The Waylon Sullivan Foundation Inc.

01/20/2025

Good morning everyone, hope you all are doing well. As most of you know we do a Big Truck Show every year to raise awareness about Lowe Syndrome and raise funds for the Waylon Sullivan Foundation. Sadly, this year we decided not to do it due to venue issues. Our original venue here put up 10ft fences and one down the middle of our 2 lots that we used. So this would cause issues for our pedestrians having to walk all the way around to the other lot and honestly would be a headache for many. We have been off to have our show in another city, but being as we live here in Hamilton.. we wanted to keep it local for our community. We have asked about other lots, but have been denied. So as bad as we hate to, we had to cancel for this year. We would still love for everyone to still spread awareness about our Foundation, as we are here to help the families affected by Lowe Syndrome and spread awareness about Lowe Syndrome. We will keep everyone posted as to what we will do next year, until then you can continue to share and give to our Foundation. We help with medical and funeral expenses, as well as bills and such due to a Lowe Syndrome young man being in hospital due to sickness and parents not getting to work. Please reach out to use if any of our families need assistance. Thank you all for your support!❤️

Here is our son Waylon! He is the main reason we wanted to start the Foundation. He was diagnosed with Lowe Syndrome at 6 months old after having genetics testing due to being born with bilateral cataracts. This Foundation means so much to us. The Foundation will help other Lowe Syndrome families fi...

07/08/2024

Did you know that Lowe Syndrome is a rare X-linked chromosome genetic disorder that affects 1 in half a million boys? Very few girls have been diagnosed with it. Did you know that it affects their eyes, brain, and kidneys? Did you know the older they get it can cause them to go into kidney failure? Did you know that it causes them to have weak muscle tone, a 50/50 chance for seizures, they can develop bad behaviors, high risk for glaucoma, and scoliosis? Did you know that some of the boys never walk or never talk? Did you know that some of the boys are on the Autism spectrum? You see Lowe Syndrome does not just affect 1 part of their body, it affects their entire body! Lowe Syndrome is a very medically complex Syndrome! Most people have never heard of Lowe Syndrome, neither did we until Waylon was diagnosed! These boys fight battles every day that people can't see on the outside! It affects every boy differently! I will always share and spread awareness! We still learn new things every day about this Syndrome. Share this post so it can bring more awareness about Lowe Syndrome!💙

06/18/2024

We would just like to say thank you for all the continued support!! All of you have been absolutely amazing and we have been able to lift several burdens!!

04/19/2024

This year at the "Show for Lowe's" we will have a kids raffle and be raffling off a Nintendo Switch, $100 EGift Card, and a case for it. Tickets will be $5 each. Come bring your kids out on May 4th!

03/22/2024

May 4th, 2024. Truck Show/cruise-in! Anything with wheels is allowed! Hamilton, Al

01/17/2024

Waylon enjoyed our iceday sledding with daddy! He is getting excited bout the upcoming "Show for Lowe's". This year anything with wheels can enter! All proceeds we raise will go towards the Waylon Sullivan Foundation, which helps other Lowe Syndrome families with medical and funeral expenses. Go to www.waylonsullivanfoundation.com

to register

01/11/2024

Looking forward to this year's event!! Had some hiccups last year which is to be expected as we continue to grow and learn ourselves. Hope Noone gives up on us and continue enjoying our show and grow with us! This year all vehicles are welcome! BIG TRUCKS, CARS, RACE CARS, TRACTORS, OFF ROAD VEHICLES ANYTHING WITH WHEELS!!! IF your proud of it bring it! We thank all of yal once again for your support to these kids! You can register online at www.waylonsullivanfoundation.com

12/02/2023

Thank you to the city of Hamilton for doing the walk of trees! We were so happy to put our Waylon Sullivan Foundation tree in honor of all the boys/young men who have Lowe Syndrome to bring more awareness! If you love our tree, scan the QR code and vote for our tree!❤️

12/01/2023

This year anything with wheels are welcome! ❤️ We hope to see a great turnout!

11/28/2023

May 4th, 2024 is locked in! Show For Lowe's details coming soon! Hope you all can come! ❤️ We do this for Waylon and all the Lowe Syndrome young men!

10/20/2023

Introducing our next spotlight!! I introduce yal to Omar! Omar is 13 and he loves animals and will try to pet every single one he sees. He loves light up toys and anything musical. He loves dancing to music. He also loves to swim and loves anything to do with water. His favorite foods are chicken (in any form), tacos, rice, and fruit (blackberries and oranges in particular.) Omar and his mom are from Colorado Springs, co!! Yal say hi to Omar!!!

09/20/2023

Spotlight #1 I would like to introduce Hunter!!! Hunter has Lowe Syndrome like his little buddy Waylon. Hunter is 28 and works at community integration site. He loves bowling, music, fishing, dancing and animals!! Hunter is also Minnesota gophers fan!!!! Yal say hi to Hunter if you would and stay tuned for our next spotlight!