Texas Prader-Willi Association

Texas Prader-Willi Association The Texas Prader-Willi Association was created to enhance the quality of loved ones living with PWS. We are available for support, education, and advocacy.

The Texas Prader-Willi Association was created by two East Texas mom's in the year 2010 and obtained our 501c3 non-profit status shortly after. Our passion was to enhance the quality of lives for all affected by Prader-Willi Syndrome (PWS) living in Texas. That same year these two east Texas mom's set out to start a Prader-Willi specific camp for our loved ones who have PWS. Who doesn't deserve to enjoy the 'experience' of camp?! In keeping with PWS we chose "People With Smiles" Camp as our official camp name. Twelve years later we're still going strong. For more information regarding camp please visit our page: "People With Smiles Camp for Prader Willi Syndrome". You do not have to live in Texas to attend. Welcome!

Calling PWS families with little ones!Is your child with PWS 5 or younger? Did they receive newborn or infant care in No...
09/16/2026

Calling PWS families with little ones!
Is your child with PWS 5 or younger? Did they receive newborn or infant care in North America?
The Global PWS Registry has a new Neonatal Caregiver Survey, and we’re looking for families to share their experiences.
Your feedback can help identify opportunities to improve care, communication, feeding education, discharge preparation, and support for future families.
Take the survey: https://pwsregistry.org/

Take a moment to view our amazing camp video!!
07/19/2026

Take a moment to view our amazing camp video!!

Texas Prader-Willi Association's People With Smiles Summer Camp 2026

07/16/2026

Mark your calendars! 🗓️

Cook Children's is partnering with the Texas Prader-Willi Association to host next year's Texas Prader-Willi Association (TXPWA) Bi-Annual Conference.

The TXPWA Bi-annual Conference is officially scheduled for April 17, 2027, at Cook Children’s Medical Center in Fort Worth, Texas.

We can't wait to gather, share resources, and connect with everyone. More details and registration info are coming soon!

What a great week at the annual TXPWA People With Smiles camp!
07/13/2026

What a great week at the annual TXPWA People With Smiles camp!

Texas Prader-Willi Association's People With Smiles Summer Camp 2026

We're proud to partner with Cook Children's for the TXPWA Bi-Annual Conference -- April 17, 2027 in Fort Worth. Mark you...
07/13/2026

We're proud to partner with Cook Children's for the TXPWA Bi-Annual Conference -- April 17, 2027 in Fort Worth. Mark your calendars, more details coming soon.

Mark your calendars! 🗓️

Cook Children's is partnering with the Texas Prader-Willi Association to host next year's Texas Prader-Willi Association (TXPWA) Bi-Annual Conference.

The TXPWA Bi-annual Conference is officially scheduled for April 17, 2027, at Cook Children’s Medical Center in Fort Worth, Texas.

We can't wait to gather, share resources, and connect with everyone. More details and registration info are coming soon!

05/01/2026

The month of May is an important time for our rare disease community because it’s recognized as Prader-Willi Syndrome Awareness Month. While advocacy efforts, the fight for research advancements, and celebration of our loved ones is important 365 days a year, the 31 days in May offer an opportunity to really show off our PWS pride. Learn more about several different ways YOU can make an impact at https://www.pwsausa.org/how-you-can-make-a-difference-this-pws-awareness-month/

SAVE THE DATE: TH, April 23, 6:30-8:00PM CST. Register Now!
04/13/2026

SAVE THE DATE: TH, April 23, 6:30-8:00PM CST. Register Now!

In honor of VYKAT XR’s one-year anniversary, PWS community members are invited to register for Soleno’s upcoming webinar. Join to learn about the signs and symptoms of hyperphagia in Prader-Willi syndrome and find out if VYKAT XR may be right for you or your loved one. VYKAT XR is approved for people ages 4 and older with hyperphagia in PWS. The webinar will take place Thursday, April 23, 2026, from 7:30–9:00 pm ET (4:30–6:00 pm PT).
🔗Register to attend: https://event.on24.com/wcc/r/5262694/3C5A5533A82C934B4417F76CCD576893
📄Download the flyer:https://www.pwsausa.org/wp-content/uploads/2026/04/April-Webinar-Invite_vFINAL.pdf

Address

Houston, TX

Website

Alerts

Be the first to know and let us send you an email when Texas Prader-Willi Association posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share

Category