For the Love of Lilly Lou, Inc.

For the Love of Lilly Lou, Inc. Raising Money for a CURE!!! Pelizaeus-Merzbacher-Like Disease (PMLD) doesn't just delay milestones—it slowly erases them. Will you stand with us? Donate now.

A baby’s first smile fades into uncontrollable eye movements. Tiny hands that once grasped toys grow stiff with spasticity. Often words never come, steps are lost, and families watch helplessly as their child’s hard-won abilities slip away, year by year, with no cure in sight.This ultra-rare, progressive leukodystrophy steals futures one quiet regression at a time. Parents hold their children tigh

ter, fighting fear, knowing time is running out. We are For the Love of Lilly Lou, Inc., born from love, grief, and fierce determination. We're racing to fund cutting-edge genetic therapy research to halt this thief and give these children back what PMLD takes. Every donation either fuels scientists working on breakthroughs that could stop the progression, preserve precious skills, and let kids laugh, play, and grow like they deserve or helps families affected by PMLD get the care they need. Will you stand with these brave families? Your gift today could be the moment a child keeps walking, speaking, or simply smiling longer. Together, we rewrite endings that feel inevitable. Share their stories. Be the hope they cling to. Because no child should fade away. →

Ms. Senior Alabama, Inc Sonja Enfinger 🩵CARING IS SHARING 🩵
05/08/2026

Ms. Senior Alabama, Inc Sonja Enfinger 🩵CARING IS SHARING 🩵

Our sweet school is having a Rummage Sale to improve their playground. If you are out and about in HSV tomorrow, swing b...
05/08/2026

Our sweet school is having a Rummage Sale to improve their playground. If you are out and about in HSV tomorrow, swing by!

Be sure to come by and support our MDO, Preschool & Kindergarten Playground Fundraiser! There is something here for everyone, come shop for a great cause! See you on Saturday!

We sure are grateful to Ms. Senior Alabama, Inc Sonja Enfinger for her support in helping spread awareness for Lilly Lou...
04/24/2026

We sure are grateful to Ms. Senior Alabama, Inc Sonja Enfinger for her support in helping spread awareness for Lilly Lou and others affected by PMLD. Your light shines bright ☀️ THANK YOU for taking the (cold) plunge for our girl!!!

Such a beautiful evening! 🩷💜🩷
04/23/2026

Such a beautiful evening! 🩷💜🩷

04/23/2026

💦 Ben Hoover WHNT 💙 Thanks for making a splash for our girl!

04/23/2026

What a great evening!!! We can’t thank everyone enough for coming out 💜🩷💜

We’re getting set up and we’re so excited. Don’t let parking detour you!!! There are places to park behind Tortora’s!
04/22/2026

We’re getting set up and we’re so excited. Don’t let parking detour you!!! There are places to park behind Tortora’s!

DUNKED!!! 🤩💦❤️We are overjoyed and deeply thankful to announce that the amazing Janine Taylor, Director of Epworth Mot...
04/22/2026

DUNKED!!! 🤩💦❤️

We are overjoyed and deeply thankful to announce that the amazing Janine Taylor, Director of Epworth Mothers Day Out / Preschool & Kindergarten in Huntsville, has generously volunteered to take the plunge in our dunking booth!

Janine is truly a gift from God to our family. When we first brought Lilly Lou to visit Epworth — nervous about how a private school would welcome a child with disabilities — Janine didn’t bat an eye. She welcomed us with open arms, worked tirelessly to make Lilly Lou feel comfortable, included, and loved every single day. She even nominated Lilly Lou for Hoover’s Heroes, shining a bright light on her story from the very beginning.

We are heartbroken at the thought of one day when Lilly Lou outgrows Epworth, because this school has become such a beautiful, supportive second family to her. Janine’s “go-get-’em” attitude and unwavering support have meant the world to us.

Epworth teachers and families — this is your chance 🤣! Come out and help give your wonderful director the splash she deserves (all in good fun, of course)! Let’s show Janine just how much her kindness and dedication mean to all of us.

“You are the light of the world… Let your light shine before others, that they may see your good deeds and glorify your Father in heaven.”
— Matthew 5:14, 16

This verse perfectly describes Janine — she truly shines her light everywhere she goes, and we are so grateful for it.

Join us for a joyful, family-friendly night on Wednesday, April 22, 2026, from 4:30 PM – 8:30 PM at Tortora’s Pizza (closes at 8 PM) & Tortora’s Wood Fired Grille in Owens Cross Roads!

Enjoy special drink and pizza deals (with a percentage of every sale donated to support Lilly Lou), kids crafts, the dunking booth, a silent auction, and delicious food for the whole family. Bring the kids, bring your Epworth crew, and let’s make memories while raising hope for Lilly Lou and every child fighting PMLD!

📍Tortora’s Pizza & Tortora’s Wood Fired Grille
182 Old Highway 431, Suite B, Owens Cross Roads, AL

Let’s pack the place, cheer on Jeanine (and all our dunking heroes), and celebrate community, kindness, and love! Tag your Epworth friends and come make a big splash together.

DUNKED!!! 📺🚰❤️We are bursting with gratitude and excitement to announce that the one and only Ben Hoover, Evening Anch...
04/21/2026

DUNKED!!! 📺🚰❤️

We are bursting with gratitude and excitement to announce that the one and only Ben Hoover, Evening Anchor at WHNT News 19 and host of Hoover’s Heroes, has kindly volunteered to take the plunge in our dunking booth!

Ben has been such an incredible champion for our family. He was the first journalist to shine a spotlight on Lilly Lou’s story in his heartfelt “Hoover’s Heroes” segment, and just last night he welcomed us into the studio for a live interview. With nearly 25 years of award-winning experience as an anchor, reporter, and producer across multiple markets, Ben uses his platform to highlight everyday heroes — and we feel so blessed that he’s chosen to stand with Lilly Lou too.

From the bottom of our hearts, thank you, Ben, for helping get Lilly’s story out to the community and for being willing to get absolutely soaked for a cause so close to our hearts. Who says news anchors can’t make a splash? We promise the water is nice and refreshing… mostly! 😉

And yes, Michael may have ran the segment a little long last night (to all who know him...IMAGINE THAT!)… so sorry, Ben! I hope the producers weren't too upset! We’re so grateful you let us share Lilly’s story, and we hope you’ll have us back on the air one day (maybe after we’ve practiced our timing a bit more)!

“Tell me the facts and I’ll learn. Tell me the truth and I’ll believe. But tell me a story and it will live in my heart forever.”

This is going to be such a joyful, family-friendly night! Join us on Wednesday, April 22, 2026, from 4:30 PM – 8:30 PM at Tortora’s Pizza (closes at 8 PM) & Tortora’s Wood Fired Grille (closes at 8:30 PM) in Owens Cross Roads. Enjoy special drink and pizza deals (with a percentage of every sale going to support Lilly Lou), crafts for the kids, the dunking booth, a silent auction, and delicious food for the whole family. Bring the kids, bring your smiles, and help us turn awareness into real hope for Lilly Lou and every child fighting PMLD!

📍Tortora’s Pizza & Tortora’s Wood Fired Grille
182 Old Highway 431, Suite B, Owens Cross Roads, AL

Let’s pack the place! Tag a friend and come make memories with us.

04/21/2026

Fighting for our girl everyday. Bring the family and come see us at Tortora's Wood Fired Grille and Tortora's tomorrow!

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