui for the amazing photos! He shoots nonprofit events and is an absolutely delightful human. Link to his website in the comments!

- FREE - FREE - FREE -2 TICKETS TO SARAH McLACHLAN TONIGHT 7PMCHATEAU ST. MICHELLE One of our Board Members donated thes...
08/08/2026

- FREE - FREE - FREE -

2 TICKETS TO SARAH McLACHLAN
TONIGHT 7PM
CHATEAU ST. MICHELLE

One of our Board Members donated these tickets.

Donation appreciated. Zelle, Venmo, Paypal accepted.

Text: 360-420-3999

08/07/2026

We are so excited to see everyone this weekend!

Take the SRF Scleroderma Health and Resources Survey! This new survey focuses on the day-to-day challenges of scleroderm...
08/04/2026

Take the SRF Scleroderma Health and Resources Survey!

This new survey focuses on the day-to-day challenges of scleroderma, your healthcare experiences, and the caregiving needs you rely on.

No matter how long you have lived with scleroderma, your responses can help researchers better understand the true burden of the disease, so future clinical trials and treatments focus on outcomes that matter most to people living with scleroderma and their families.

"This data has the potential to illuminate burdens faced by people living with scleroderma that have gone unrecognized. Closing the gap between patient experience and clinical development is only possible with direct feedback from those living with this disease. I encourage every person with this disease to take the time to complete it, and I thank you in advance for sharing your experiences," Luke Evnin,
PhD, Chairman of the Scleroderma Research Foundation.

08/03/2026

📢 Join Us for Our SONW Education Seminar!

Let’s Talk About Scleroderma Skin

If you or someone you love is living with scleroderma, we invite you to spend the day with us learning practical ways to support your health, mobility, and overall well-being.

📅 Tuesday, October 13, 2026
🕙 10:00 AM – 2:30 PM
📍 St. Luke's Community Health Center
2950 Squalicum Pkwy
Bellingham, WA 98225

🍽️ Lunch is included!

You'll learn about:

🧘 Yoga for Scleroderma
Discover gentle yoga techniques designed to improve flexibility, reduce stiffness, support breathing, and help manage common symptoms.

🥗 Nutrition for Your Skin & Body
Learn how nutrition can support healthier skin and overall wellness through vitamins, antioxidants, healthy fats, and other key nutrients.

🤲 Structural Medicine
Explore a hands-on approach to addressing pain, movement limitations, and structural imbalances to help improve daily function.

Featured Presenters

• Shelley Van Pelt, MSN, CNS, RN, FNTP – Certified Yoga Instructor living with scleroderma
• Spencer Belsvik – Licensed Massage Therapist & Structural Medicine Specialist
• Robyn Pipkin – Structural Medicine Specialist & Certified Yoga Instructor

Whether you're newly diagnosed, have been living with scleroderma for years, or are supporting a loved one, this seminar offers valuable education, practical tools, and an opportunity to connect with others in the scleroderma community.

For questions or to learn more, contact:
📧 [email protected]
📞 360-708-2787

We hope you'll join us for this informative and supportive day.

Come spend an afternoon connecting with others in the scleroderma community. Whether you're living with scleroderma, sup...
07/28/2026

Come spend an afternoon connecting with others in the scleroderma community.

Whether you're living with scleroderma, supporting a loved one, or simply want to meet new people, we'd love to see you there.

We'll provide:
🥪 Light Refreshments
🌻 Great company
💜 A welcoming community

Attendance is free, donations are always appreciated to help us continue providing support, education, and community events throughout the year.

Please invite your family and friends—we look forward to spending the afternoon together!

We are quickly trying to secure a date and location that works better for our community members. Stay tuned for a new an...
07/14/2026

We are quickly trying to secure a date and location that works better for our community members. Stay tuned for a new announcement! Thank you for your patience as we try to bring as many people together as we're able to.

UPDATE: New time! Hope to see you between 12 - 4pm!
07/09/2026

UPDATE: New time! Hope to see you between 12 - 4pm!

Address

14401 Issaquah-Hobart Road , Suite 103
Issaquah, WA
98027

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