Hope for Riley

Hope for Riley Canavan Disease and the fight against it for Riley.

Riley Rosemier-Bentley celebrated his first birthday July 2011, he was diagnosed in May 2011 with Canavan Disease. Riley has already had more doctors, tests, researchers, and therapy than most of us have had in our entire lives! With your help we can raise awareness of genetic testing available for people and help offset his medical costs.

06/28/2023

MARK YOUR CALENDAR… We are only 4 weeks away from the benefit! Its going to be a great night.
A lot of emotions as its getting closer….
Riley’s 13th birthday and Benefit days apart!
I cant wait to share the evening with everyone to celebrate our amazing boy.
✨✨We are still looking for donations for the raffles. If anyone would like to donate, please get ahold of us in the next few weeks.

We still have tickets for sale if you are interested..
✨Pulled pork meal / drinks
✨DJ
✨Bonfire / s’mores
✨Obstacle blow up course for the kids
✨Basket raffles
✨A chance to win a 36” blackstone as a door prize.

✨Remember BYOB

We apperciate all the love and support so far ❤️

It’s been 3 and a half months since you went to Heaven! We miss you so much Riley!!Riley Monroe - 7/24/10 -10/24/22!💔💔💔
02/04/2023

It’s been 3 and a half months since you went to Heaven! We miss you so much Riley!!

Riley Monroe - 7/24/10 -10/24/22!💔💔💔

Such a handsome boy ❤️ He’s getting his tube changed
11/09/2021

Such a handsome boy ❤️
He’s getting his tube changed

09/13/2021

We really appreciate everyone that purchased one of the Championship Caliber shirts for Riley. We’d love to see you all in your shirts. Please post a picture for us below!!

09/01/2021
08/09/2021

This one's for the truest of believers! Limited edition "Championship Caliber" is available now through August 22nd to benefit Riley Bentley. 11-year-old Riley was diagnosed with Canavan disease, and we want to help! Presented by West Herr Auto Group: 26yw.co/championship-caliber

Happy 11th birthday, Riley !
07/24/2021

Happy 11th birthday, Riley !

Thank you to everyone who donated . We passed our goal ❤️ 207 pairs!
07/23/2021

Thank you to everyone who donated . We passed our goal ❤️ 207 pairs!

You guys are amazing ❤️We have 81 jammies so far. We are taking donations up till The 22nd. It’d be sweet if we could re...
07/14/2021

You guys are amazing ❤️
We have 81 jammies so far. We are taking donations up till The 22nd. It’d be sweet if we could reach 100!
💥Don’t forget you can also donate cases of water or gift cards for the Hornell fire department. We have received some $ donations which we have split up between jammies and the fire dept.

Both special too us.

We can’t thank you enough for everything you’ve done over the years for my guy and continue to do. I’m forever grateful ❤️❤️

We LOVE our Riley ❤️
07/10/2021

We LOVE our Riley ❤️

Address

175 Linclon Street
Hornell, NY
14843

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