Rally for Remi Inc

Rally for Remi Inc Rally for Remi Inc is a nonprofit organization raising awareness of Wiedemann-Steiner Syndrome.

We are SO excited to announce our 3rd annual RFR event and even more excited that we are back at MGV!! Mark your calenda...
09/19/2024

We are SO excited to announce our 3rd annual RFR event and even more excited that we are back at MGV!!

Mark your calendars and join us for a HUGE day of INCREDIBLE things!!

Please note one change to our event: we will be doing the POKER RIDE PRIOR TO OUR EVENT DATE!
How does this benefit you? YOU WONT MISS OUT ON ANYTHING!! Please stayed tuned to learn more about the poker ride!

We can not wait to see you all on our 2025 Remi’s Rally adventures!!

Share with your family/friends!
LIKE OUR PAGE!
and go check out our website to order all your RFR gear for the cold months coming WAY TOO SOON!!

We are HAPPILY accepting donations of ANY KIND as of NOW! 🥰

Here’s another AMAZING fundraiser in the area happening THIS WEEKEND!!Hope to see you there!Check out their page for mor...
08/22/2024

Here’s another AMAZING fundraiser in the area happening THIS WEEKEND!!
Hope to see you there!
Check out their page for more fun insights on this event! All In For Autism LaX

https://www.z933.com/2024/08/20/all-in-for-autism-fundraiser-this-sunday/?fbclid=IwZXh0bgNhZW0CMTEAAR0NUNWu3m3fVVz4SshONCXbVSrbBQV-Hf0Nyo9du-8LJXwpqK9E9i4uTFg_aem_1KP2I8Bsf6_6Ca2hDcanqw

Come support the La Crosse Autism Foundation with All in for Autism. It is taking place at the Holmen Legion from 11am-4pm on Sunday, August 25th. There will be a silent auction, […]

Yesterday was a beautiful day🥹Andi Parins and I(Kayla Stoa) were able to drive down to Madison and not only meet Ashlee ...
06/24/2024

Yesterday was a beautiful day🥹
Andi Parins and I(Kayla Stoa) were able to drive down to Madison and not only meet Ashlee & Garrett Meinhardt and their beautiful “monkeys” as Ashlee calls them, but also, present them a check.

Thanks to everyone who donated, sponsored, and helped our event in such an incredible way, we were able to provide the Meinhardt Family with a check for $11,500.00 to help ease this difficult time being in the hospital with their sweet baby boy Nicholas. We shared stories of our kiddos, laughed, cried & hugged it all out. 💖

Please keep the family in your prayers this week as they navigate another surgery on Thursday to take one more step in coming HOME. The first time their family would be home all together in the past 4 months.

We truly can’t thank you all enough for all the support shown to not just this family, but to our cause. YOU helped us raise a grand total(after all expenses) of $30,526.00! 😭🥳

We will be sending another check to the WSS Foundation to help support medical research for Wiedemann-Steiner Syndrome for $11,500.00 and the remaining money will be kept to help make next years event BIGGER and BETTER! We can’t wait to share those details VERY soon as we have already been planning for next years event! 🥰

06/17/2024

A HUGE thank you to every single person who attended our event yesterday! It was amazing!!!!

To all of our sponsors, thank you for showing your community and RFR your love & support. We truly couldn’t have done this without YOU.💖

To all of our poker ride participants, THANK YOU for riding safe & having fun!! We appreciate you so very much!!💖

To all of our co****le tournament players, you rock! And we hope you had fun!!💖

To everyone who purchased a chicken que dinner, I hope you enjoyed it as much as we did! Talk about some incredible food!! Thank you Premier Catering for cooking all day long! Thanks to all of you & PC, we only had roughly 50 meals left which were donated to the Salvation Army 💖

To everyone who stopped in to check out of raffle baskets, walk around items, silent auction & more, THANK YOU! 💖

It’s everyone in our community who makes these events happened and let me tell you, our community SHOWED UP😭💖 We appreciate it MORE than we will ever be able to tell any of you.

To my fellow committee members, thank you for helping me the past year setting this all up and making it one VERY successful event! Looking forward to another whole year of planning!!! 💖

To our volunteers that helped out all day long, and even the day before with setting up, I can’t tell you enough how much we appreciate it. We love you all so very much and appreciate your help making our event so successful!! 💖💖

MGV, you guys have been phenomenal to work with for the past year & your venue is the PERFECT place! Thank you so much!! Looking forward to working with you more! (That might be a hint at things that are already happening😉)

Grizzly Entertainment thank you for providing music! It was a very last minute thing and we are so glad you were able to be apart of it! Thank you so much!! 💖

While we are still collecting donations, we should have a final amount by Tuesday afternoon. I’ll share those details then , along with some other VERY exciting news!! 🥳🥳

Thank you to every single person, from the bottom of my heart, I appreciate & love you so much! 💖💖

Much love & even more appreciation,
Kayla Stoa, Nick Stoa, Andi Parins, Mark Parins, Johnboy Reget & Nick Wenzel

PS: if you have pictures or videos from the day, please share them with me so I can put them on our page as well as our website! 🥰

06/13/2024

Happy Thursday! Only TWO days before we get to see all of you!!!

But let’s get things started TONIGHT!
A few of us from Team RFR will be at BIKE NIGHT at Whiskey River Bar and Grill AND Robins Nest selling raffle tickets, chicken Que tickets, and can coozies!

For Saturday:
Maple Grove Venues does NOT have an ATM. Their bar accepts card & cash. We accept check, cards, cash & Venmo!

We can’t wait to kick things off tonight with you and keep things going on Saturday! Let’s make this the best weekend EVER! 🥳🥰

This was such an incredible opportunity! Thank you News 8 Now / News 8000 for having me on the show today!
06/13/2024

This was such an incredible opportunity!
Thank you News 8 Now / News 8000 for having me on the show today!

Interview With Kayla Stoa, Founder of "Rally For Remi" Inc. Jun 13, 2024 Jun 13, 2024 Updated 3 hrs ago Facebook Twitter WhatsApp SMS Email Print Copy article link Save ​COPYRIGHT 2024 BY NEWS 8 NOW/NEWS 8000. ALL RIGHTS RESERVED. THIS MATERIAL MAY NOT BE PUBLISHED, BROADCAST, REWRITTEN OR REDISTR...

06/13/2024

Remi Rae Stoa was diagnosed with Wiedemann-Steiner Syndrome in 2021. Her family started Remi’s Rally last year to raise awareness and help support ongoing medical research for this rare disease. […]

Grizzly Entertainment will be providing some amazing music for all of us & YOU during our event Saturday!!We are so exci...
06/13/2024

Grizzly Entertainment will be providing some amazing music for all of us & YOU during our event Saturday!!

We are so excited to see everyone!

Who’s ready for an AMAZING day?! I know we are!

Remi’s Rally has become so much more than just raising money for medical research for the rare disease our Remi has: Wie...
06/12/2024

Remi’s Rally has become so much more than just raising money for medical research for the rare disease our Remi has: Wiedemann Steiner Syndrome. It’s now changed direction to help medically complex kiddos/family in our very own Coulee Region. A portion of funds raised on this Saturday, June 15th at Maple Grove Venues, will go to the Meinhardt Family.

I’d like to introduce everyone to the Meinhardt Family. This years recipient of the Remi’s Rally Family Support Nomination.

Ashlee & Garrett live right in West Salem with Makenzee(10), Nathan(9), Chloe(7), Aiden(2) & sweet baby Nicholas(11 weeks old).
During Ashlee’s 20 week ultrasound while pregnant with Nicholas, it was discovered he has Hypoplastic Left Heart Syndrome. Also known as “born with half a heart”. Shortly after birth on March 19th, Nicholas was transferred to American Family Children’s Hospital in Madison, Wisconsin. Just two days later, he had his first open heart surgery. He will have another surgery that is planned for the end of June. That’s not the end of surgery for him or his family. He will have another when he is 3 years old; none of the surgeries are guaranteed to fix his heart condition. He could go into heart failure at any point during this and require a heart transplant, something he could wait a day or months for.
The Meinhardt Family has been spending majority of their time in Madison to be as close to Nicholas as they can be while also trying to keep lives “normal” for their older children. Nicholas has never been home and will not be home until after his second open heart surgery at the end of June.

We ask that you keep the Meinhardt Family in your thoughts & prayers during this very difficult time, but also come help support them and raise monetary funds for their family at MGV on Saturday.

On behalf of the Meinhardt Family and team Remi’s Rally, we appreciate all the support you have shown us this far.

See you all in just FOUR days!

06/10/2024

Happy Monday friends and family of RFR!!
It’s the big week! 🥳🥳🥳
We are SO excited to see everyone in just 5 days!!!

Here’s what’s happening on Saturday:

Poker Ride sign up starts at 9am!
Kickstands up at 10am.
Route:
1. Maple Grove Venues(West Salem)
2. Rumors Bar & Grill(Bur Oak)
3. Dans Longbranch (Cataract)
4. Sunset Tavern(Black River Falls)
5. Blair Haus(Blair)
6. Champions Riverside Resort (Galesville)
7. Back to Maple Grove Venues (West Salem)

We will have ride exclusive items so you won’t want to miss this! Any questions about the ride, contact Mark Parins II 🙂

Bounce houses for kids starting at 10am until 7pm!

Silent auction, live auction, raffle baskets, tip board items, 50/50 boards and more starting at 10am!

Chicken Que meals starting at 10am-7pm! $10 per meal!

Co****le Registration starting at 11am, bags start flying at 12pm!
We will do a kids bracket if enough kids show up!

We are still collecting donations so let any of us know if you have anything so we can collect them all asap!🙂

Stay tuned for some sneak peaks at some of the INCREDIBLE things we will have on Saturday!

See you all on Saturday! 🥰🥳💖

LAST CALL FOR SHIRTS IF YOU ARE ORDERING THROUGH ME!!!!! I will accept orders until 12:00pm, JUNE 1ST! If you are orderi...
06/01/2024

LAST CALL FOR SHIRTS IF YOU ARE ORDERING THROUGH ME!!!!!
I will accept orders until 12:00pm, JUNE 1ST!

If you are ordering through the clothing store for poker ride shirts or any other gear, order them today as any orders placed AFTER today, are NOT guaranteed to be to you before the big day!

See you all in TWO weeks!!!! 🥰💖💖💖💖

Address

Holmen, WI
54636

Telephone

+16083869726

Website

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