AliveAndKickn

07/27/2026

https://www.aliveandkickn.org/podcast-1/episode/ebb70d3a/aliveandkicin-podcast-dr-hannah-ditchfield-and-stefania-vicari where we talk about social media and lynch syndrome, two very important topics currently. If you want to check out any of the podcasts from the past 6 years, feel free to do so as well.

AliveandKick'n is a lynch syndrome hereditary cancer patient advocacy organization. It's mission is the improve the lives of individuals and families affected by Lynch syndrome and associated cancers through research, education and screening.

07/08/2026

Please see this research engagement opportunity from our colleagues at Tufts University.

Re**al Cancer Patients and Survivors:
Were you diagnosed with Stage 2 or 3 re**al cancer in the last 10 years? Would you be willing to share your experience with a research team from the Lahey Clinic? Tufts CTSI is hosting a Community Engagement Studio, a one-time, online discussion, to gather patient feedback on resources for people with re**al cancer. This virtual two-hour feedback session will be hosted via Zoom on Tuesday, August 25, 2026, 6:00 - 8:00 ET. We are looking for 6-10 people to share their lived experience during the session. Compensation will be $100 via a pre-paid debit card. Please complete our interest form, and we will be in touch. https://tufts.qualtrics.com/jfe/form/SV_eXt1HUZ4grq3tBk

06/01/2026

This is a milestone worth sharing.

NOUS-209, an investigational therapy designed to intercept cancer before it develops in Lynch syndrome carriers, has been granted FDA Fast Track Designation. The Phase 1b/2 results, the first clinical evidence of cancer interception in Lynch syndrome, were recently published in Nature Medicine.

For our community, this matters. Lynch syndrome carries up to an 80% lifetime cancer risk, and for most carriers, surveillance is still the primary management tool. Research in immunoprevention, stopping cancer from developing in the first place, is working toward a different future.

This program is still advancing toward a registration trial, but Fast Track status accelerates the FDA dialogue. Progress is being made.

AliveandKick'n will keep following this research and amplifying what it means for our community. https://lnkd.in/eFhP5jFg

05/12/2026

Look what we can accomplish together!

04/28/2026

Last call! Applications for the Living with Lynch Patient Workshop close THIS FRIDAY, May 1st.

Don't miss your chance to join us November 5–8, 2026 in Houston, TX, an experience built for Lynch syndrome patients and previvors, by people who get it.

🔗 Apply today at LivingWithLynch.org

04/20/2026

Calling all Lynch syndrome patients and previvors!

The application window for the 2026 Living With Lynch Patient Workshop is closing soon, don't miss your chance to apply by May 1st!

Every year, a small, carefully selected group of Lynch syndrome patients and previvors comes together for a weekend that many describe as life-changing. The connections made. The knowledge gained. The feeling of finally being truly understood.⁠

This fully funded weekend brings together our community for expert-led education, advocacy training, and the kind of community that only comes from being in a room full of people who truly get it.⁠
⁠
🔹 12–14 participants will be selected. ⁠
🔹 An application and interview process is required.⁠
⁠
If Lynch syndrome is part of your story, and you've been waiting for a sign, this is it. Apply today and take your first step. 💙⁠
⁠
👉 Apply now at LivingWithLynch.org
⁠

04/06/2026

Every year, a small, carefully selected group of Lynch syndrome patients and previvors comes together for a weekend that many describe as life-changing. The connections made. The knowledge gained. The feeling of finally being truly understood.⁠
⁠
Applications are now open for the 2026 Living with Lynch Patient Workshop in Houston, TX, November 5–8! This fully funded weekend brings together our community for expert-led education, advocacy training, and the kind of community that only comes from being in a room full of people who truly get it.⁠
⁠
🔹 12–14 participants will be selected. ⁠
🔹 An application and interview process is required.⁠
⁠
If Lynch syndrome is part of your story, and you've been waiting for a sign, this is it. Apply today and take your first step. 💙⁠
⁠
👉 Apply now at https://forms.gle/RfA6tVnLFrmKQUXw8 ⁠
⁠