Rare Disease Hawaii

Rare Disease Hawaii Rare Disease Outreach for the Rare Community, Diagnosis, Care, Treatment, Resources, Advocacy, Answers, & Aloha*

Rare Disease Hawaii is a newly formed Non-Profit that does Rare Disease Outreach for the Rare Community in Hawaii, dealing with Rare Disease specific to the Pacific Region & all other Rare Diseases. Help people find answers for proper care, diagnosis, genetic testing, support resources, and Doctor referral services. Rare Disease Hawaii wants to take on the burden for those that are looking for answers to a misdiagnosis or diagnosis without a name.

Aloha Friday**
05/25/2024

Aloha Friday**

Very Proud of my Daughter, ,Anjelica* For never Giving up on her Education*
05/02/2024

Very Proud of my Daughter, ,Anjelica* For never Giving up on her Education*

03/01/2024
03/01/2024

Happy Rare Disease DAY**

I was Checking Chris Hedges on Real News & Came Across THIS*I can't give the book to my Daughter, but I can share it wit...
10/15/2022

I was Checking Chris Hedges on Real News & Came Across THIS*
I can't give the book to my Daughter, but I can share it with all of YOU*

Dr. Gabor Maté joins The Chris Hedges Report to discuss his new book, The Myth of Normal: Trauma, Illness and Healing in a Toxic Culture.Dr. Gabor Maté is a ...

Biggest FAKE Organic Soybean Scam in America & Hawaii doesn't know about. NOW YOU DO< Cause HE Sold to HI TOO*
10/11/2022

Biggest FAKE Organic Soybean Scam in America & Hawaii doesn't know about. NOW YOU DO< Cause HE Sold to HI TOO*

This is the story of how Randy Constant became an organic food tycoon, cheated millions of Americans and amassed a $140 million dollar fortune in the larges...

OMG**This Doc tells You Everything Your Mother Never Told You About Menopause***& Some, so don't get too mad after you s...
09/18/2022

OMG**This Doc tells You Everything Your Mother Never Told You About Menopause***& Some, so don't get too mad after you see it* Now You Know what to do*** :)

PBS presents Hot Flash Havoc, a stirring film of Menopausal proportions. Narrated by Goldie Hawn and shot and edited by COAVD.

I am sharing this as a Person that spent more than 2 mos at NIH & had surgery there & was put into a coma there. I did ...
09/12/2022

I am sharing this as a Person that spent more than 2 mos at NIH & had surgery there & was put into a coma there. I did sign a Form that said they would keep me in touch with any discoveries or know my records, but I have NOT been able to get a Copy of Anything & I Have personally been to their records office 4 times on my own dime from Hawaii to Maryland trying to attain them. It's ugly how in so many ways they have blocked me, as the only ADOS Female apart of a Pheo Study******

The Amber Ruffin Show returns February 25th on Peacock, plus catch up on past episodes streaming now: https://pck.tv/3pOiao8Reserve your spot in the live stu...

Address

Honolulu, HI

Opening Hours

Monday 9am - 7pm
Tuesday 9am - 7pm
Wednesday 9am - 7pm
Thursday 9am - 7pm
Friday 9am - 7pm
Saturday 9am - 4pm
Sunday 10am - 2pm

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Rare Disease Hawaii does Rare Disease Outreach for the Rare Community in Hawaii, dealing with Rare Disease specific to the Pacific Region & all other Rare Diseases. Help people find answers for proper care, diagnosis, genetic testing, support resources, and Doctor referral services. Rare Disease Hawaii wants to take on the burden for those that are looking for answers to a misdiagnosis or diagnosis without a name. Rare Disease Hawaii is more than just an outreach informational, & support group. It is a Olelo TV Series in it's 3rd yr. We give awareness & attention to Rare Diseases in Hawaii that normally would not be mentioned in any other media format in Hawaii. Rare Disease Hawaii TV Show is for those that are out to receive the type of informational interaction RDH show provides, to get info to those in critical need or get answers to their Rare Disease .