08/11/2026
Today, I packed Hugs from Hailey boxes for two little girls, Noelle and Chloe. They are 3 and 4 years old and both fighting DIPG/DMG.
I always read through each child's list of favorites before I start putting their box together because I want every hug to feel like it was chosen just for them. However, when I read Noelle and Chloeās lists, my heart caught a little. Their favorites included Elsa and Frozen, Minnie, Moana, Rapunzel, and Bluey.
As I packed their boxes, I kept thinking about how easily Hailey would have fit right in with them. I can picture the three little girls in princess dresses, probably changing costumes multiple times, singing, watching Bluey, and leaving a trail of toys behind them. I have a feeling they would have been fast friends.
Noelle and Chloe are the ages Hailey was when DIPG became part of our lives. I know what those ages are supposed to look like: the princess dresses and high heels, the stuffed animals piled everywhere, the dance parties, the crafts, and the big personalities packed into tiny bodies.
But I also know what those ages can look like after a DIPG diagnosis. No 3- or 4-year-old should have to fight this hard. They shouldnāt have to be brave just because adults are asking them to lie still for another MRI or radiation treatment. They shouldnāt have to know hospital rooms and medicine schedules. Their parents shouldnāt have to make decisions about treatments and trials while desperately trying to preserve as much of their childās childhood as they can.
When Hailey was fighting, the little things mattered so much. A new stuffed animal could make her whole day. A surprise package could give us something happy to focus on. A princess dress could turn a day filled with cancer into a day where, for a little while, she was simply Princess Hailey again.
Those moments didnāt fix anything, but they mattered. I think that is one of the reasons Hugs from Hailey means so much to us.
We canāt change Chloe and Noelleās diagnoses; I wish more than anything that we could. But we can pack fun boxes full of things chosen especially for them. We can send a little excitement to their doorstep and help give their families a moment when the focus isnāt on DIPG.
So today, I packed princesses, toys, and surprises for two little girls who remind me so much of our little princess. With every item I tucked inside, I thought about her, how much she would have loved helping me, and how desperately I wish none of these boxes ever needed to exist.
Until that day comes, weāll keep packing themāfor Chloe, for Noelle, and for every little princess and superhero who deserves so much more than the treatments we have to offer them. And always, for Hailey. š
-DeeDee Acevedo, Hailey's mom