Texas Neurofibromatosis Foundation

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Texas Neurofibromatosis Foundation We are committed to meet the needs of people challenged with neurofibromatosis.
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Austin, here we come!The Texas Neurofibromatosis Foundation and Children’s Tumor Foundation are excited to provide the 2...
10/15/2026

Austin, here we come!

The Texas Neurofibromatosis Foundation and Children’s Tumor Foundation are excited to provide the 2026 Annual NF Symposium to patients, their families, educators, and caregivers affected by NF.

Saturday, November 14, 2026
9am-12:30pm
Check in Begins at 8:30am

Dell Children's Medical Center
4900 Mueller Blvd
Austin, TX 78723

The NF Symposium is half day program designed to address many of the endless concerns of NF.
You won’t want to miss any of this valuable information, so register today!

Deadline to register is November 7. 2026

Use this link to register:
https://forms.gle/epfPxDgnr5THi51j8

📢 Join Us for the Next NF Collective Community Webinar: Productive Conversations with Healthcare ProvidersCommunicating ...
10/09/2026

📢 Join Us for the Next NF Collective Community Webinar:

Productive Conversations with Healthcare Providers

Communicating with your healthcare team is an important part of navigating your NF journey. Join us for a FREE virtual webinar focused on helping patients and caregivers feel more prepared, informed, and confident when speaking with their healthcare providers.

🎤 Featured Speaker: Kristen Clark, Patient Education Manager at Alexion Pharmaceuticals, who brings over 25 years of healthcare experience.

Hosted by: Zane Morgan, NF Mentor with the Littlest Tumor Foundation.

📅 Wednesday, October 28, 2026
⏰ 6:00–7:00 PM CT / 7:00–8:00 PM ET
💻 Virtual Webinar

Learn how to prepare for appointments, ask meaningful questions, and communicate effectively with your healthcare team to make every conversation count!

🔗 Register here:

https://bit.ly/NFcollectiveWebinarConversations

We hope you’ll join us for this informative discussion!

You still have time to register for tomorrow's webinar!Join us Wednesday, September 30th, for The State of NF in Texas a...
09/29/2026

You still have time to register for tomorrow's webinar!

Join us Wednesday, September 30th, for The State of NF in Texas and Beyond ⭐, a free virtual discussion on how the Children's Tumor Foundation and Texas Neurofibromatosis Foundation work together to support the NF community.
Hear directly from CTF and Texas NF leadership about:
◾ What's actively moving forward in NF research and drug development, and where funding makes the difference
◾ Support for families on the ground, and why that local work matters
◾ How research and community insight inform each other
◾ Why this moment calls for continued investment in both organizations

📅 Wednesday, September 30
🕑 1:00 PM CT / 2:00 PM ET

Live captioning will be provided.

Register today:
https://tinyurl.com/2vf9j5ev

The Texas Neurofibromatosis Foundation and Children’s Tumor Foundation are excited to provide the 2026 Annual NF Symposi...
09/29/2026

The Texas Neurofibromatosis Foundation and Children’s Tumor Foundation are excited to provide the 2026 Annual NF Symposium to patients, their families, educators, and caregivers affected by NF.

Saturday, November 14, 2026
9am-12:30pm
Check in Begins at 8:30am

Dell Children's Medical Center
4900 Mueller Blvd
Austin, TX 78723

The NF Symposium is half day program designed to address many of the endless concerns of NF.
You won’t want to miss any of this valuable information, so register today!

Deadline to register is November 7. 2026

Use this link to register:
https://forms.gle/7FXsDJBSdks9HN447

Don't miss out!Join us Wednesday, September 30th, for The State of NF in Texas and Beyond ⭐, a free virtual discussion o...
09/28/2026

Don't miss out!

Join us Wednesday, September 30th, for The State of NF in Texas and Beyond ⭐, a free virtual discussion on how the Children's Tumor Foundation and Texas Neurofibromatosis Foundation work together to support the NF community.
Hear directly from CTF and Texas NF leadership about:
◾ What's actively moving forward in NF research and drug development, and where funding makes the difference
◾ Support for families on the ground, and why that local work matters
◾ How research and community insight inform each other
◾ Why this moment calls for continued investment in both organizations

📅 Wednesday, September 30
🕑 1:00 PM CT / 2:00 PM ET

Live captioning will be provided.

Register today:
https://tinyurl.com/2vf9j5ev

There is still time to register!Join us Wednesday, September 30th, for The State of NF in Texas and Beyond ⭐, a free vir...
09/24/2026

There is still time to register!

Join us Wednesday, September 30th, for The State of NF in Texas and Beyond ⭐, a free virtual discussion on how the Children's Tumor Foundation and Texas Neurofibromatosis Foundation work together to support the NF community.

Hear directly from CTF and Texas NF leadership about:
◾ What's actively moving forward in NF research and drug development, and where funding makes the difference
◾ Support for families on the ground, and why that local work matters
◾ How research and community insight inform each other
◾ Why this moment calls for continued investment in both organizations

📅 Wednesday, September 30
🕑 1:00 PM CT / 2:00 PM ET

Live captioning will be provided.

Register today:
https://tinyurl.com/2vf9j5ev

💙💛 WE ARE SO GRATEFUL!Thanks to our incredible Texas NF community and supporters, we raised $13,000 during North Texas G...
09/18/2026

💙💛 WE ARE SO GRATEFUL!

Thanks to our incredible Texas NF community and supporters, we raised $13,000 during North Texas Giving Day!

We came just shy of our $15,000 goal, but we couldn’t be more thankful for everyone who gave, supported our campaign, and helped raise awareness for NF!

Your generosity helps Texas NF continue providing support, education, advocacy, programs, scholarships, NF Family Camp, research funding, and opportunities for connection across Texas. 💛

📖 Dare to Share Your Story reminded us just how powerful every NF story can be—and how much stronger we are when our community comes together!

💛 THANK YOU for being part of our story 📖! 💙

💛 From all of us at Texas NF—THANK YOU! 💙For weeks, we asked our community to Dare to Share Your Story 📖—and you answere...
09/18/2026

💛 From all of us at Texas NF—THANK YOU! 💙

For weeks, we asked our community to Dare to Share Your Story 📖—and you answered in more ways than one.

You read their stories. You shared them. You raised awareness. You gave. And most importantly, you reminded our NF families that they are surrounded by a community that cares. 🫶

While we came just shy of our $15,000 goal, we are incredibly grateful for every single person who helped make this North Texas Giving Day so meaningful.

Because of YOU, Texas NF can continue providing programs, education, advocacy, resources, scholarships, NF Family Camp, fund research, and provide opportunities for connection for individuals and families impacted by NF across Texas. 💗

📖 North Texas Giving Day may be one chapter, but our story doesn’t end here…

Together, we’ll keep turning the pages, sharing the stories, and writing what comes next.

From our Texas NF family to yours, thank you for being part of our story! 💛💙

📖 THE FINAL CHAPTER IS STILL BEING WRITTEN… 💙💛We’re down to the FINAL 30 MINUTES of North Texas Giving Day!All day, we’v...
09/18/2026

📖 THE FINAL CHAPTER IS STILL BEING WRITTEN… 💙💛

We’re down to the FINAL 30 MINUTES of North Texas Giving Day!

All day, we’ve shared stories that show what Texas NF is all about—the people, the families, the connections, and the community that make our mission so meaningful.

Now, there’s still time for YOU to become part of the story.

Every gift helps Texas NF continue providing support, education, advocacy, patient programs, Family Camp, scholarships, and opportunities that bring our NF community together.

⏰ Just 30 minutes remain. Let’s finish this chapter STRONG!

💛 Dare to Share Your Story. Help us write the next chapter together and reach our $15,000 Goal!

💙 Give to Texas NF: https://www.northtexasgivingday.org/organization/Texas-Neurofibromatosis-Foundation

📱 TEXT TO GIVE: Text TexasNF, TXNFF, DareToShare, or DaretoShareYourStory to 844-844-6844 to GIVE TODAY!

💛 Want to get involved? Create your own fundraising page or event on the Texas Neurofibromatosis Foundation North Texas Giving Day fundraising page:

https://www.northtexasgivingday.org/organization/Texas-Neurofibromatosis-Foundation

🚨 ONE HOUR LEFT!!!One hour. One gift. One opportunity to make a difference for Texans impacted by NF. 🫶If you’ve been wa...
09/18/2026

🚨 ONE HOUR LEFT!!!

One hour. One gift. One opportunity to make a difference for Texans impacted by NF. 🫶

If you’ve been waiting to give, this is your moment to help us reach our $15,000 GOAL! ⏰

💛 Help us finish North Texas Giving Day strong and continue writing a future filled with greater awareness, support, research, connection, and hope.

💙 Give to Texas NF: https://www.northtexasgivingday.org/organization/Texas-Neurofibromatosis-Foundation

📱 TEXT TO GIVE: Text TexasNF, TXNFF, DareToShare, or DaretoShareYourStory to 844-844-6844 to GIVE TODAY!

💛 Want to get involved? Create your own fundraising page or event on the Texas Neurofibromatosis Foundation North Texas Giving Day fundraising page:

https://www.northtexasgivingday.org/organization/Texas-Neurofibromatosis-Foundation

Address

5000 Riverside Drive, Building 6, Suite 100E
Irving, TX
75039

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+19727396086

Website

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