Scleroderma Outreach Northwest

06/01/2026

Last chance! Register now for Healthy Strategies for Coping with Chronic Illness TOMORROW, June 1st at 6 pm CST! Have you or has someone you love been emotionally or mentally affected by a scleroderma diagnosis? Join us for this free online workshop that will include a presentation on coping strategies followed by a group discussion where you can ask questions and share your perspective. Led by Dr. Judy Wilen, Clinical Psychologist and consultant to the Northwestern Scleroderma Program, you don’t want to miss this opportunity to build resilience and connect with others who understand. Register today at:
https://us02web.zoom.us/meeting/register/wNgCk_f1TYG0AEujTjNumw

05/31/2026

The Denver Stepping Out to Cure Scleroderma Walk is ONE WEEK AWAY!

There is still time to register!

Register at:
https://events.scleroderma.org/event/sodenverco2026

COME WALK WITH US!

05/30/2026

LEARN, GROW, and CONNECT with us! You don’t have to do this alone.
Join us. Add your voice to something bigger. Join our nationwide Scleroderma Advocacy Team! As an advocate, you'll have the opportunity to share your story and advocate on behalf of people living with scleroderma and related conditions.

Learn more here: https://www.stopscleroderma.org/advocacy

05/30/2026

05/30/2026

05/30/2026

World Digestive Health Day highlights the importance of gut health in overall wellbeing 💙🍽️

Digestive symptoms can have a real impact on daily life, especially for people living with chronic and autoimmune conditions.

05/30/2026

Sign up for our newsletter to keep up with us! We are in Nevada, Illinois, Texas, North Carolina, South Carolina, Washington, New York, British Columbia, Ontario, and Taiwan. Get all the info on our in person and virtual events, with registration and join links right in your inbox. Lots of classes coming up, plus new playlists on our Podcast and YouTube channels. Join link: http://eepurl.com/i9nv9

05/30/2026

All Standing Yoga Class with Haley Pilkington, yoga teacher living with scleroderma.
Free zoom class, July 8, 2026, 6:30pm ET, 3:30pm PT.
Bring your wall, sturdy chair, or hiking sticks, this is an all standing class. This is a live class and we don't record it, so turn your video on and ask your questions. All the practices are GERD friendly and have options so you can choose one that works for you.
Registration at https://www.yogaforscleroderma.com/events

Meet Haley Pilkington when she is not practicing or teaching yoga:
I’m Haley and I’m a New York based actor, writer and model. I grew up in North Jersey, and found my passion for the arts through singing and playing piano. My first role ever was when I was 11 years old playing Young Fan in ‘ A Christmas Carol’, and I have been acting and creating ever since.

I have an MFA in Acting from East 15 Acting School in London, UK, where I lived for two years. There, I had the opportunity of performing at multiple theatres in London, including Shakespeare’s Globe, the Bridewell Theatre, and the Corbett Theatre. Since returning to the states I have been writing a One Woman show that explores my journey with Scleroderma and Pulmonary Hypertension.

In addition to my love for theatre and acting. I am a model devoted to spreading body positivity throughout my work. I have Scleroderma Morphea on my left arm/ left side of my body and modeled in a zine called ‘Female on Film’ that honored 10 models' journeys with body image."

I am drawn to projects that embrace all the imperfections of humanity and explore the mind-body connection."

05/30/2026

Clinical trial eligibility can sometimes seem confusing, but the criteria for enrolling are rooted in the science of how scleroderma progresses.

In many clinical trials, only patients who were recently diagnosed are included. This is because many diseases change over time, both in the rate of progression of the disease and the symptoms experienced. For a clinical trial, it is important to have a relatively homogenous population, meaning a group of patients in similar stages of the disease and experiencing similar symptoms. This makes it easier to detect differences in disease activity during the study between those receiving the experimental drug and those receiving a placebo.

In addition, there are specific reasons for limiting disease duration in scleroderma studies. Early-stage scleroderma is characterized mostly by inflammation, while later stage disease is dominated by fibrosis. Most clinical studies focus on enrolling one of these two populations, depending on how the experimental drug is expected to work.

While not everyone can join every trial, each study contributes to the larger body of knowledge that will ultimately benefit all scleroderma patients. Every piece of research builds on previous findings, paving the way for new, more inclusive trials and better treatments.

Learn more about clinical trials on our website, linked in the first comment below.