06/17/2026
It is with heavy hearts that we share the passing of our dear friend, advocate, and CF Fighter, Jen Weber.
Born in 1973 and diagnosed with cystic fibrosis at just 2½ years old, Jen dedicated her life to making a difference. She began volunteering with the Cystic Fibrosis Foundation at age 10 as an "Ambassador of Courage", and over the next four decades became one of the most influential voices in Indiana's CF community and beyond.
Jen served on the Indiana Chapter Board for many years, co-chaired numerous virtual CFF conferences, participated in national working groups focused on improving CF care, and tirelessly advocated for people living with cystic fibrosis. Her impact on our community is immeasurable.
Beyond her CF advocacy, Jen was an accomplished attorney who served the Indiana Supreme Court and used her talents to improve the lives of others. She founded Comfort Finders, a nonprofit that supports adults with CF and other chronic illnesses during hospital stays, and was deeply involved with the Indiana Donor Network, the World Transplant Games, and the Transplant Games of America.
Throughout her life, Jen faced challenges most people could never imagine, including three double-lung transplants. Yet she never stopped fighting—not just for herself, but for every person living with CF, every transplant recipient, and every family navigating difficult circumstances.
Jen embraced life with her trademark motto, "YOLO" — You Only Live Once — and encouraged others to do the same. She also ended nearly every message with a word that perfectly captured who she was: "Onward."
To Jen, onward meant moving forward with courage, purpose, and hope, regardless of the obstacles ahead.
While we did not achieve a cure during Jen's lifetime, we honor her legacy by continuing the work she cared so deeply about. The CF community is stronger because of Jen Weber, and her influence will continue to be felt through the countless lives she touched.
Thank you, Jen, for your leadership, your friendship, your advocacy, and your unwavering spirit.
Onward. 💜
