04/12/2026
Sorry I haven't posted in a while I plan to better going forward. So Im still fighting my battle against the rare form of Multiple Myeloma, which is most know is an incurable but treatable blood cancer. Im still on the pill form of chemo that I take for 21 days 7 days off then start the next cycle. I am also still on the two immunotherapy chemos as well I get a double dose of each once a month and handle it well. I get a double dose because I was going to MD Anderson in Houston, TX twice a month to get a single dose each time so I asked my oncologist if it was possible to try getting a double dose once a month since its a 2 hour trip one way each time and I wanted it to not cost so much going twice a month and putting so many miles and wear and tear on my sister's & daughter's vehicles since the bring me and it not be a burden on them to have to make sure that someone was available to take me and not have to reschedule any plans or appointments they might have around two different trips each month. I had a ekg done several months ago like I had been doing yearly since I was on a pretty good amount of methadone for extended pain relief, it can cause heart problems like irregular heart beats well sure enough it was effecting my heart so first the lowered the strength and did another ekg the next month and it didn't change anything so they decided to have me take a lower dose just twice a day and prescribed me an extended pain relief version of oxytocin to go with the oxycodone I have for breakthrough pain it has worked. I had another ekg last month and it showed everything is normal now. So woo hoo, thank you God. So many already knew I had to take large doses of steroids every week that I didn't go for the immunotherapy and the week I did go for it I took a slightly lower dose then the gave me the rest plus more in my IV when I got the first type of immunotherapy and then with the second I took a different type or brand of steroids with it in pill form. The ones I took except for the dose in the IV were in pill form as well. I hate taking the steroids they make me sweat extremely on my head and back and Im sure its part of the shirt fuse I have and was warned about when I first started chemo. Well I think it was two months ago when I seen my oncologist before my immunotherapy to go over my labs and so she could refill my pill form of chemo I just told her look you know how much I hate the steroids and while mentioning that in a multiple myeloma support group I'm in several other patients said they were able to get off the Dex (Steroids), can I have a break from them except for the ones I get with my immunotherapy? She thought for a second and said I'm pretty sure but let me look over everything again and your last couple months or more of labs and I'll let you know. So while doing my immunotherapy that day she called and said yes I could stop them except for what they give me with my immunotherapy. If I hadn't been hooked up to the IV and blood pressure machine I would have jumped for joy and danced around the room. She didn't say if it was for just a little while or as long as nothing changed and I didn't ask and Im not going to so she might forget about me being off them lol. Well im scheduled for my next labs appointments and treatments on the 20th then on the 27th I leave out with my oldest sister and mu cousins on an airplane to Seattle then leave on an Alaskan cruise my sister is taking me on with them o the 28th. So any extra prayer or good thoughts that I stay healthy before hand, during, and after will be greatly appreciated. I love you all and have a great rest of your Sunday!
