HD-CARE

HD-CARE is a UC Irvine all volunteer group supporting Huntington's disease research & patient care Please take a look at “A Year In Review” under “Events”.

Our inspiration has been driven by the compassion that UCI researchers have demonstrated. This, in turn, has motivated our families with courage to continue advocating for an HD treatment and one day to end the devastation of Huntington’s disease. HD CARE funded several preclinical studies in the Thompson lab to evaluate ways to slow or delay disease in stem cell and other models of the disease. These studies would not have been possible or performed as quickly without HD CARE support. HD CARE also provided support to two young researchers to attend a national HD meeting and support for scientists in the lab to carry out innovative studies. A grant was provided to Dr. Larry Marsh to complete an ongoing study to distinguish the toxic effects within different forms of the mutant HD protein in fruit flies and support provided to Dr. Joan Steffan for her work on how the normal function of HTT is compromised in HD and how one might restore that function. For 2017, HD CARE will also provide matching funds for a Phase I safety clinical trial in early stage HD subjects by Dr. Neal Hermanowicz. Through our Community Advocacy, we have raised greater support for HD Research, and by Educating the public about HD, we are doing our part to guard the dignity of the HD patient and furthering understanding of the disease, as well as promoting compassion and excellence of care for HD families. The fight goes on! We will remain steadfast in our vision of an HD-free tomorrow. Thank you for joining us in our fight to end Huntington’s disease, and here’s to a happy, peaceful and prosperous New Year!

09/23/2026

HD-CARE is pleased to announce our annual Portillo Children Memorial Pickleball Tournament, in honor of our Frances Saldana’s three children whose battle inspired her to start HD-CARE. The tournament will be held at the Fountain Valley Tennis & Pickleball Center on Saturday, October 17th, 2026 from 12-4 p.m.

Any level of player is welcome to join as we will have multiple brackets. Teams are guaranteed 4 games. We will provide snacks and refreshments. Prizes will be awarded to the top 3 teams in each bracket. You can register individually (we will pair you with another individual player) or as a team. Only 30 team slots are available, sign up today!

Register here: https://tinyurl.com/HDCAREPICKLEBALL

When: Saturday, October 17th, 2026, 12:00 - 4:00 p.m.

Where: Fountain Valley Tennis & Pickleball Center, 16400 Brookhurst St., Fountain Valley, CA

07/08/2026

https://news.prilenia.com/press-releases/press-release-details/2026/Prilenia-and-Ferrer-Announce-Initiation-of-the-Confirmatory-PRECISE-HD-Study-of-Pridopidine-in-Huntingtons-Disease/default.aspx

PRECISE-HD (Pridopidine Phase 3 Study to Establish Clinical Impact and Safety in Huntington’s Disease (HD)) is designed to further evaluate the efficacy and safety of pridopidine, an oral investigational drug, on disease progression, functional capacity, motor function, cognition, speech and Quali...

04/09/2026

You are invited to join us for our Spring Symposium Saturday, April 25, 2026 from 8:30am - 2 pm, in-person only at the UCI Sue & Bill Gross Stem Cell Research Center.

Registration: Registration is required. Please register today to secure your spot and feel free to share this invitation with your colleagues and friends who might be interested.

To register, please visit tinyurl.com/2026HDsymposium

We look forward to your participation in this informative event.
Event details provided on the attached flyer!

Melody Bandley,
President HD-CARE

Address

2644 Biological Sciences III
Irvine, CA
92697

Website

https://secure.give.uci.edu/donation/?COA1=004607&COA2, https://hdcare.org/

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