Team Kindelmann

08/13/2019

My Rockstars!

07/11/2019

It all started with a drawing. Then came a print ad. Then came a commercial. Now comes the story all about them. Fantastic way to bring awareness about cystic fibrosis.

Matison and Charlotte Kindelmann were diagnosed with cystic fibrosis before birth. Expert care at Cohen Children’s helps the whole family breathe easier.

05/05/2019

Everyone survived the climb! It ended up being a beautiful day with lots of memories made with friends. These kids were “rockstars” climbing the stairs followed by races on the field. Thanks to everyone who donated to the girls!!

05/03/2019

It’s time for the Climb! This year we will be taking on MetLife Stadium! If you would like to support Mati and Charlie, the link is below for their team page. Thanks!
http://fightcf.cff.org/site/TR/Climb/55_Greater_New_York_Manhattan?team_id=82145&pg=team&fr_id=7582

03/20/2019

Tara Jensen Reminick and I are running the 2019 NYC Marathon for Team Boomer for Mati and Charlie.
To kick off our fundraising efforts, we are going to start with a MARCH MADNESS Bracket! $20 to participate with 50 % of the total funds going to Team Boomer and the other half to the winner!
The link is posted below and enter by using
Venmo or PayPal [email protected]!
Thanks for your support.
http://fantasy.espn.com/tournament-challenge-bracket/2019/en/group?ex_cid=tcmen2019_sharer&groupID=3006043
Password is 5510

Come join the T&T Run the City group in ESPN Tournament Challenge and see if your bracket beats the rest.

06/30/2018

Go Jerry Go! A truly inspirational man who we have had the pleasure of talking to numerous times. And to our doctor, Dr Germana for kicking off the start of the bike tour..

Jerry Cahill just turned 62. He says his latest goal is to complete a “century ride” in all 50 states.

05/10/2018

Mati has more pancreas issues than Charlie. In Mati’s 8 years she has been stayed in the hospital 19 days, had 4 PICC lines, and had a feeding tube placed in her stomach when she was 5 years old. She had to have the feeding tube placed because no matter what she was eating she couldn’t gain weight. Her body was burning the food at a very fast rate. Mati only gets hooked up to the feeding tube machine at night and in her sleep she gets an extra 1,200 calories. The first picture is when she got the feeding tube placed and the second was 2 months later when we could change it to a mic key.

05/09/2018

Charlie has had more lung problems then Mati. In her 5 1/2 short years of life, she has had to stay in the hospital for a total of 24 days. This was mostly because she cultured RSV or pseudomonas. She had 4 bronchoscopy procedures (and another scheduled for Friday along with 2 other procedures). She had surgery on her trachea at a year old. And she has had a total of 3 PICC lines.

05/08/2018

Mati and Charlie have the same gene mutations. Even though they have the same mutations, it affects both of their bodies differently. Mati has more pancreas issues while Charlie has more lung issues.

05/07/2018

05/04/2018

It was not known that Brett and I were carriers of cystic fibrosis until I was pregnant with Mati. My gynecologist (the best ever) made Brett get tested for cf when my results came back that I was a carrier. We were in fact both carriers then given the option for getting an amnio. We had an amnio at 12 weeks with both girls and within a few days learned both girls had cf. We began to educate ourselves so we knew what to expect. It wasn’t until last year the girls had to have the formal sweat test that children with cf get diagnosed with. (Yup they still had cf, ha)

05/03/2018

The harsh reality of cf. One minute you can be going to a routine doctors visit and then the next minute you are in the ER about to be admitted due to a bad chest X-ray, bloodwork, or culture. This is our current location.