Pachyonychia Congenita Project

Pachyonychia Congenita Project PC Project supports people living with PC and other rare, painful palmoplantar keratodermas while driving research toward effective treatments to End the Pain!

09/03/2026

A message of hope from PCer Max!!

09/03/2026

Having a blast at our Patient Support Meeting!

09/03/2026

This is Jacqui sharing why it was important for her to be at the patient support meeting!

09/03/2026

So excited to see you all! Follow us on social media to keep up with the fun!

Researchers, please join us for a special lunch session at the ESDR!During the European Society for Dermatological Resea...
09/02/2026

Researchers, please join us for a special lunch session at the ESDR!

During the European Society for Dermatological Research (ESDR) Annual Meeting on September 10, 2026, from 13:15-14:15 in Hall 2B at the Heidelberg Congress Center, Germany, PC Project will have a scientific session titled:

Rare Skin Diseases, Broad Insights: Keratin Biology to Therapeutic Innovation in Pachyonychia Congenita and Related Painful Palmoplantar Epidermal Differentiation Disorders

This featured session will highlight the latest scientific and clinical advances in PC and related pEDDs. International experts will discuss disease mechanisms, innovative disease models, and emerging therapeutic approaches, demonstrating how research in rare skin diseases continues to provide important insights into skin biology and translational medicine.

See the full program: https://www.pachyonychia.org/pc-project-scientific-session-at-esdr-2026/

Thank you!To everyone who stepped up by donating, sharing, or creating your own fundraiser page! You didn’t just support...
09/01/2026

Thank you!

To everyone who stepped up by donating, sharing, or creating your own fundraiser page! You didn’t just support a campaign. You lifted up a community that hurts with every step they take.

Throughout Step Up for PC, you met Wyatt, who asked, “Why do I have to have PC?” You met River, whose mother wonders how the world will see her daughter as she grows up. These stories are real. They’re daily. And they’re why your support matters so much.

Because of you, PC Project can continue providing genetic testing, advancing research, connecting families, educating clinicians, and advocating for people living with PC and related painful pEDDs. And every gift you inspired is being matched twice, multiplying your impact.

But the most powerful thing you did was remind this community that they are not alone.

Thank you for believing in them. Thank you for fighting for them. And thank you for stepping up in ways that truly change lives.

08/31/2026

This PCer is using a razor to shave off a callus. When PC/pEDD calluses get too thick and painful, a razor can be used to trim off the extra skin. Please note that there are many different tools and methods for trimming thick skin.

See the website for other ideas: https://www.pachyonychia.org/hand-tools/

What tools do you use to care for your PC/pEDD calluses?

Because we have expanded our reach to include all rare, painful palmoplantar Epidermal Differentiation Disorders, we hav...
08/29/2026

Because we have expanded our reach to include all rare, painful palmoplantar Epidermal Differentiation Disorders, we have updated our mission statement to better define the work we do at PC Project.

We care about all pEDD patients who come to PC Project looking for answers and solutions!

In just a few more days, our campaign ends!Over the past month, patients, parents, researchers, donors, and supporters...
08/28/2026

In just a few more days, our campaign ends!

Over the past month, patients, parents, researchers, donors, and supporters have come together to help create a brighter future for people living with PC and related painful pEDDs.

Remember, every gift is matched twice up to $100,000 - triple the impact for every $1 donated.

If you've been considering a gift, whether online, by check, through your DAF or stock, now is the time.

Every donation helps support research, patient programs, genetic testing, and the search for better treatments.

Please help us finish strong by donating here: https://hope.pachyonychia.org/donate_paypal/

“One of the things that I often have problems with is my pain level. I have had this condition since I first put on shoe...
08/27/2026

“One of the things that I often have problems with is my pain level. I have had this condition since I first put on shoes. I will be 80 years old in November. I have lived with this pain all my life.

If I say my pain level right now is a 3 or 4, I often wonder what the pain level would be if the doctor talking to me could feel my feet.

I’ve often said that if an adult person suddenly had this condition, he or she would probably be unable to walk. I think we only persevere because, over the years, we are conditioned to the constant pain, not unlike people who have other permanent conditions with which they are forced to deal.

People have an amazing ability to adapt to whatever life throws at them in order to survive and enjoy a good life. I, personally, consider myself to have had a very happy life, in spite of my PC. I try to dwell on the good parts of life and set the pain aside as much as possible.”

- Gary, PC Patient

Address

Holladay, UT
84117

Opening Hours

Monday 9am - 5:30pm
Tuesday 9am - 5:30pm
Wednesday 9am - 5:30pm
Thursday 9am - 5:30pm
Friday 9am - 5:30pm

Telephone

+18019878758

Website

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