Carolina Coalition for PKU and Allied Disorders

Carolina Coalition for PKU and Allied Disorders Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Carolina Coalition for PKU and Allied Disorders, Nonprofit Organization, High Point, NC.

Three different meet ups across the state! We love getting to connect with PKUers of all ages!
08/09/2026

Three different meet ups across the state! We love getting to connect with PKUers of all ages!

Don’t forget to come out for some fun and ice cream this Saturday! Three different NC locations for all of our PKU and r...
08/03/2026

Don’t forget to come out for some fun and ice cream this Saturday! Three different NC locations for all of our PKU and rare families!

See you there!

I scream, you scream, we all scream for ICE CREAM! Join us on Aug 8th from 3:00-5:00 at your local ice cream shop to hav...
07/02/2026

I scream, you scream, we all scream for ICE CREAM!

Join us on Aug 8th from 3:00-5:00 at your local ice cream shop to have a PKU meet up!

05/02/2026

Happy PKU Awareness month from some of our NC/SC PKUers!

Tag us in your photos and videos of your of your PKUer! We would love to see how you celebrate PKU awareness month!

We are just one month away from the annual Low Protein Picnic to celebrate PKU Awareness Month! This year it will be hel...
05/01/2026

We are just one month away from the annual Low Protein Picnic to celebrate PKU Awareness Month! This year it will be held on Saturday, May 30th from 11 AM - 2 PM at the Playground Shelter at Keeley Park in McLeansville, NC.

Once again this year, we will have a low protein recipe contest and ask you to bring your best low protein recipes to share.

We are thrilled to announce that Nutricia, Vitaflo, Zoia/Pentec, and IVDS have generously offered to provide prizes for the low protein recipe contest!

In addition to the sponsors mentioned above, PTC Therapeutics, Biomarin, and others will be present to share samples and more.

Keeley Park has a splash pad that will be open and near our reserved shelter! If you would like to take advantage of that offering, please bring a bathing suit and towels.

Please email us at [email protected] for more information on parking and special events as well as your RSVP!

We can’t wait to see you there!

Facing the Challenges of PKU in the family: A Program for the PKU CommunityJoin Dr. Al Freedman for a discussion on the ...
04/16/2026

Facing the Challenges of PKU in the family: A Program for the PKU Community

Join Dr. Al Freedman for a discussion on the emotional and social impact

of living with PKU and navigating life with a rare condition.

We invite you to join and connect with others who are living with PKU and those who support them.

**Free low Phe and regular lunch will be provided. Complimentary parking is included for attendees

Date and Location:

Saturday, April 25th, 2026

10:30 AM – 1:30 PM ET

Atlanta Zoo- Zebra Room

800 Cherokee Avenue SE

Atlanta, GA 30315

PARKING: At Cherokee Lot (same address as above). Instructions

and parking code will be emailed or texted once registered.

Speaker

Dr. Al Freedman, PhD, Ed.M., B.A.

Dr. Al Freedman is a licensed psychologist, consultant, keynote speaker,

and the father of a child with a rare disease. For more than 20 years, he

has provided therapy for children, teens, adults, and families navigating

the challenges of living with a rare condition.



To RSVP for in-person or virtual attendance, please contact

Karina Lambertini at [email protected] or call/text at 732-253-2647

Camp Huber is back! Registration is officially open and we know you will have a blast! Free for PKUers and those with al...
04/15/2026

Camp Huber is back!

Registration is officially open and we know you will have a blast! Free for PKUers and those with allied disorders!

With the recent expanded label for PAL for 12 years and up, we wanted to give space and time for caregivers and patients...
04/02/2026

With the recent expanded label for PAL for 12 years and up, we wanted to give space and time for caregivers and patients to ask questions of all ages. Those attending will hear from a mom and her high school son talk about PKU and life after starting PAL. A provider will be on hand to speak to the data. We will also have a pantry table on site with new things found in local stores! DM us for the link to register today!

Do you or your family members know anyone with PKU in Georgia? Facing the Challenges of PKU in the family: A Program for...
04/02/2026

Do you or your family members know anyone with PKU in Georgia?

Facing the Challenges of PKU in the family: A Program for the PKU Community

Join Dr. Al Freedman for a discussion on the emotional and social impact

of living with PKU and navigating life with a rare condition.

We invite you to join and connect with others who are living with PKU and those who support them.

**Free low Phe and regular lunch will be provided. Complimentary parking is included for attendees

Date and Location:

Saturday, April 25th, 2026

10:30 AM – 1:30 PM ET

Atlanta Zoo- Zebra Room

800 Cherokee Avenue SE

Atlanta, GA 30315

PARKING: At Cherokee Lot (same address as above). Instructions

and parking code will be emailed or texted once registered.

Address

High Point, NC
27260-27265

Website

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