08/08/2026
🎉 HUGE news for our community: the National Plan for Epilepsy Act (S. 494) just passed the U.S. Senate. Unanimously.
This comes less than two weeks after the Senate HELP Committee advanced the bill, and it puts us closer than we've ever been to a coordinated national strategy for epilepsy care, research, and support.
For the nearly 3.4 million Americans living with epilepsy, including our LGS families navigating one of the most complex and treatment-resistant forms, this matters. A national plan means better diagnosis pathways, more research investment, and real coordination across the systems families are so often left to piece together on their own.
But the work isn't done yet. The bill now heads to the House of Representatives before it can become law, and we'll be watching closely and continuing to advocate for its passage.
To all our LGS families: thank you. Every story shared, every moment spent raising awareness for this community, it all adds up, and this win reflects that.
Today, we all celebrate. 💜
