When I'm Better Foundation

08/07/2026

🎟️ Tickets are officially on sale!

Join us on Saturday, October 17, for an unforgettable evening at the When I'm Better Foundation's Tim Burton Gala.

Enjoy live music from No Green JellyBeenz, connect with renowned Intuitive Medium Erica Marks, and experience a one-of-a-kind night inspired by the imaginative world of Tim Burton — all while helping children and families facing DIPG/DMG.

Reserve your seats today before they're gone.

https://whenimbetter.org/events/tim-burton-gala/

08/05/2026

Although DIPG is most frequently diagnosed in children between the ages of 5 and 10, families can face this devastating diagnosis at other ages, too.

Younger children, teenagers and, in rare cases, adults can also develop DIPG. The broader category of diffuse midline glioma, or DMG, affects both pediatric and adult patients.

Age may shape someone’s experience with the disease, but it does not make a family’s need for answers, support or effective treatments any less urgent.

The age on a medical chart does nothing to lessen the weight of the diagnosis. Each person affected is another reason to keep learning, keep sharing their stories and keep pushing research forward.

07/29/2026

Today marks two years since Addison Bell gained her wings.

Addison faced with extraordinary courage and a selfless spirit. She dreamed of returning to school with her friends, going to concerts, traveling and living the life every teenager deserves.

Yet she was also deeply moved by seeing other children — younger, smaller children — struggling through their own battles. Addison’s last wish was to donate her tumor and brainstem to research, one final gift in the hope of helping future families.

Today, we celebrate her life, honor her legacy and remember the difference she continues to make.

Forever in our hearts. 💛

07/22/2026

No family chooses this journey.

We’re grateful for the outpouring of support and love.

Together, we can change the future and save families from learning these awful lessons.

Join us.

https://whenimbetter.org/

07/20/2026

This is a great event arranged by Different BREED MC. Hughesville MD. When I'm Better will be out and about during the day! Hope to see you there! 🎗🩶🎗

This Saturday!!! Who’s Ready to Ride! Poker Run Registration begins at 10:30. Check out our Silent Auction Sneak Peek

07/20/2026

Five years have passed, but Gavin Ward is never far from our hearts.

He was a car enthusiast, a collector, a loyal friend and a young man who never backed down from a single challenge that DIPG sent his way.

His journey continues to inspire us to fight for better treatments, more research and, one day, a cure.

Forever 16.
Forever loved.
Forever remembered. 💛

07/14/2026

When people hear there isn’t yet a cure for DIPG/DMG, they sometimes assume nothing has changed.

The truth is, researchers have made meaningful progress in understanding these devastating tumors. And every discovery helps shape the next breakthrough.

We’d all love a cure as fast as possible. Yet we are also grateful for every small step in that direction. Thank you for helping move DIPG/DMG research forward.

https://whenimbetter.org/

07/13/2026

Different BREED MC. Hughesville MD is hosting it's 4th annual fundraiser in honor of Finn Cusick and all children battling DIPG/DMG. This is always a heartfelt event and gets more and more successful every year.

Different Breed Motorcycle Club is near and dear to our hearts at the When I'm Better Foundation. Your support goes to families in the fight and to a specific trial named LIFT being studied at Children's National. Hope to see you there!

🩶🎗🩶🎗🩶🎗🩶🎗🩶🎗🩶🎗

07/10/2026

“Why can’t they just remove the tumor?”

It’s one of the first questions many families ask after a DIPG/DMG diagnosis.

The answer is devastating.

DIPG/DMG tumors grow within the brainstem, where the brain controls the body’s most vital functions. Because the tumor is intertwined with healthy tissue, surgery is almost never possible.

Children and families deserve better options. That’s why funding research is so critical.

https://whenimbetter.org/

07/08/2026

🗓️ Save the Date!

Our Gala returns October 17 with a Tim Burton-inspired atmosphere filled with dramatic décor, quirky charm and a touch of spooky elegance.

And of course, all of it to support DIPG/DMG research and the children and families who need our help most.

More details coming soon!