AliveAndKickn

10/14/2026

Screening keeps us alive. It also wears us down. 🧬

Join our Living with Lynch Community Conversation on screening fatigue and burnout with Dr. Marianne Dubard-Gault.

🗓 Thurs, Oct 29 · 8pm ET
🔗 Register at https://bit.ly/4jn0pMu

10/01/2026

One positive test can protect a whole family.

When one person learns they have Lynch syndrome, each parent, sibling and child has a 50% chance of carrying it too. That first test gives relatives the chance to get tested and start screening.

Did someone's result change yours? Tell us who with .

09/30/2026

Honoring Previvors on Previvor Day 💙

A previvor has an inherited mutation but hasn't had cancer. For many people with Lynch syndrome, it comes down to showing up for screening, year after year.

Meet Elyse: Elyse became a genetic counselor because of her diagnosis as a Previvor.

Previvors, this is your day. Why did you choose to know?

09/29/2026

Most people's starts with a family story.

Red flags for Lynch syndrome:
• Colore**al or endometrial cancer before age 50
• Several relatives with related cancers on the same side of the family
• One person with more than one Lynch-related cancer

Sound familiar? Ask your doctor about genetic counseling.

What made you start asking questions? Tell us below or share with .

09/28/2026

It's National Hereditary Cancer Week. About 1 in 279 people has Lynch syndrome, and most of them don't know it.

This week we're asking our community one question: Why do you know?

Maybe it's a parent's diagnosis. A genetic counselor who asked the right question. Your kids. Or maybe you haven't been tested yet, and this is the week you ask.

Share yours with a photo and a few sentences, tag us, and use .

09/10/2026

has a new clinical trial that may help women with early-stage mismatch repair deficient (MMRd) endometrial cancer, including those with Lynch syndrome, keep their fertility! Learn More: https://bit.ly/3V3rDxi

07/27/2026

https://www.aliveandkickn.org/podcast-1/episode/ebb70d3a/aliveandkicin-podcast-dr-hannah-ditchfield-and-stefania-vicari where we talk about social media and lynch syndrome, two very important topics currently. If you want to check out any of the podcasts from the past 6 years, feel free to do so as well.

AliveandKick'n is a lynch syndrome hereditary cancer patient advocacy organization. It's mission is the improve the lives of individuals and families affected by Lynch syndrome and associated cancers through research, education and screening.

07/08/2026

Please see this research engagement opportunity from our colleagues at Tufts University.

Re**al Cancer Patients and Survivors:
Were you diagnosed with Stage 2 or 3 re**al cancer in the last 10 years? Would you be willing to share your experience with a research team from the Lahey Clinic? Tufts CTSI is hosting a Community Engagement Studio, a one-time, online discussion, to gather patient feedback on resources for people with re**al cancer. This virtual two-hour feedback session will be hosted via Zoom on Tuesday, August 25, 2026, 6:00 - 8:00 ET. We are looking for 6-10 people to share their lived experience during the session. Compensation will be $100 via a pre-paid debit card. Please complete our interest form, and we will be in touch. https://tufts.qualtrics.com/jfe/form/SV_eXt1HUZ4grq3tBk

06/01/2026

This is a milestone worth sharing.

NOUS-209, an investigational therapy designed to intercept cancer before it develops in Lynch syndrome carriers, has been granted FDA Fast Track Designation. The Phase 1b/2 results, the first clinical evidence of cancer interception in Lynch syndrome, were recently published in Nature Medicine.

For our community, this matters. Lynch syndrome carries up to an 80% lifetime cancer risk, and for most carriers, surveillance is still the primary management tool. Research in immunoprevention, stopping cancer from developing in the first place, is working toward a different future.

This program is still advancing toward a registration trial, but Fast Track status accelerates the FDA dialogue. Progress is being made.

AliveandKick'n will keep following this research and amplifying what it means for our community. https://lnkd.in/eFhP5jFg

05/12/2026

Look what we can accomplish together!