Texas Neurofibromatosis Foundation

08/31/2026

📖 Chapter 1: Meet Matt

Matt was diagnosed with NF1 at just five years old. His journey has included surgeries, learning challenges, vision problems, chronic pain, and neurofibromas—but through it all, Matt continues to look toward the future with hope.

His story is also a reminder of why continued NF research and access to new treatments matter so much!

This North Texas Giving Day, we Dare to Share stories like Matt’s because behind every diagnosis is a person, a family, and a future worth fighting for.

💙 Help us continue supporting Texas NF Patients like Matt and reach our GOAL of $15,000!

💙 Give to Texas NF: https://www.northtexasgivingday.org/organization/Texas-Neurofibromatosis-Foundation

📱 TEXT TO GIVE: Text TexasNF, TXNFF, DareToShare, or DaretoShareYourStory to 844-844-6844 to GIVE TODAY!

💙 Want to get involved? Create your own fundraising page or event on the Texas Neurofibromatosis Foundation North Texas Giving Day fundraising page:

https://www.northtexasgivingday.org/organization/Texas-Neurofibromatosis-Foundation

08/28/2026

🔬 NF1 RESEARCH OPPORTUNITY!

Baylor College of Medicine is recruiting participants for a new research study focused on early detection of cutaneous neurofibromas (cNFs) using light-based photographic skin imaging.

Who can participate?
Individuals with cutaneous neurofibromas who are 13 years or older.

Participants will help researchers study the use of AI and imaging for skin conditions and will receive $50 compensation + free parking.

📍 Baylor College of Medicine – Houston, TX
📧 [email protected]
📞 713-798-7430 ext. 87430

If you or someone you know may be interested, please contact the Baylor College of Medicine research team directly for additional information and eligibility details.

💛 Thank you for helping advance NF research! 💙

08/27/2026

Every person impacted by neurofibromatosis has a story.

A story of challenges and strength. Of uncertainty and hope. Of families, friendships, advocacy, research, and finding a community that understands.

This North Texas Giving Day, the Texas Neurofibromatosis Foundation is proud to launch our “Dare to Share Your Story” campaign.

Over the coming weeks, we’ll be sharing chapters from the lives of individuals and families in our NF community. Each story is unique, but together they show why the work of Texas NF—and your support—matters.

By sharing their stories, we hope to raise awareness, create connections, and remind every person impacted by NF that they are never alone.
📖 Follow along as we turn the page and meet the incredible people who make up our Texas NF family.

💙 Everyone has a story. Dare to share yours.

Support Texas NF during North Texas Giving Day:
https://www.northtexasgivingday.org/organization/Texas-Neurofibromatosis-Foundation

📱 TEXT TO GIVE: Text TexasNF, TXNFF, DareToShare, or DaretoShareYourStory to 844-844-6844 to GIVE TODAY!

💙 Want to get involved? Create your own fundraising page or event on the Texas Neurofibromatosis Foundation North Texas Giving Day fundraising page:
https://www.northtexasgivingday.org/organization/Texas-Neurofibromatosis-Foundation

Our Goal is $15,000! Help us meet our goal! 🏆

08/27/2026

💛 EARLY GIVING BEGINS TODAY! 💙

North Texas Giving Day Early Giving begins Thursday, August 27, and this year, the Texas Neurofibromatosis Foundation is inviting you to Dare to Share Your Story! 📖 Stay tuned for our patient stories!

Every person impacted by NF has a story—and every story 📚 has the power to raise awareness, create connection, and remind others in our NF community that they are never alone.

Your support of the Texas Neurofibromatosis Foundation helps us continue providing education, support, advocacy, family programs, scholarships, NF Family Camp, and so much more for individuals and families impacted by NF across Texas.

💙 Early Giving begins TODAY, August 27!
Give early, share our mission, and help us make a difference for the NF community.

GIVE TODAY: https://www.northtexasgivingday.org/organization/Texas-Neurofibromatosis-Foundation

Everyone has a story. Dare to share yours.

08/24/2026

08/24/2026

Back to School Webinar!

08/03/2026

Join us in San Antonio TOMORROW for our Chicken N Pickle Give Back Night! 🎉
📅 Tuesday, August 4
🕕 6:00–8:00 PM
📍 Chicken N Pickle - San Antonio

10% of all sales during the event will be donated to the Texas NF Foundation. Dine in or order to go at chickennpickle.com. Whether you're a seasoned player or trying it for the first time, come grab a paddle and try your hand at pickleball and let Chicken N Pickle take care of the cooking!

07/21/2026

Join us in San Antonio for our Chicken N Pickle Give Back Night! 🎉
📅 Tuesday, August 4
🕕 6:00–8:00 PM
📍 Chicken N Pickle - San Antonio

Enjoy a great evening of food, fun, and community while supporting the Texas NF Foundation. 10% of all sales during the event will be donated to the Texas NF Foundation.

Whether you're a seasoned player or trying it for the first time, come grab a paddle and try your hand at pickleball! We can't wait to see you there!

07/17/2026

Join The NF Collective for the second webinar in our educational series!

📅 Wednesday, July 22

🕖 7:00 PM ET

This webinar is free and open to everyone. We hope you'll join us for an informative and engaging discussion.

Register today: https://bit.ly/NFwebinarJuly2026